Excellent meeting with participation of several #TheRaCil members - Albertien van Eerde, Anita Burgun & Flavia Galletti @flaviagalletti.bsky.social . We support the critical need for data integration accross frontiers to accelerate precision medicine in genetic kidney diseases #renalciliopathies.

Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU

#PKDInternational