This Infantile Spasms Action Week, let’s raise awareness and give families the hope they need. 💜

#StopTheSeizures #EpilepsyAwareness #epilepsysurgerysaveslives #medicalmama #pesalliance #infantilespasms #ISAW2024

At 5 months, my son Bennett was diagnosed with infantile spasms (IS)—a rare, catastrophic epilepsy. Before his diagnosis, we were told his movements were startle reflexes and his crying was colic. Deep down, we knew something was wrong.

#epilepsysurgerysaveslives #infantilespasms #ISAW2024

#ISAW2024 - Since #HIE is the 2nd leading cause of #InfantileSpasms, we have a significant emphasis on education for newly diagnosed HIE families. In conjunction with leaders of the #NeonatalSIG at @childneurosoc.bsky.social, we surveyed families and have a lot of work to do! Join in!