#disabled
Also sick of 15, yes 15 yrs of medical gaslighting.
"nothing to see here, you're fine"
#EDS #SORGHRENS #CONNECTIVETISSUEDISORDERS
if i could exit this world I would, but if I have to stay, at least diagnosis and treat.
Had this my entire 70 yrs, no one is listening. Dr wait,up to a yr.

The scale of what has been coined the biggest medical scandal of the 21st century is enormous, encompassing numerous conditions. We are long overdue joining the dots

#ME #chronicfatiguesyndrome #EDS #connectivetissuedisorders #MCAS #POTS #fibromyalgia #postviralsyndrome including #longcovid

Panorama

Patient Perspectives and Clinical Insights Into the Diagnostic Journey From Connective Tissue Disease to Pulmonary Arterial Hypertension

📖 doi.org/10.3899/jrhe...

#connectivetissuedisorders #pulmonaryarterialhypertension

It’s February 28, and this is Rare Disease Day! 🦓

#ConnectiveTissueDisorders
#Genetics
#zebra
#RareDiseaseDay2025
#Disability

Brittle Cornea Syndrome and Ehlers-Danlos Syndrome: A Delicate Connection If you're part of the Ehlers-Danlos Syndrome (EDS) community, you already know that your body operates on a "hard mode" setting—your joints are bendier than a circus act, your skin thinks it's made of...

Today we take a look at
Brittle Cornea Syndrome (BCS) a rare but serious complication of Ehlers-Danlos Syndrome (EDS). Learn how they connect & why early diagnosis matters!
#BrittleCorneaSyndrome #EDS #RareDisease #ConnectiveTissueDisorders
#Ehletsdanlos

www.unremarkableme.com/post/brittle...

#ConnectiveTissueDisorders
#Marfans #EDS