If you’re living with or caring for someone with a rare disease, your voice can help show the real impact on families across Canada. Complete this 10-min survey and help shape better policies.

🗓️ Closes June 6, 2025

🔗 tinyurl.com/4j9mfmtp

#PediatricRareDisease #Canada4Rare #RareKidsCAN #CORD

This hybrid event will spotlight rare disease research, innovation, and collaboration.

Don’t miss out—register today: lu.ma/8x9lr9ms

#CanadianRDInnovationShowcase #RareLivesSharedStrength #Canada4Rare

The Drugs for #RareDiseases Data Landscape, as presented by Tracy Johnson from @CIHI_ICIS at @raredisorders 2024 #RareDiseaseDay conference. #Canada4Rare

@CanadianRDN @CdnANetwork

It’s time to rethink what the medical profession considers a ‘rare disease’ Despite the fact that rare diseases aren’t actually so rare, it appears they suffer from a branding problem in Canada.

It's time to rethink what the medical profession considers a 'rare disease'

#Canada4Rare #CORDaccessInnovation19 @ConversationCA @durhane @raredisorders

Scientific director of @CIHR_IRSC Paul Lasko, provides an update on rare disease research. #PatientsFirst #Canada4Rare @raredisorders

Update on Ontario's Working Group on Rare Diseases, provided by @Durhane. Report due early 2017 #patientsfirst #Canada4Rare @raredisorders

Learning about drug costs and pricing from Carole Watson of @JanssenCanada #PatientsFirst #Canada4Rare @raredisorders