📣 On European #VonWillebrandDisease Awareness Day, we're highlighting a critical gap: #VonWillebrandFactor is absent from the EU #CriticalMedicine List. 🇪🇺This threatens patient safety & must be addressed urgently. Read more 👉 tinyurl.com/5277aby7
#VWDay
@stinebosse.bsky.social
📣 People with #VonWillebrandDisease rely on #VonWillebrandFactor (VWF) to live safely — yet supply remains fragile. We urge National Competent Authorities to classify VWF as a #CriticalMedicine to protect patient access across Europe.
www.ehc.eu/news/ehc-urg...
#VonWillebrandDisease affects up to 1% of people but is often overlooked. Delays in #VonWillebrandFactor supply can be dangerous - healthcare systems must recognise VWF as a #CriticalMedicine.
@ema.europa.eu
#CriticalCare #BleedingDisorders
Without access to #VonWillebrandFactor (VWF), people with #VonWillebrandDisease face significant limitations preventing life-threatening bleeding. Healthcare systems must recognise VWF as #CriticalMedicine 📣
@ema.europa.eu
#CriticalCare #BleedingDisorders
The recognition of #VonWillebrandFactor as a #CriticalMedicine is a decision based on evidence, equity and medical urgency.
@ema.europa.eu
#VonWillebrandDisease #CriticalCare #BleedingDisorders
It's time for health systems to recognise #VonWillebrandFactor as a #CriticalMedicine. We're not asking for privileges—we're asking for access to treatment that makes a difference for people with #VonWillebrandDisease. It's about equity and social justice. 🩸
@ema.europa.eu
Supply delays of Von Willebrand Factor can cause severe consequences for #VonWillebrandDisease patients - worsening health, irreversible damage, hospitalisations, even death. Health systems must recognise #VonWillebrandFactor as #CriticalMedicine.
@ema.europa.eu
#VonWillebrandDisease can be the cause of unexplained abnormal uterine bleeding with severe chronic anaemia and iron deficiency.
It’s time for health systems to recognise #VonWillebrandFactor as a #CriticalMedicine.
@ema.europa.eu
#VonWillebrandDisease affects 1:1000 individuals and, if not recognised, may cause severe bleeding symptoms after trauma or surgery that can be life-threatening.
It’s time for health systems to recognise #VonWillebrandFactor as a #CriticalMedicine.
@ema.europa.eu
#MedSky🧪#NeuroSky #Criticalmedicine #ICU In this study @nejm.org the
patients with aneurysmal subarachnoid hemorrhage & anemia, a liberal transfusion strategy did not result in a lower risk of an unfavorable neurologic outcome at 12 months than a restrictive strategy …