Treatment Practices for Infantile Epileptic Spasms Syndrome?

Read this Editor's Choice paper from the PERC Infantile Spasms Special Interest Group

#InfantileSpasms #Epilepsy

buff.ly/4kiM80E

The overall pooled prevalence of active cases of IESS was 3.33 per 100 000 population (95% CI, 1.46–5.82) in India.
doi.org/10.1002/epi4...

#epilepsy #ILAE #epilepsiaopen #burden #infantilespasms #prevalence

This week we recognize #InfantileSpasms Awareness week. Know the signs, get appropriate treatment, STOP 🛑 spasms! #epilepsy
#ISAW2025

In this study, the IS group had significantly lower MDI and PDI scores than the HC group.
doi.org/10.1111/epi....

#epilepsy #ILAE #epilepsia #corticalthickness #graymattervolume #infantilespasms #neurodevelopmentaloutcomes #voxelbasedmorphometry

The CSMD genes are associated with epilepsies: CSMD2 with focal epilepsy/FCD and CSMD3 with a phenotype spectrum including focal epilepsy, febrile seizures, and DEE.
doi.org/10.1111/epi....

#epilepsy #epilepsia #ILAE #CSMD2 #CSMD3 #febrileseizures #focalepilepsy #infantilespasms

Neuroscience PhD student Anamika Choudhary shares how research, storytelling, and Brazilian Jiu-Jitsu shape her mission to make epilepsy more understood. #FundamentalDiscoveryWeek #EpilepsyAwareness #Neuroscience #PediatricNeuroscience #InfantileSpasms #HBI #HotchkissBrainInstitute #ACHRI

Key point: An initial response to standard therapy was noted in 64% of patients with infantile epileptic spasms syndrome (IESS) associated with surgically-remediable lesion.
doi.org/10.1111/epi....

#epilepsy #ILAE #drugresistant #epilepsysurgery #IESS #infantilespasms #MRIlesion

Key point: Racial disparities: Non-Hispanic Black children with IESS had significantly lower odds of undergoing genetic sequencing.
doi.org/10.1002/epi4...

#epilepsy #ILAE #geneticsequencing #healthequity #inequities #infantilespasms #westsyndrome

This Infantile Spasms Action Week, let’s raise awareness and give families the hope they need. 💜

#StopTheSeizures #EpilepsyAwareness #epilepsysurgerysaveslives #medicalmama #pesalliance #infantilespasms #ISAW2024

At 5 months, my son Bennett was diagnosed with infantile spasms (IS)—a rare, catastrophic epilepsy. Before his diagnosis, we were told his movements were startle reflexes and his crying was colic. Deep down, we knew something was wrong.

#epilepsysurgerysaveslives #infantilespasms #ISAW2024

#ISAW2024 - Since #HIE is the 2nd leading cause of #InfantileSpasms, we have a significant emphasis on education for newly diagnosed HIE families. In conjunction with leaders of the #NeonatalSIG at @childneurosoc.bsky.social, we surveyed families and have a lot of work to do! Join in!