Grab a sneak peek from our interview for the article eith Nicole Zeitzer Johnson, co-founder and executive director,FOXG1 Research Foundation
rarerevolutionmagazine.com/rare-insider/nicole-zeit...
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OMG this makes parenting so much easier! 💜🦊 -Nicole, #raredisease mom. Answers. Organization. Peace of mind.
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My daughter already lost her needed ssi. Now we face losing her Medicaid. Her Medicaid pays for her feeding tube supplies and formula. It also pays for a caregiver for when I am at work. If she loses this then I will have to quit working because she can NOT be left alone. This is scary. #foxg1
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