Anyone with back issues out there (#AxialSpa in my case) ever tried a “saddle” type #deskchair / stool, and care to report on their experience? I’ve already got a sit/stand desk but my sitting posture is often pretty bad, and being able to tuck a chair without a back under the desk while I’m […]
Keeping up with the latest news from #ACR25 Chicago from 🇱🇧
#axialspa #CLASSIC_study
@rheumnow.bsky.social
@acr-journals.bsky.social
📰 New in BMC Rheumatology:
Lifestyle factors like smoking, obesity & alcohol impact TNFα inhibitor outcomes in axial SpA (14-country study). Supports integrated care in rheumatology.
Read article👉 shorturl.at/cmBY6
#Rheumatology #AxialSpA #TNFalpha #LifestyleMedicine #BMC #EuroSpA #Publication
Proud to see our @liverpooluni.bsky.social medical student Tim Boey present his audit on this at the @rcophth.bsky.social annual congress in Liverpool.
It's time for timely diagnosis - We're working with other specialists to improve patient care, as part of the Act on #AxialSpA campaign
Anterior #uveitis can be an early sign of Axial SpA, a rheumatic disease. Early diagnosis is crucial.
Remember SPINE in #AxialSpA
Symptoms start slowly
Pain in lower back
Improves with movement
Night waking
Early onset (<40)
www.youtube.com/watch?v=kdda...
"Managing my Uveitis" patient information leaflet (PIL) from the National Axial SpA Society available here:
nass.co.uk/wp-content/u...
#Uveitis #AxialSpA
![[Image description]
An image of vertical line with numbers starting at 0 through 50.
😐 Pain associated 10 and 20 on the McGill Index are: sprain, fracture, and toothache and arthritis having the same pain score.
😧22-28 include pain such as after shingles pain (22), non terminal cancer (26), chronic back pain (28) and chronic migraine (29)
😭Pain associated 30 to 38 on the McGill Index are: fibromyalgia (30), Ankylosing Spondylitis (32) = childbirth with training (32), childbirth no training (36), and amputation of toe or finger (39).
🤯CRPS at 46 is the most painful disease in the world.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:62wcb64mxz2mvwghbt6drwu5/bafkreiedkkiaw4nzf5mjaaeneo5i653oymvu4cwrdyu5zbqcmi7i3jyffu)
[Image description] An image of vertical line with numbers starting at 0 through 50. 😐 Pain associated 10 and 20 on the McGill Index are: sprain, fracture, and toothache and arthritis having the same pain score. 😧22-28 include pain such as after shingles pain (22), non terminal cancer (26), chronic back pain (28) and chronic migraine (29) 😭Pain associated 30 to 38 on the McGill Index are: fibromyalgia (30), Ankylosing Spondylitis (32) = childbirth with training (32), childbirth no training (36), and amputation of toe or finger (39). 🤯CRPS at 46 is the most painful disease in the world.
#AxialSpA & #fibromyalgia are
recognized as being as painful as or more painful than
Migraine
Heart attack
Childbirth (with training)
Non terminal cancer
Imagine living with one of the most painful diseases in the world and it's thought to equal to or higher than pain experienced during childbirth
Shout out for the Rheum for improvement @NASSexercise podcast with Lucy Davies here #AxialSpA
www.youtube.com/watch?v=JlEf...
Honoured to receive the Silver Changemaker Award from NASS at the Houses of Parliament! Reducing the time from symptoms to diagnosis for Axial SpA is vital, and I'm humbled by this recognition of those efforts. Thank you! 🫂
#AxialSpA
The standard of the free paper prize competition was the best in recent memory - particularly well done to medical students Pavel Loginovic and Timothy Boey.
Pavel presented on Epidemiology of #OpticNeuritis in England. Timothy presented on screening for #AxialSpA in HLA-B27 associated #Uveitis.
Happy to share National Axial Spondyloarthritis Society
article published
Read to find out #delayeddiagnosis of #axialspa +how #primarycare clinicians can make a difference
lnkd.in/dC-i4a7A
And everyone at NASS and co authors
Act on axial spa campaign find more resources here
lnkd.in/deaNhpFp
Some of our patients in my joint clinic with Rheumatology today @LivHospitals were reading this fantastic "Managing My #Uveitis" PIL (Patient Information Leaflet) from NASS
40% of acute anterior uveitis (#AAU) patients could have #axialSpA.
Here is our podcast:
youtu.be/JlEfVekszhg
Starting out over here on bsky. It’s kind of weird trying to find my tribe all over again. #ADHD #AxialSpA #IBD.
Used the bird app for work related interests #Autism #Neurodivergence #Learningdisability #occupationaltherapy but it’s becoming more and more uncomfortable over there.
Myself standing within the Houses of Parliament
Celebrating #AxialSpA changemakers:
Inspiring doctors, nurses, physiotherapists, AHPs and advocates who are changing the course of this disease
Organised by NASS nass.co.uk , this took place in the elegant Terrace Pavilion,House of Commons
Pleasure to represent UK Uveitis Specialists
