Today is International Adrenal Disease Awareness Day.
80% of males with adrenoleukodystrophy (ALD) also experience adrenal insufficiency?
We are working to raise awareness about this critical connection. Please share & spread the word!
#adrenalinsufficiency #ald #addisonsdisease
Hey everyone! April is Adrenal Disease Awareness Month! Check out my story of living with this illness here: www.tiktok.com/t/ZTk6oHL42/
#raredisease #chronicillness #adrenalinsufficiency #tiktok #awareness
@aace.org.uk org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by
@addisonsdisease.bsky.social UK - available for ALL #paramedics & clinical #ambulance personnel.
Register for the next one (2 April) at addisonsdisease.org.uk/adshg-parame...
Old faithful mug announcing the opposite: joy to be back in the writing seat this morning. Still recovering but well enough to do this, this way. #earlymorning #writing #dowhatyoucan #dowhatyouvalue #adrenalinsufficiency
Woho! It's #RareDiseaseDay!
Time to celebrate my little mates, especially the ones called #HypoPituitarism and #AdrenalInsufficiency!
Really love that this coincides with #PokemonDay since I collect them. ^^
Strange question but anyone on here in the #CAH #AdrenalInsufficiency space and notice hydrocortisone prices skyrocket?
...😅 Don't remember being this high ever, not even during quarantine when it was being used to treat covid before ppl really knew what covid was
NADF Wednesday Q&A. Q: After eliminating steroids for 24 hours for a 6:30AM blood test, do I need to stress dose afterward or continue with my normal AM dose? A: After the blood is drawn, just resume the normal AM dose unless you have any significant adrenal insufficiency symptoms. Dr. Margulies, Medical Director of NADF. www.NADF.us/QAndA
Should patients with #AdrenalInsufficiency stress dose after a morning blood test? Dr. Margulies says, "Just resume the normal AM dose unless you have significant adrenal insufficiency symptoms."
Need your questions answered? Email NADFSupport@NADF.us and let us know!
Headshots of Vanessa O'Rourke, podcast host, and Dr. Elizabeth Regan, podcast guest. Text reads, "New episode out now! All Things Adrenal. 'We Can Do It As Long As We Start.' NADF."
New episode of #AllThingsAdrenal now out! Hear Dr. Elizabeth Regan's story of transforming her #AdrenalInsufficiency diagnosis into a research opportunity, and learn how you can help expand medical knowledge around #AdrenalDiseases
🎧 NADF.us/podcast or wherever you get your podcasts
"A significant risk associated with long-term [ #Glucocorticoid ] therapy is suppression of the #HPAaxis, which wld cause life-threatening #AdrenalInsufficiency on #withdrawal .. #ClinicalTrials [reveal] a significant unreported prevalence of [that].": buff.ly/StB5JAI
via @cureusmedical.bsky.social
Wednesday Q&A. Q: Can adrenal insufficiency cause multiple PVCs throughout the day? Q: Premature ventricular contractions, or PVCs are common, but not usually associated with adrenal insufficiency. During an adrenal crisis, with blood pressure falling, it is common to have sinus tachycardia, or simply a rapid heart beat, but that is not the same as PVCs. I suggest a cardiology evaluation. Dr. Margulies, Medical Director of NADF. www.NADF.us
Does #AdrenalInsufficiency cause premature ventricular contractions? Dr. Margulies explains what heart-related symptoms adrenal insufficiency patients might experience during crisis, and when it's appropriate to seek a cardiologist's care instead in this Wednesday's Q+A.
. @aace.org.uk is supporting further excellent, free #adrenalinsufficiency information and training sessions hosted by @addisonsdisease.bsky.social UK - available for all #paramedics and clinical #ambulance personnel.
Register for the next one (Jan 26) at addisonsdisease.org.uk/Event/parame...
An image of New Year's decorations and a pair of hands with light skin holding three prescription bottles with pills in them. Text reads, "The New Year is a great time to check the expiration on your medications and revamp your hospital go bag. Preparation is the key to staying safe! NADF."
New Year, new ... medication? It's a great time to check expiration dates and the status of your hospital go bag. Preparedness is the key to staying safe!
