“Who Says Disability Isn’t a Full-Time Job?”: The Frustration Fatigue Reality of Uncoordinated Care If you live with hypermobile Ehlers-Danlos syndrome (hEDS), you likely already know the truth: managing your health is a full-time job — one with no paid time off, no clear job description, and no…

"As part of [a #DisabilityReview ], I had to document 112 appointments with 27 different providers over a year..to prove what I already knew: that my illness is real, persistent & disruptive.": buff.ly/3iuv84T

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#ChronicIllness #InvisibleIllness #disability #NEisVoid #FullTimeJob

DRM - Disability Review Magazine - Spring 2024 Welcome to our Spring issue of DRM. The UK's largest and most trusted disability title with a passion for inclusion and changing the attitude around disability. A magazine that I hope will show you th...

#1 First issue of Disability Review Magazine as editor. Miriam Margolyes had been on my ‘dream list’ of interviewees; it was also a pleasure to profile the founder of NeoWalk, the company that makes colourful canes.

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#DisabilityReview #MiriamMargolyes #Editing