Two photos a few years apart. 1st is not just before I lost some weight but also before I started my kidney meds to save my kidneys. Man, I was carrying a lot of water weight in my face. Ugh that was so uncomfortable. #jynarque #kidneys #pkd

Hey nephro Twitter: #ADPKD patient, high risk for progression, on #Jynarque for over a year. Now multiple myeloma, starting velcade/revlimid, eventual BMT. Continue Jynarque? #askrenal

#askrenal Patient with ADPKD, already had liver transplant for polycystic liver disease. High risk for progression based on kidney size. Has pain. #Jynarque (#tolvaptan?) Or is a stable liver txp a deal breaker?