#AdrenalDiseaseAwareness #AdrenalInsufficiency
Addison’s Disease: Causes, Clinical Features, Diagnosis, Treatment, Prevention, Complications, Key Points and MnemonicAddison’s Disease: Causes, Clinical Features, Diagnosis, Treatment, Prevention
#VikaasShandily #AddisonsDisease #AdrenalInsufficiency #Endocrinology #CortisolDeficiency
Here's our Christmas card to you. Spreading joy, wellbeing, & awareness this festive season❄️ From the Addison's Disease Self-Help Group (ADSHG) 💜
Help us raise awareness of #AdrenalInsufficiency, a rare, life-threatening condition. Learn more & share➡️ www.addisonsdisease.org.uk/festive-wishes
A photo of a person sitting on a duvet with their head on their drawn up knees, next to a pile a lit garland lights. Text reads, "'A Day in the Life' An educational blog from NADF. Dylan's story. NADF.us/blog."
New blog post! "A Day in the Life: Dylan's Story"
Dylan and her sister are traveling for the holidays. What sort of combo does holiday stress, travel stress, and #AdrenalInsufficiency make? Read the full post at NADF.us/blog to find out.
NADF Wednesday Q&A. Q: What is the impact of an emergency 100mg hydrocortisone injection on blood test results if it is taken the day before or the day of blood tests? For background, I had to take an emergency injection due to ongoing severe chronic lower back pain. The following, day my GP ordered blood work. My HbA1c test, which reflects glucose levels over the previous two or three months came back indicating that I was pre diabetic. When the test was repeated three months later, it indicated that I am not prediabetic. My ferritin level was also low initially, but when repeated three months later it was normal. See next slide for answer. www.NADF.us
NADF Wednesday Q&A. See previous slide for question. A: The blood test for diabetes is HbA1c, which reflects the average blood glucose for the previous few weeks. However, it is more sensitive to the most recent fluctuations, so it is very likely that a sudden elevation of glucose caused by the 100 mg dose of hydrocortisone could bring the result into the prediabetic range. The follow up test in the normal range is reassuring. The ferritin level can also be affected by hydrocortisone, but sometimes it is elevated, sometimes suppressed. The important thing is that the doctor who ordered the tests should be informed about the prior injection of hydrocortisone so the results are not misinterpreted. It looks like that is what has happened here. Dr. Margulies, Medical Director of NADF. www.NADF.us
What impact does an emergency hydrocortisone injection have on blood test results? Dr. Margulies advises a patient who had varying results on their HbA1c test over the course of three months.
#AdrenalInsufficiency
Now seeking: Individuals and caregivers of individuals with adrenal insufficiency. Survey: Stress Dosing in Adrenal Insufficiency. Patients with Adrenal Insufficiency ages 12+ and caregivers of patients with Adrenal Insufficiency. 10-15 minute online survey. Help improve patient education and support. Principal investigator: Dr. Alexandra Ahmet. For more information and to participate, go to bit.ly/aahmet25
Now seeking: Individuals and caregivers of individuals with adrenal insufficiency ages 12+
Survey: Stress Dosing in Adrenal Insufficiency
Take a 10-15 minute online survey to help improve patient education and support.
More info: bit.ly/aahmet25
#AdrenalInsufficiency #AdrenalDiseaseAwareness
Headshots of Vanessa O'Rourke, podcast host, and Erin Foley-Moudry, MPH, podcast guest. Text reads, "New episode out now! All Things Adrenal. 'President of NADF at Age 24. NADF."
New episode of #AllThingsAdrenal is out now! Join host Vanessa O'Rourke and NADF co-president Erin Foley-Moudry for a conversation about Erin's history with NADF and #AdrenalInsufficiency. Available at NADF.us/podcast or wherever you typically listen.
I made my first BlueSky Starter Pack! I have a rare condition called Addison's Disease, which is a type of Adrenal Insufficiency. I will try to add all the resources or community I find to this pack. go.bsky.app/CWtwi4e #raredisease #AddisonsDisease #AdrenalInsufficiency #lowcortisol
A photo of a diverse group of medical practitioners standing in a group. Text around the picture reads, "Stronger educational tools, stronger medical care. Help NADF expand its outreach and develop stronger educational tools for heathcare providers nationwide--improving outcomes for everyone living with adrenal disease. Giving Tuesday. NADF.us/donate."
This #GivingTuesday, help NADF expand outreach and develop stronger educational tools for healthcare providers. Better education means better outcomes for patients with #AdrenalInsufficiency, bringing us one step closer to a world free from suffering and death due to #AdrenalDisease.
NADF.us/donate
NADF Wednesday Q+A. Q: I have Addison's Disease. Do steroids come up as a false positive on a drug test? A: Glucocorticoids used for Addison's disease will not show up on drug testing. Anabolic steroids used by athletes will show up on the drug testing for athletics competition. Dr. Margulies, Medical Director of NADF. www.NADF.us.
Worried about how steroids for #AddisonsDisease impact drug tests? Dr. Margulies advises in this week's Q+A.
