NHS care for ME now Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

We are delighted by your appointment and will do everything to help you get it right for #pwME (people with ME)
#LongCovidME (51%+ of Long Covid meets ME criteria)
their family carers
NHS staff doing their best without proper knowledge or advice from their NHS execs

Justice4ME.uk

📢 @sharonhodgsonmp.bsky.social congratulations!!!!
We want to help you get it right for #pwME (people with Myalgic Encephalomyelitis) & #LongCovidME (51%+ Long Covid meets ME diagnostic criteria).
#ME is not chronic fatigue. The killer symptom is #PEM (post exertional malaise).
Justice4ME.uk

Please contribute #pwME #LongCovidME
Learning from vsME BACME member has noted eating, communicating & moving all provoke #PEM.
For hospitals this information is critical @ashleydaltonmp.bsky.social your staff are failing to give NHS leaders a steer from the NHS frontline.
@laylamoran.bsky.social

Everyone with a diagnosis of #ME #LongCovidME and every clinician working with these patients should have the right to this information (below).
Why is it being withheld?
Everyone knows neglecting cancer is extremely dangerous.
Everyone with #ME deserves to know the same.

media.licdn.com/dms/document...
9 easy read slides on mitochondria & immunity. Describes #ME symptoms in graphic biochemical detail. 2025
#pwME #LongCovidME #MedSky

Thinking of you.
You are one of so many talents wasted by #LongCovidME. Forgive me if I've read too much in to your departure; if I haven't please get in touch.

Greeting a New Year with news like this is the best and most encouraging of all.
Our debt to Alem is incalculable #pwME #Justice4ME #LongCovidME

In other news, Ella's funeral is testament to the total wreckage being made of young people's lives.
UK #ME orgs do nothing to prevent these deaths.

Everything is better with chilli!
Tumeric & chilli seasoning = nutritional anti-inflammatory, btw #pwME #LongCovidME

#pwME #LongCovidME #Close2ME
You are incredible: everyone now knows someone with #ME (#MyalgicEncephalomyelitis) but few know what it means.
Stay strong, stay focussed on reducing PEM, and know you are not forgotten.
Medicine is excruciatingly conservative but change is coming. Too slowly but surely

Questionnaire | page 1

#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...

So proud to be amongst a community so dignified and respectful despite being so badly wronged, badly represented and unjustly served. Strength in our numbers #pwME #LongCovidME. Thank you 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@ashleydaltonmp.bsky.social we can help you. Please accept our offer of support.
Justice4ME.uk 🙏🏼🙏🏼

NHS care for ME now Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

🤩 @vladvexler.bsky.social has a public profile DESPITE #MEcfs & #LongCovidME on top.
Ty @alastaircampbell2.bsky.social @restispolitics.bsky.social for the acknowledgement.
#MEKills (mostly females) #Justice4ME Justice4me.uk please share

Tbh until there is effective treatment/a cure, the trauma is unstoppable at #vsME level.
SoThis is why #Justice4ME is so critical for every #pwME #LongCovidME. Symptom exacerbation increases over time without absolute rest. Who in adulthood is allowed absolute rest?

Clueless about FND. Only ever met one person who had it and didn't have #ME or #LongCovidME. I am as susceptible to confirmation bias as anyone. All jargon is a cursed way to divide people but medical jargon is especially cussed. The power imbalance is deadly.
More to the point, what role does

#pwME #LongCovidME #PEM #PacingActivity

It is easy to pace viewing by pausing every time the interviewee changes. If you haven't already seen it, give yourself plenty of gaps to allow for emotional and cognitive processing.
#pwME #LongCovidME

My tears fell hard on Tuesday after @channel4news.bsky.social let me know to be prepared. I was on the tube. Then, knowing how high the PEM is from emotional arousal I was concerned for everyone with #ME & #LongCovidME. Breaking through after so much effort by so many for so long ...

Not any parent; every parent of a child with #ME or #LongCovidME

As I understand it, the first two modules are accessible to anyone with an email address anywhere in the world. NHS Education say they are taking feedback and will review the modules every two years.
#pwME #LongCovidME please sign up, pace yourselves as you know you must and give your feedback.
2/3

#MEAwarenessMonth #MyalgicEncephalomyelitis #LongCovidME #Pacing

longcovid.physio/pacing

@wesstreeting.bsky.social

@emmalewellbuck.bsky.social

This is the latest campaign to support
@mefoggydog.bsky.social
to report harms so data can be collected to stop continuing harm to #pwME
And now #LongCovid #LongCovidMe

Thank you 🩵🦋🩵

#pwME
#MyalgicEncephalomyelitis

Hopefully this campaign will help to highlight the lack of data feedback on outdated therapy that’s still being pushed, eventually leading to better treatment for newly diagnosed /those with #LongCovid / #LongCovidME
esp those already dealing with M.E &now LC on top

Once you have the post infection condition generically termed #ME, repeat infections make you worse. This is one of the presentations shared by everyone with #LongCovidME. For healthy people, like me, exercising my immune system is vital. This difference is what medical science needs to know about.