As a physician, Long COVID taught me humility.
As a patient, it showed me how harmful dismissal can be.

To those living with Long COVID: you are my inspiration to listen better, believe sooner, and advocate harder.
#LongCovidAwarenessDay #LongCovid #Physiatry
Thank you! Have a good weekend!
Hmm, it should just show up on the page, no registration required. We did find one thing that may be causing the problem and updated it —would you mind trying this link and let me know if you are able to access it now? www.rthm.com/resources/bl...
@andreastudiescovid.bsky.social - I think we may have found the issue on our end - is it showing up properly now?
Thank you for that update! Our web/engineering teams are alerted are are trying to figure out why it’s doing that for some people but not others. It’s opening for us in all of our tests, so this will take some troubleshooting. Can I ask what browser (Chrome,etc.) you are using & what device?
Let me check - it should work everywhere
@binitakane.bsky.social @smbilodeau.bsky.social @andrewewing11.bsky.social @exceedhergrasp1.bsky.social @meactnet.bsky.social @openmedf.bsky.social @solveme.bsky.social @remissionbiome.bsky.social @longcovidkids.bsky.social
So excited the #LongCOVID Treatment Guide is live! This has been over a year in the making working with the incredible team at @patientled.bsky.social!
Thanks to everyone who reviewed & gave feedback on the guide! We really hope it helps the #IACC community!
Title: 2025 End of Year Research Swipe to see the top research on Long COVID and ME/CFS ADD ARROW
A recap of key Long COVID and ME/CFS studies from 2025.
These findings continue to challenge outdated explanations and underscore the urgency of better care, better tools, and continued research.
Swipe through to see the studies shaping what comes next.
RTHM is now accepting patients in Georgia and Ohio, expanding access to care for people managing Long COVID, ME/CFS, POTS, and other infection associated chronic conditions.
Explore RTHM Clinic → www.rthm.com/clinic
Dr. Jennifer Curtin recently joined host Jill Brook in an episode of The POTScast to speak about RTHM’s innovative HIPAA-compliant AI platform, which equips people with infection-associated chronic conditions with practical guidance and tools.
🎙️Listen now-https://ow.ly/ji4Z50Y7T2f
cheery pink background with white and green pills in the foreground
One of the best sites running a wide variety of clinical trials for #LongCovid and other IACCs is @coresinai.bsky.social, via @putrinolab.bsky.social !
At least 5 trials are currently recruiting - see links below for eligibility!
Long-term health outcomes and risk factors for low self-rated health in non-hospitalised adults with post-COVID-19 condition: a 2.5-year cohort study — Törnberg et al. "we observed sustained negative impacts of PCC on health outcomes 2.5 years after initial COVID-19 in non-hospitalised individuals, despite minor improvements over time."
"we observed sustained negative impacts of PCC on health outcomes 2.5 years after initial COVID-19 in non-hospitalised individuals, despite minor improvements over time."
link.springer.com/article/10.1...
Screenshot from latest Science for ME weekly update
#LongCovid #postCOVID19condition
OK, that's it for the introductions!
Now I'm going to create threads for each talk and attach each thread here... let's see how that works out for shareability. I've been disappointed by Bsky making longer threads cut off, b/c responses drop off past the cut, always. Let's see if this helps.
Our evidence-based rebuttal to *that* BMJ opinion piece published last week.
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.
www.bmj.com/content/389/...
NIH DOGE'd.....
Scientists fear Trump administration cuts to NIH could impact the health of Americans for generations
60 Minutes @cbsnews.com w/transcript
www.cbsnews.com/news/nih-lay...
4. Anki Flashcards (me + @erinmarilee.bsky.social, assistance from @grachstephanie.bsky.social & @jencurtinmd.bsky.social)
Flashcards for med students on infection-associated chronic illness #MECFS, #LongCOVID, #POTS, #hEDS, #MCAS & more.
Recommended by CDC 🧵
millionsmissing.meaction.net/teachME/
This 2021 paper focuses on where compression matters most.
www.jacc.org/doi/10.1016/...
Some VERY interesting research from the CDC #MECFS call today. Shows the benefits of compression garments for #POTS and similar conditions. One key finding: high waisted delivers the biggest boost. #LONGCOVID
www.sciencedirect.com/science/arti...
