Our Continuing Healthcare campaign has been shared in the latest edition of Rare Revolution Magazine. Our Communications Manager, Helen, shared all about our #FixCHC campaign that we launched in June during Awareness Week. You can read the article in full here: ow.ly/aHL750WQcsQ #magazine #news

Thank you to everyone who took part in our recent #Awareness Week to help #FixCHC. If you received a response from your local #MP, please let us know by emailing us on communications@pspassociation.org.uk. Together we can create a better future for everyone affected by PSP & CBD #CHCFunding

It took 4 tries and an appeal for Bob & Sandra Ruskin to finally receive CHC Funding, now she's on end of life care. Sandra was diagnosed with PSP in 2019 and they have since spent over £160,000 on fees. Help us change this by writing to your MP ow.ly/Nbll50WbBPe #FixCHC #CHCFunding #PersonalStories

Stephen and Susan were declined CHC Funding earlier this year. Stephen believes they weren’t eligible because they’re managing by themselves, despite the stress and financial burden. Read their story shorturl.at/Z67r0 and how you can help #FixCHC by writing to your MP. #CHCFunding #PersonalStories

This PSP & CBD Awareness Week we are campaigning to #FixCHC Funding. Just 1 in 5 people who apply for CHC Funding receive it – this must change.

Help #FixCHC. Write to your MP to ask for support. Download a template email and search for your MP: www.pspassociation.org.uk/pspandcbdawarenessweek/