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Lactation and Breastfeeding Support Resources for Parents - National Center for Disability and Pregnancy Research

Nursing parents with disabilities have unique needs while feeding and caring for their baby. Our new resource webpage answers common questions from current and prospective parents with disabilities.

Learn more: TinyURL.com/Disability-Lactation

#DisabilityPregnancy #PregnancyResearch

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Graphic with a purple background announcing the Accessible Pregnancy Action Plan – Facilitator’s Guide. It features a smiling woman with dwarfism using a laptop. A pop up window shows the guide’s cover. Each slide shows link to guide: Tiny U R L dot com forward slash Accessible Pregnancy Action Plan

Graphic with a purple background announcing the Accessible Pregnancy Action Plan – Facilitator’s Guide. It features a smiling woman with dwarfism using a laptop. A pop up window shows the guide’s cover. Each slide shows link to guide: Tiny U R L dot com forward slash Accessible Pregnancy Action Plan

People with disabilities need pregnancy care and support with them in mind. That's why we made the Accessible Pregnancy Action Plan (APAP). Includes image of a mother with a physical disability feeding her baby with a bottle.

People with disabilities need pregnancy care and support with them in mind. That's why we made the Accessible Pregnancy Action Plan (APAP). Includes image of a mother with a physical disability feeding her baby with a bottle.

Pregnant disabled people can use the APAP to talk with a peer or doctor about what matters most to them during pregnancy, labor and delivery, and postpartum. Image of two peers happily talking to each other.

Pregnant disabled people can use the APAP to talk with a peer or doctor about what matters most to them during pregnancy, labor and delivery, and postpartum. Image of two peers happily talking to each other.

Learn more online. Tiny U R L dot com forward slash Accessible Pregnancy Action Plan. Image of a mother and daughter viewing an embedded video of the Facilitator's Guide on their phone.

Learn more online. Tiny U R L dot com forward slash Accessible Pregnancy Action Plan. Image of a mother and daughter viewing an embedded video of the Facilitator's Guide on their phone.

Introducing the Accessible Pregnancy Action Plan 🤰🏻 an innovative new tool that supports pregnant people with disabilities. Explore the new resource on our website: TinyURL.com/AccessiblePregnancyActionPlan

#DisabilityPregnancy #PregnancyResearch

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This video covers both general preconception health education topics and those specific to women with mobility disabilities: zurl.co/ysWPS

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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Preconception Education for Pregnant Women with Mobility Disabilities
Preconception Education for Pregnant Women with Mobility Disabilities YouTube video by Lurie Institute for Disability Policy

Our new video research brief covers general and disability-specific preconception health education topics women with mobility disabilities should know consider: zurl.co/3qIRn

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch #Pregnancy #PreconceptionEducation

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This was such an awesome project to be a part of, Thank-You @lurieinstitute.bsky.social for having me!

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch #Lactation #IBCLC

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Lactation and Breastfeeding with a Disability [ASL] [CC] Parents with disabilities have babies at about the same rate as those without disabilities. However, all too often, disabled parents don’t get the support th...

This week is the inaugural National Deaf & Hard of Hearing Breastfeeding Week!

In this webinar, we discuss how to support new parents with a variety of disabilities in lactation and breastfeeding their child. Watch online: zurl.co/VEIcF

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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Webinar Recording Available Now. On the laptop screen, text reads: “The crib was wildly inaccessible for both of us. It is a special kind of helplessness when you can't reach your own baby" attributed to Elizabeth Soper.

Webinar Recording Available Now. On the laptop screen, text reads: “The crib was wildly inaccessible for both of us. It is a special kind of helplessness when you can't reach your own baby" attributed to Elizabeth Soper.

The "Lactation and Breastfeeding with a Disability" webinar recording is now available!

Watch the recording: zurl.co/5OXyv
FAQ & Resource Guide coming soon!

