The last time I tried to pursue a more official diagnosis was a year after it had taken me out of the workforce, and they wanted me OFF ALL MEDS for 6 months to prove how bad it was.
I would have suicided. I've barely survived the few weeks I've had to be unmedicated for the chronic pain […]
If you are unfamiliar with this and wish to know more, here's the wikipedia link. The CDC does have a more condensed description of it, but I am loathe to link to them given that their credibility is likely to continue to decrease […]
This is, frankly fucking exciting!
Like p. much all my conditions, I somehow am among the best functioning/most healthy of my cohort, which bodes well for my personal life expectancy. I feel validated for all the times I spent stuck in bed and felt like a shitty loser about it, while also […]
So today I have done my ever so often look into how ME/CFS research/treatment is going and it's apparently been A LONG TIME since the last time. I now understand things about my first major event from it that hadn't made sense before. And there's an aspect that now has a name! PEM! A thing that […]
kermit the frog is dancing in front of a red curtain and saying hooray .
I just climbed a ladder to replace bulbs in my ceiling fixture!
That is the first time I've successfully climbed more than one rung on a ladder in probably 25 years!
#disabledlives
#disabilitylife
Screenshot of ipaper report analysing the Department for Work and Pensions (DWP) customer support standards, obtained via Freedom of Information request. The report, titled “DWP identifies dozens of failures in handling of self-harm and suicidal claimants,” highlights that DWP staff repeatedly failed to meet new customer support standards designed to protect vulnerable claimants. It details that in a sample of thousands of claims, staff followed correct procedures only 62% of the time, missing key steps such as providing reasonable adjustments and following escalation protocols for claimants at risk of self-harm or suicide. The report emphasises that these failures put disabled people at serious risk, with many incidents linked to preventable harm and deaths. Source: iNews, “DWP identifies dozens of failures in handling of self-harm and suicidal claimants.” Link: https://inews.co.uk/news/dwp-admits-dozens-failures-self-harm-suicidal-claimants-3785956
🚨‼️ @AlexBallingerMP:
3,200 errors in Mar ‘25 DWP Customer Support Standards Report (FOI) — DWP admitted errors could affect life chances & its own reputation-LINK⬇️
#UCPIPBill risks repeating this HARM to #DisabledLives . Do the right thing-
#VoteNo #BinUCBill #ScrapTheBill
#DisabilityBenefits
I’ve lost count 2 days ago of how many times Kelly or I have carefully tried to clarify her support for MAiD while wanting the implementation practices initiated with Track 2 to be re-examined.
We also want to end #LegislatedPoverty and other obstacles to dignity in #DisabledLives.
#AssistUsToLive campaigners today and every day #EndAbleism #DisabledLives
Freezing ? Starving? Euthanasia?
White paper on benefit reform published Tuesday. Legalising assisted suicide debated Friday. If you cannot join the dots when both are happening in the same week, please go read up on #Eugenics to understand the devaluation of #DisabledLives
#AssistUsToLive
