A very interesting time for #ADPKD ! It's especially exciting to see a large trial on #SGLT2 inhibitors now underway for ADPKD patients — a group not included in previous studies.
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#ADPKD
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🧵🧪 Important recruitment update on the STOP-PKD study (1/6)
We are very pleased to share a significant update on the #STOP-PKD study, an important European research initiative for people living with #ADPKD.
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🧵🧪 Important recruitment update on the STOP-PKD study (1/6)
We are very pleased to share a significant update on the #STOP-PKD study, an important European research initiative for people living with #ADPKD.
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Check out the #KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD:
bit.ly/KDOQIADPKD26 (FREE)
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ADPKD is evolving and so is the guidance.
Tune in as experts break down the new KDIGO guideline + KDOQI commentary and what it means for real world care.
🎧 Listen now: bit.ly/3DamjQ9
#Nephrology #ADPKD #AJKD #KDIGO
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Kidney #Volume and #Molecular Processes are Dynamic in #ADPKD
#VisualAbstract by Edgar V. Lerma 🇵🇭
www.kireports.org/article/S2468-0249(26)02...
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#KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD
bit.ly/KDOQIADPKD26 (FREE)
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🔗 www.docwirenews.com/post/a-patie...
Neph Times board member @annagaddy.bsky.social discusses the patient’s perspective on autosomal dominant polycystic kidney disease diagnosis and management. #nephrology #nephsky #ADPKD
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#KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD
bit.ly/KDOQIADPKD26 (FREE)
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💙 PKD Connect | PKD Charity UK
An online support group for people with reduced kidney function, focused on topics such as dialysis and transplantation—sharing experiences and feeling less alone.
🗓️ March 31, 2026 (Zoom, free)
🔗 bit.ly/LowMar26
#PKDInternational #ADPKD #ARPKD #PKDCharity
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#KDOQI US Commentary on the @kdigo.org 2025 Clinical Practice Guideline for the Evaluation, Management, and Treatment of #ADPKD
bit.ly/KDOQIADPKD26 (FREE)
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Coexistence of autosomal dominant polycystic kidney disease and primary hyperoxaluria type 3
Kidney stone is not uncommon in ADPKD but is not associated with #hyperoxaluria.
doi.org/10.1016/j.kint.2025.09.006
#NephSky #MedSky #ADPKD
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💙 In one week, on March 12, 2026, we mark World Kidney Day, the global campaign dedicated to raising awareness of kidney health and the importance of prevention, early diagnosis, and equitable access to care.
#PKDInternational #WorldKidneyDay #WorldKidneyDay2026 #ARPKD #ADPKD
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🚀 STOP-PKD-News!
Das zweite Prüfzentrum in Mainz ist nun offiziell freigegeben. Weitere folgen (DE, NL, ES, AT).
Kann SGLT2-Inhibition das Fortschreiten von Zystennieren positiv beeinflussen?
Infos und Kontakte: stop-pkd.de
#STOPPKD #ADPKD
@pkdinternational.bsky.social @pkdgermany.bsky.social
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10 powerful truths about kidney disease from Jamie’s real ADPKD story 💚
Which one stayed with you?
Listen now 🎧
kidneycareuk.org/get-support/...
#ADPKD #KidneyDisease #diaryofakidneywarriopodcast
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Association of #Kidney #Volume with Patient-Reported Outcomes in #ADPKD
#VisualAbstract by Vamsidhar Veeranki
www.kireports.org/article/S2468-0249(26)00...
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Promotional graphic for Diary of a Kidney Warrior Podcast featuring the title “Living with ADPKD: A Polycystic Kidney Disease Story.” The background is bright pink with bold white text. On the right is a woman wearing red glasses and a dark grey jumper, looking toward the camera. On the left is a smaller image of the podcast host speaking into a microphone. The Diary of a Kidney Warrior logo and Kidney Care UK partnership logo appear at the bottom, along with a label reading “Featuring Jamie.”
🚨New episode
Jamie shares her real experience living with ADPKD, a genetic kidney disease affecting families across generations. Honest, powerful & educational.
Out now:
🎧 kidneycareuk.org/get-support/...
#ADPKD #KidneyDisease #diaryofakidneywarriopodcast
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Commentary
The many faces of cholesterol in autosomal dominant polycystic kidney disease
doi.org/10.1016/j.kint.2025.11.007
Original article: doi.org/10.1016/j.kint.2025.08.037
#NephSky #MedSky #ADPKD @mayoclinic.org
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🎥 Confidently Navigating #ADPKD: Women & Children – Special Considerations
In this webinar, organized by the @pkdfoundation.bsky.social, key aspects related to women’s health, family planning, and the management of ADPKD in pediatric care are explored.
▶️ www.youtube.com/watch?v=Z7Yc...
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Could PKD1 5′UTR variants be the hidden cause in undiagnosed #ADPKD? 🧬
📢 New study shows rare regulatory variants reduce polycystin-1 expression, opening diagnostic & therapeutic avenues. #Genomics #RareDisease
www.nature.com/articles/s41...
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January is UK Liver Awareness Month. In PKD polycystic liver disease ( #PLD ) is common and often silent. Regular check-ups + healthy daily choices matter.
We join PKD Charity UK to shine a light on liver health.
💚 #LoveYourLiver👇
pkdcharity.org.uk/news-events/...
#ADPKD #ARPKD
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⭐NAR Breakthrough ⭐
New study identifies a 6-nt miR-17 site in the #PKD1 3′UTR that limits PKD1 expression. Targeting this site boosts PKD1 protein and reduces cyst burden in #ADPKD models—highlighting a promising oligo-based strategy @vishal-d-patel.bsky.social
🧬Read more: doi.org/10.1093/nar/...
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🧬 #ADPKD is the most common genetic kidney disease—often leading to kidney failure, dialysis, or transplantation.
Delta4 partners with the MedUni Innsbruck, modeling disease pathways, screening compounds & testing biomarkers. Our ADPKD Drug Discovery Project is designed to improve treatments.
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Beyond tolvaptan, what’s next for ADPKD? New review in GCND (Giornale di Clinica Nefrologica e Dialisi) on SGLT2 inhibitors in PKD.
International submission to the journal are welcome !!!
journals.aboutscience.eu/index.php/gc... #ADPKD #SGLT2i @aboutscience.bsky.social
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🧭 Explore the ISN Rare Kidney Diseases Toolkit — a curated resource with disease-specific tools highlighting the burden, gaps, and needs in rare kidney conditions.
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6
Supported by Otsuka.
#RareKidneyDisease #ADPKD
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🌍 Fundación Mexicana para el Riñón Poliquístico de México A.C. is part of the PKD International network.
🔗 Discover more: rinonpoliquistico.org
#PKDInternational #ADPKD #ARPKD
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Aldehyde dehydrogenase 1 A1 regulates the transcription of PD-L1 and its targeting with disulfiram together with PD-L1 immunotherapy synergistically delays cyst growth in ADPKD
doi.org/10.1016/j.kint.2025.12.004
#MedSky #NephSky #ADPKD #kidneydisease
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✨ This Christmas, choose to give hope. 🔗 Donate today and support the PKD community: www.pkdinternational.org/donate
#PKDInternational #PolycysticKidneyDisease #ChristmasGiving #ADPKD #ARPKD
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💡 Millions live with ADPKD. Current treatment options are limited and not suitable for everyone.
Therefore, we’re partnering with the MedUni Innsbruck to bring new hope.
The goal: safer, more effective therapies that improve the quality of life for #ADPKD patients.
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