Pyrographer With Usher Syndrome Wins National Rare Artist Award Texas pyrographer Krista Webb, living with Usher syndrome, named a national Rare Artist awardee by the EveryLife Foundation.

#Pyrographer With Usher Syndrome Wins National #RareArtist Award - Texas #pyrographer Krista Webb, living with #UsherSyndrome, named a national Rare Artist awardee by the #EveryLifeFoundation - www.disabled-world.com/communicatio...

Join us for Rare Disease Week on Capitol Hill, Feb 24–26, 2026! Educate Congress & apply for travel scholarships by Nov 8. Learn More: everylifefoundation.org/rare-advocates/rare-dise... #RareDiseaseWeek #LAMFoundation #EveryLifeFoundation #CapitolHill #RareDiseaseAdvocacy

Together we can Stronger.

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Let's comes to Join us on 30 September.

Together we are stronger...💪

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September is Muscular Dystrophy (MD) Awareness Month! 💚 Limb-Girdle Muscular Dystrophy (LGMD) is one form of muscular dystrophy.

Help raise awareness by sharing our posts! To learn more about LGMD.

#everylifefoundation
#LGMDawareness
#LgmdDay2025
#TogetherWeAreStronger

Together we are Stronger...
Mark up your Calendar 🗓️

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Let's count down 30 September and mark your calendar...

Join our hands to make event successful.

#musculardystrophypakistan #livingwithlgmd #LGMD2A #MuscularDystrophyAwareness #sarepta #everylifefoundation

Let's count down 30 September LGMD Awareness Day...

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Sending love to everyone living with a rare disease today. Sign this petition from the #EveryLifeFoundation to support funding for research for everyone impacted by a #RareDisease everylifefoundation.quorum.us/campaign/111...
#RareDiseaseDay #DisabilityAwareness #TakeAction