#GeneticFTD hashtag - Bluesky

@end-the-legacy.bsky.social

1 week ago

We are so excited to open registration to our summit next week and debut some of the amazing talks and speakers we have lined up. And we are excited that ALS Network is helping be our local host. #EndtheLegacy #GeneticALS #GeneticFTD #c9orf72 #sod1 #fus

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@end-the-legacy.bsky.social

5 months ago

We are thrilled to announce two new clinics have been appointed as recognized Centers of Care for those at risk of Genetic ALS and FTD!
Information on the centers can be found on our website: https://www.EndtheLegacy.org/care

#EndtheLegacy #GeneticALS #GeneticFTD #C9orf72

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@end-the-legacy.bsky.social

1 year ago

Photo outside Senator Schiff's office with a staff person we met with.

Photo outside Senator Padilla's office after meeting with a staff person.

Cheers to the organizers and all who participated. The next day we were proud to partner with ALS Network for visits to the CA Senate delegation. We must have our communities voice heard wherever it needs to be! #GeneticALS #GeneticFTD #ALS #FTD #C9orf72 #SOD1 #GRN #EndtheLegacy

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