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch #Lactation #IBCLC

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What we learned (1 of 3). The researchers found differences in the health status and hospital access of women with and without disabilities. A few examples include: Women with IDD, psychiatric disabilities, and multiple disabilities were more likely to live in lower income ZIP codes (beside is a graphic of a family gathered in a home with a dollar sign attached and a downward facing arrow. Except for women who had hearing disabilities, women with all types were more likely to have high blood pressure, compared to nondisabled women (beside is a heart with a heartbeat line). Women with any disability had higher rates of deliveries in urban teaching hospitals compared to women without disabilities (beside is a collection of buildings.) This information is important. It helps us understand how systemic, hospital, and personal factors can impact risk of SMM (warning sign icon beside).

What we learned (1 of 3). The researchers found differences in the health status and hospital access of women with and without disabilities. A few examples include: Women with IDD, psychiatric disabilities, and multiple disabilities were more likely to live in lower income ZIP codes (beside is a graphic of a family gathered in a home with a dollar sign attached and a downward facing arrow. Except for women who had hearing disabilities, women with all types were more likely to have high blood pressure, compared to nondisabled women (beside is a heart with a heartbeat line). Women with any disability had higher rates of deliveries in urban teaching hospitals compared to women without disabilities (beside is a collection of buildings.) This information is important. It helps us understand how systemic, hospital, and personal factors can impact risk of SMM (warning sign icon beside).

What we learned (2 of 3). Women with disabilities had a significantly higher risk of SMM compared to nondisabled women. Out of 10,000 deliveries observed in the data, 396 disabled women experienced SMM, compared to 177 nondisabled women. In the middle, there is a bar graph showing the (177) data for nondisabled and (396) for disabled. Disabled women were also more likely to experience heart and breathing complications than nondisabled women (beside it is a graphic showing lungs).

What we learned (2 of 3). Women with disabilities had a significantly higher risk of SMM compared to nondisabled women. Out of 10,000 deliveries observed in the data, 396 disabled women experienced SMM, compared to 177 nondisabled women. In the middle, there is a bar graph showing the (177) data for nondisabled and (396) for disabled. Disabled women were also more likely to experience heart and breathing complications than nondisabled women (beside it is a graphic showing lungs).

What we learned (3 of 3). The risk of SMM varies by disability type. Not all women with disabilities experienced the same risk for SMM. Among women with different disabilities, 
women who were blind and women with physical disabilities had the highest risk of SMM compared to women without disabilities. Below, is a graphic of a woman with visual disabilities holding her guide dog and a white cane beside a woman with physical disabilities sitting at a table writing and drinking tea.

What we learned (3 of 3). The risk of SMM varies by disability type. Not all women with disabilities experienced the same risk for SMM. Among women with different disabilities, women who were blind and women with physical disabilities had the highest risk of SMM compared to women without disabilities. Below, is a graphic of a woman with visual disabilities holding her guide dog and a white cane beside a woman with physical disabilities sitting at a table writing and drinking tea.

Many women with disabilities can and do have healthy pregnancies and deliveries. However, further research and increased awareness of the risks pregnant women with disabilities may experience are needed to improve health outcomes. It also invites readers to read SMM brief online, using a QR code, along with the author's name, Madeline Crowley.

Many women with disabilities can and do have healthy pregnancies and deliveries. However, further research and increased awareness of the risks pregnant women with disabilities may experience are needed to improve health outcomes. It also invites readers to read SMM brief online, using a QR code, along with the author's name, Madeline Crowley.

that investigates if the risk for SMM varied for women with different types of disabilities compared to nondisabled women.
#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch #PerinatalResearch #DisabilityResearch

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"In 2024, we provided several webinars designed to equip healthcare professionals, researchers, and community leaders with the knowledge and tools needed to address the unique challenges faced by disabled women during pregnancy and postpartum:" Below the text are cover images of our webinars on "Pregnancy and Physical Disability: A discussion for people with physical disabilities who are pregnant or thinking about pregnancy", and "Addressing Perinatal Health Inequities Among Deaf and Hard of Hearing Individuals through Clinical, Research, and Community Insights".

