💙 PKD Connect | PKD Charity UK
An online support group for people with reduced kidney function, focused on topics such as dialysis and transplantation—sharing experiences and feeling less alone.
🗓️ March 31, 2026 (Zoom, free)
🔗 bit.ly/LowMar26
#PKDInternational #ADPKD #ARPKD #PKDCharity
💙 In one week, on March 12, 2026, we mark World Kidney Day, the global campaign dedicated to raising awareness of kidney health and the importance of prevention, early diagnosis, and equitable access to care.
#PKDInternational #WorldKidneyDay #WorldKidneyDay2026 #ARPKD #ADPKD
It’s important to highlight that 72% of #Raredisease are genetic and 70% of these start in childhood. #ARPKD is one of them and there is no cure. We need more research and shared pathways to improve the life of these children 🌷
Ahead of @rarediseaseday.bsky.social , we are honoured to share Andrea’s story, a father of three children — two of whom live with #ARPKD.
🔗 Read the full article on the PKD International website:
pkdinternational.org/news/79-strong…
#PKInternational
January is UK Liver Awareness Month. In PKD polycystic liver disease ( #PLD ) is common and often silent. Regular check-ups + healthy daily choices matter.
We join PKD Charity UK to shine a light on liver health.
💚 #LoveYourLiver👇
pkdcharity.org.uk/news-events/...
#ADPKD #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
bit.ly/Agam25OI
#ARPKD #VisualAbstract
🌍 Fundación Mexicana para el Riñón Poliquístico de México A.C. is part of the PKD International network.
🔗 Discover more: rinonpoliquistico.org
#PKDInternational #ADPKD #ARPKD
✨ This Christmas, choose to give hope. 🔗 Donate today and support the PKD community: www.pkdinternational.org/donate
#PKDInternational #PolycysticKidneyDisease #ChristmasGiving #ADPKD #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
bit.ly/Agam25OI
#ARPKD #VisualAbstract
At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD).
🔗 Learn more: njurforbundet.se
#ADPKD #ARPKD
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
bit.ly/Agam25OI
#ARPKD #VisualAbstract
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
In the last few years we’ve seen remarkable progress in diagnostic and care for #ARPKD patients. I m looking forward to see where this acceleration will take! 💛🌷
Diagnosing #ARPKD in children is challenging.
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
❤️ Today we celebrate 20 years of AIRP in Milan!
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
bit.ly/Agam25OI
#ARPKD #VisualAbstract
Comparison of Various Splicing Prediction Tools for the Queried Mutation and Previously Reported Deep-Intronic Variants. (A) SpliceAI and Pangolin Delta scores, interpreted as the probability that the variant affects splicing. Delta score cutoffs: Blue: <0.2, Green: 0.2–0.5, Yellow: 0.5–0.8, Red: 0.8–1.
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
bit.ly/Agam25OI
#ARPKD
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
Yesterday was such a busy day with patients meeting, planning, dreaming and slowly shaping the future.. the best way to spend #PKDAwareness day! And now we are looking forward to the rest of the month packed with amazing events and activities for #ADPKD and #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
bit.ly/Agam25OI
#ARPKD
🤝🇦🇺 Proud to Partner with PKD Australia 🌏
💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide.
#PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases #StrongerTogether
At #PKDInternational, we are united by one mission: improving the lives of people affected by Polycystic Kidney Disease worldwide.
Together, we can change the future for everyone living with PKD.
💛 pkdinternational.org/about-us
#PolycysticKidneyDisease #PKD #ADPKD #ARPKD
🧬 Living in a family with a rare kidney disease affects more than your body & can be overwhelming! @eurordis.bsky.social has created a #free Mental Health Toolkit for those dealing with #RareDisease.
Protect your #MentalHealth today! 👉 mhtoolkit.eurordis.org
#ADPKD #ARPKD #MentalHealthMatters
🌞 Summer Tips
Hot weather can pose additional challenges for people living with Polycystic Kidney Disease (PKD). Here are some essential tips to help you stay well and protect your kidneys during the warmer months 👇
#PKDTips #PKDInternational #LivingWithPKD #ADPKD #ARPKD
🥳TheRaCil Publication Alert🚨 Visit theracil.eu/news-and-pub... for the latest findings on #ARPKD by our teams: predictive risk score at the age of 2 months, urinary peptide signatures and perspectives on polycystic kidney diseases in children. #cilia #kidney #kids
🇫🇷 Association PolyKystose France (APKF) has long been a trusted partner of PKD International in the fight against polycystic kidney and liver diseases.
We share a common vision, a deep commitment, and a clear goal: to improve the lives of people affected by PKD
#PKDInternational #ADPKD #ARPKD
💛 A small gesture can change the future for those living with PKD.
Polycystic kidney disease continues to affect millions of lives — but with your support, we can take meaningful steps toward hope.
Support us today: pkdinternational.org/donate
#PKDInternational #ADPKD #ARPKD
