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Yesterday, DiCE attended the meeting of the EU Health Coalition, which focused on the EU BioTech Act and its potential to shape the future of patient innovation in 🇪🇺.
#DiCE #BiotechAct #EUHealth #CancerPolicy #ClinicalTrials #DigestiveCancers #EUHealthPolicy

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📢 The EHC Public Policy Review (PPR) is out! Covering #EUHealthPolicy developments from Jan 2025 to Jan 2026, it breaks down what matters most for the #BleedingDisorders community — pharma reform, #EHDS, #HTA, #CriticalMedicinesAct, EU Biotech Act & social care. 📖 buff.ly/vIIDSak

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Civil society is the backbone of EU health. We urge Member States: restore #EU4Health operating grants & secure a strong #MFF budget for health in 2028–2034.

👉 Read the full statement here: buff.ly/cUNCaY2
#EU4Health #MFF #EUHealthPolicy #CivilSociety #EUCivilSociety #CivicSpace #PublicHealth

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📣 Last chance to register!

The Policy Workshop at #EANM25 is designed for academics, clinicians & researchers who want to connect science with European health policy.

📆 Oct 6 | Barcelona
⏳ Deadline: Sep 11
👉 Apply: eanm.org/eu-global-af...

#EUHealthPolicy #NuclearMedicine

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📣 Reminder – Free Policy Workshop at #EANM25 🇪🇺

Academics, clinicians & researchers: help shape the future of nuclear medicine by connecting science with policy.

📆 Oct 6 | 14:00–15:00 | Barcelona
👉 Apply: eanm.org/eu-global-af...

#EUHealthPolicy #ResearchPolicy

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Alem Mathees I remember you and thank you for your success in the FOIA against the PACE TRIAL.
A turning point in the scandal of #MyalgicEncephalomyelitis

#SevereMEday
#EUHealthPolicy #DisabilityRights #BiomedicalResearch #Neurology #InvisibleDisabilities #PublicHealth #WorkforceCrisis #EMEA

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#SevereMEDay #EUHealthPolicy #DisabilityRights #BiomedicalResearch #Neurology #InvisibleDisabilities #PublicHealth #WorkforceCrisis #EMEA

By @illustratorinterrumped

"A letter obtained by deceased ME advocate Craig Maupin through an FOIA request (Freedom of Information Act request) was sent ...

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#Neurología #DiscapacidadesInvisibles #CrisisDeLaFuerzaLaboral #EUHealthPolicy #BiomedicalResearch #Neurology #InvisibleDisabilities #PublicHealth #WorkforceCrisis #EncefalomielitisMiálgica #ConcienciaciónEM #AcabarConElAbandono #MyalgicEncephalomyelitis #MEAwareness #EndTheNeglect #pwME

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Un problema de DDHH y un desastre económico y de salud pública creciente.
La #EncefalomielitisMiálgica roba educación, carreras profesionales e independencia.
#SevereMEDay #EUHealthPolicy #DisabilityRights #BiomedicalResearch #Neurology #InvisibleDisabilities #PublicHealth #WorkforceCrisis #EMEA

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Traducción al español de la definición y criterios de la #encefalomielitismiálgica por Ramsay (1990)

#severeMEday
@asociacionpem.bsky.social
@europeanmealliance.bsky.social
#EUHealthPolicy #DisabilityRights #BiomedicalResearch #Neurology #InvisibleDisabilities #PublicHealth #WorkforceCrisis #EMEA

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Article 57 of the revised EU pharmaceutical legislation requires market authorisation applicants to disclose any direct public funding for drug R&D. Transparency is essential to support #FairPricing discussions. Join us at #EHFG2025 to explore policy options 👉 bit.ly/408RXG6

#EUHealthPolicy

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EPHA welcomes the Infectious Disease Alliance (IDA) as a member! IDA envisions a world with a significantly reduced #InfectiousDiseases burden, where everyone, regardless of location, has access to prevention and treatment.

#PublicHealth #EPHAMembers #EUHealthPolicy

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(2/4) 📣 Samen met 9 andere Belgische gezondheidsorganisaties roept #KomOpTegenKanker de federale regering op om zich achter een fundamentele hervorming van de Europese geneesmiddelenwetgeving te scharen. #EUHealthPolicy

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🇪🇺 How can Europe build a stronger rare disease research ecosystem? At the EU Parliament, Ruth Ladenstein (St. Anna CCRI) called for sustainable infrastructures, trial networks & better alignment of science and policy. 💪 #EUHealthPolicy #ResearchEcosystem

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IPOPI is proud to take part in the high-level meeting on “Building a Research and Innovation Ecosystem for Rare Diseases”, hosted at the @europarl.europa.eu.

💡 It’s time for patients to be central actors in shaping a healthcare ecosystem that works for all.

#IPOPI #RareDiseases #EUHealthPolicy

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Italian Deputy PM Salvini again wastes his nonexistent political capital on presenting a bill to withdraw from the WHO. Why must we be saddled with these people? #supportwho #euhealthpolicy @who.int

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Visual with logo saying the EU4Health Civil Society Alliance calls to reverse a shoking draft decision taking 1 billion europes from the EU4Health Programme

Visual with logo saying the EU4Health Civil Society Alliance calls to reverse a shoking draft decision taking 1 billion europes from the EU4Health Programme

The #EU4Health programme faces a €1 billion cut in #MFF review! Sounding the alarm of the shocking impact this will have on #EUHealthpolicy & citizen's #health, the #EU4HealthCSA have written to #Belgium Prime Minister
eu4health.eu/content/uplo...

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