"In 2024, we provided several webinars designed to equip healthcare professionals, researchers, and community leaders with the knowledge and tools needed to address the unique challenges faced by disabled women during pregnancy and postpartum:" Below the text are cover images of our webinars on "Pregnancy and Physical Disability: A discussion for people with physical disabilities who are pregnant or thinking about pregnancy", and "Addressing Perinatal Health Inequities Among Deaf and Hard of Hearing Individuals through Clinical, Research, and Community Insights".

It invites readers to view the information in an accessible PDF format on the website using a QR code

It invites readers to view the information in an accessible PDF format on the website using a QR code

with funding provided by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) . Read the Annual Report: zurl.co/zjkbB

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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This study has been reviewed and approved by the University of Toronto Research Ethics Board [42560] and funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

#PostpartumMentalHealth #DisabilityResearch #DisabilityPregnancy

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Image promoting the availability of the Accessibility and Health Starts Before Pregnancy webinar recording. The image shows a laptop displaying a zoom call featuring one presenter and an ASL interpreter. Text above reads 'Webinar Recording Available Now' on a purple background.

Image promoting the availability of the Accessibility and Health Starts Before Pregnancy webinar recording. The image shows a laptop displaying a zoom call featuring one presenter and an ASL interpreter. Text above reads 'Webinar Recording Available Now' on a purple background.

The “Accessibility and Health Starts Before Pregnancy” webinar recording is now available!
Explore tailored preconception education for people with mobility disabilities, featuring real-life stories and practical insights. Watch here: zurl.co/k5OWK

#DisabilityPregnancy #PregnancyResearch

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The center's research aims to assess current coverage gaps and advocate for increased access, ensuring expanded pregnancy care for all.
#WorldDoulaWeek #DoulaAppreciation #DoulasLeadWithHeart #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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What factors contribute to the risk of maternal death and SMM among women with IDD?

Explore the study's findings here: zurl.co/puxm2

#DDawareness #DDAM2025 #DDAM #DevelopmentalDisabilitiesAwarenessMonth #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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Explore the study's findings here: zurl.co/puxm2

#DDawareness #DDAM2025 #DDAM #DevelopmentalDisabilitiesAwarenessMonth #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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"Pregnant people with intellectual disabilities need longer visits and may need visits more often." "Doctors want to make sure that a woman with an intellectual disability understands what is happening during the pregnancy and answers her questions. However, doctors have lots of patients and may not have extra time to spend with one patient. Also, they may not get paid for longer visits or more visits. This makes it hard to provide the best possible care."

"Pregnant people with intellectual disabilities need longer visits and may need visits more often." "Doctors want to make sure that a woman with an intellectual disability understands what is happening during the pregnancy and answers her questions. However, doctors have lots of patients and may not have extra time to spend with one patient. Also, they may not get paid for longer visits or more visits. This makes it hard to provide the best possible care."

The text says: "Read our the Pregnancy Care for Women with Intellectual Disabilities brief on our website to learn more." It has a cover of the brief with a QR code to access the brief.

The text says: "Read our the Pregnancy Care for Women with Intellectual Disabilities brief on our website to learn more." It has a cover of the brief with a QR code to access the brief.

#DDawareness #DDAM2025 #DDAM #DevelopmentalDisabilitiesAwarenessMonth #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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Video Guides for Women with Intellectual and Developmental Disabilities - National Center for Disability and Pregnancy Research

These informative videos are valuable resources, and you can access them here: zurl.co/CgOLd
#DDawareness #DDAM2025 #DDAM #DevelopmentalDisabilitiesAwarenessMonth #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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Welcome! You are invited to join a webinar: Accessibility and Health Starts Before Pregnancy: Tailored Preconception Education with People with Mobility Disabilities. After registering, you will recei... A healthy pregnancy and birth start with being healthy before pregnancy. We will discuss how to prepare for a healthy pregnancy while living with a disability. We will discuss special issues related t...

We will be providing ASL and Zoom automated captions. For any other accommodations, please contact us at Lurie@Brandeis.edu as soon as possible.

Register on Zoom: zurl.co/ugUFR

#DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

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