valebodi.bsky.social

@valebodi.bsky.social

2 weeks ago

Having #ME/CFS means pushing up an invisible - to others - boulder, day in, day out while the incline’s steepness changes and your body central immuno-metabolic system malfunctions and punishes you for every simple life activity.
#PEM≠fatigue #PEM #pwME #ICDG93.3 #ICDG93.32 #ICD8E49

valebodi.bsky.social

@valebodi.bsky.social

7 months ago

new institutions.
Instead, we propose a set of realistic, coordinated actions - using existing tools
and precedents - that can meaningfully improve the situation for people with
ME/CFS.
@europeanmealliance.bsky.social
#ME/CFS #pwME #ICD8E49