What's your question about #AdrenalInsufficiency? Chances are someone else has the same one. It's the giving season, go ahead and ask for two! Email NADFSupport@NADF.us.
An illustration of a group of people with their arms around each other's shoulders. Text reads, "The NADF Colorado Support Group has a virtual meeting Wednesday, November 12th at 5:30pm MT. Contact NADFSupport@NADF.us or visit our calendar to join - NADF.us/calendar."
The NADF Colorado Support Group has a virtual meeting Wednesday, November 12th at 5:30pm MT. Contact NADFSupport@NADF.us or visit NADF.us/calendar to join.
#AdrenalInsufficiency #AdrenalDiseaseAwareness
A screenshot of an online video and text reading, "Thank you VuMedi for sharing our presenter videos from Navigating Adrenal Health 2025. VuMedi is a video platform for clinician continuing education. For NAH25 content and other reliable programs, create your account today: vumedi.com. The videos are available to the general public at NADF.us/videos."
Thank you #VuMedi for sharing our presenter videos from Navigating Adrenal Health 2025.
For #NAH25 content and other reliable programs, create your account today: vumedi.com.
The videos are available to the general public at NADF.us/videos
#AdrenalInsufficiency
NADF Wednesday Q+A: Q: I have Addison's disease. What impact does that have on getting a hysterectomy? Is it safe to get one, and if so, what precautions should I take? Will it impact my Addison's after surgery at all? A: A hysterectomy is a surgical procedure that removes the uterus. It is performed under general anesthesia. The usual preop and postoperative steroid dosing for general anesthesia is used and is safe when performed in a hospital. The gynecologist and anesthesiologist will know what dose to use. After the surgery, the dose of hydrocortisone will be tapered back to your normal dose. There should not be any long-term effect on the Addison's disease or steroid management. Dr. Margulies, Medical Director of NADF.
Having #AddisonsDisease means taking certain precautions when undergoing surgery. In this week's Q+A, Dr. Margulies advises a patient considering a hysterectomy about what to expect pre- and post-op. nadf.us/protocols
Email your questions to NADFSupport@NADF.us
#AdrenalInsufficiency #AdrenalDisease
Psychotropic drug use in patients with autoimmune Addison's disease: a Swedish population-based cohort study by Sara Öster et al
EJE Volume 193, Issue 2, August 2025
Open access article 👉 doi.org/10.1093/ejen...
#endocrinology #addisons #adrenalinsufficiency
A photo of a pediatrician high fiving a young patient who is sitting on her parent's lap. Text reads, "PES Pediatric Endocrine Society has listed NADF as a "sister" foundation. Check out their website and all its helpful links: pedsendo.org/professional-links".
The Pediatric Endocrine Society (PES) has listed NADF as a sister foundation. We thank them for the recognition, and for all the wonderful work they do.
Check out their website and all its helpful links: pedsendo.org
#Endocrine #AdrenalDisease #AdrenalInsufficiency
Time for wider adoption of salivary cortisone in endocrinology?
@akheelsyed.bsky.social @addisonsdisease.bsky.social @socendocrinology.bsky.social #AdrenalInsufficiency #Endocrinology #SalivaryCortisone
jamanetwork.com/journals/jam...
Thank you to all of our incredible presenters at the Navigating Adrenal Health 2025. What a wealth of information! From deeply personal stories to exciting scientific advances, it was truly an inspiring conference.
#NAH25 #AdrenalInsufficiency
A partial list of Friday presenters for NADF's inaugural virtual conference Navigating Adrenal Health 2025.
A partial list of Friday presenters for NADF's inaugural virtual conference Navigating Adrenal Health 2025.
A list of Saturday presenters for NADF's inaugural virtual conference Navigating Adrenal Health 2025.
We're counting down to "Navigating Adrenal Health" and so excited for the presentations we have lined up for you. From disease-specific topics to general advances in adrenal disease treatment, there's a lot of information we can't wait to share.
#NAH25 #AdrenalInsufficiency
A still from a YouTube video and text, "Thank you, Dr. Carlos Caballero, for creating an educational workshop for patients with Adrenal Insufficiency, 'Taller para personas con Insufficiencia Suprarrenal'. Watch it on YouTube: bit.ly/4nEv3zK".
Thank you, Dr. Carlos Caballero, for creating a Spanish-language educational workshop for patients with Adrenal Insufficiency, 'Taller para personas con Insufficiencia Suprarrenal'.
Watch it on YouTube: bit.ly/4nEv3zK
#AdrenalInsufficiency #InsufficienciaSuprarrenal
