Please say hi to your amazing husband from me.
Family carers are the proven lifeline to #pwME
Being #Close2ME is the most stressful of all possible caring roles. Everything but your love for each other is at stake.
@laylamoran.bsky.social @jeremyhuntmp.bsky.social
@johnmcdonnellmp.bsky.social
#pwME #LongCovidME #Close2ME
You are incredible: everyone now knows someone with #ME (#MyalgicEncephalomyelitis) but few know what it means.
Stay strong, stay focussed on reducing PEM, and know you are not forgotten.
Medicine is excruciatingly conservative but change is coming. Too slowly but surely
and fidelity to reporting what is known (without exaggeration or exception) make him one of the best advocates for #pwME I know.
With thanks to the love of his family carers #Close2ME
@ashleydaltonmp.bsky.social @gwynnemp.bsky.social
the policy and no experience with severe ME.
Nobody #Close2ME to advocate.
This is why we need a Plan for ME, with full NHS Executive Board support to implement actions at strategic level. Leadership on #ME went awol decades ago.
#pwME If you or your #Close2ME have the capacity to sue for medical negligence of #ME, contact Tim Annett at Irwin Mitchell in Shefffield. No win no fee. UK only. Tim.Annett@irwinmitchell.com. Please share far and wide.
#pwME #LongCovid #Close2ME get started with this for a new years insult from NHSuk. Please share widely
static.onlinesurveys.ac.uk/media/account/
#VerySevereME #Close2ME #pwME 14 years for medical neglect of ME to kill my only child at 27 years. One of the most painful parts of mourning? Discovering how she had had to alter the settings on her smart phone to accommodate steady deterioration in neuro function. A* scholar.
