💙 PKD Connect | PKD Charity UK
An online support group for people with reduced kidney function, focused on topics such as dialysis and transplantation—sharing experiences and feeling less alone.
🗓️ March 31, 2026 (Zoom, free)
🔗 bit.ly/LowMar26
#PKDInternational #ADPKD #ARPKD #PKDCharity
💙 World Kidney Day | Kidney Health for All
👉 On this World Kidney Day, voices from the global PKD community come together to share a clear message: Kidney Health for All means equal access to care for everyone affected by PKD.
#PKDInternational #WorldKidneyDay
💙 In one week, on March 12, 2026, we mark World Kidney Day, the global campaign dedicated to raising awareness of kidney health and the importance of prevention, early diagnosis, and equitable access to care.
#PKDInternational #WorldKidneyDay #WorldKidneyDay2026 #ARPKD #ADPKD
💛 Today, February 28, is @rarediseaseday.bsky.social
🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families.
#PKDInternational
🌍 PKD International joins @rarediseaseday.bsky.social to amplify the voices of people living with ARPKD around the world and to reaffirm a clear message: awareness is the first step toward change — in research, in care, and in quality of life.
www.rarediseaseday.org
#PKDInternational
In this webinar, organized by the PKD Foundation of Canada, CKD-associated pruritus (CKD-aP) and the available treatment options are explored in depth.
▶️ Watch the webinar on YouTube: www.youtube.com/watch?v=isnJ...
#PKDInternational #CKD #PKDFoudationofCanada
🧠 Living with a chronic condition such as #PKD can have a significant impact on mental health. In this webinar, organized by the PKD Foundation of Canada, the focus is on managing depression and anxiety.
▶️ Watch the webinar on YouTube: www.youtube.com/watch?v=b7Ev...
#PKDInternational
💛 We are pleased to share that the PKD International Board is expanding.
Please join us in welcoming Mr Bill Wang from Hong Kong.
We are honoured to have his voice and leadership, and look forward to working together to advance our mission worldwide.
#PKDInternational
✨ As the year comes to a close, we would like to send our heartfelt wishes to the global PKD community.
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
🌍 Fundación Mexicana para el Riñón Poliquístico de México A.C. is part of the PKD International network.
🔗 Discover more: rinonpoliquistico.org
#PKDInternational #ADPKD #ARPKD
✨ This Christmas, choose to give hope. 🔗 Donate today and support the PKD community: www.pkdinternational.org/donate
#PKDInternational #PolycysticKidneyDisease #ChristmasGiving #ADPKD #ARPKD
A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings.
#PKDInternational #ERASciencemeetings
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
From 27 to 28 November 2025 in Barcelona, the first edition of the ERA Science Meetings will take place.
👩⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event.
🔗 www.era-online.org/it/events/er...
#ERAScienceMeetings
Eating Well with #PKD When Life Gets Busy: Simple Nutrition Tips
👩⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_...
#PKDInternational #PKDFoundationofCanada
At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD).
🔗 Learn more: njurforbundet.se
#ADPKD #ARPKD
📆 From 21 to 23 November 2025, the city of Málaga will host a new edition of the National Congress of Renal Patients, organized by the Federación Nacional de Asociaciones Alcer.
👉 Learn more: alcer.org/2025/11/04/c...
#ALCER #RenalCongress2025 #PKDInternational
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
On 16 November 2025, AIRG Belgique will host its Annual National Day — an important moment for the Belgian genetic kidney-disease community.
💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant.
#PKDInternational
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🤝 #PKDInternational & @pkdfoundation.bsky.social: united for research and patients
Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD).
🔗 pkdcure.org/who-we-are
At #PKDInternational, we are working every day to unite patients, families, scientists, and healthcare professionals in the fight to end #PKD. But this mission is only possible with your help.
🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate
Managing a rare disease is not only about the clinical aspects — the psychological and emotional impact is just as significant. To address these challenges, @eurordis.bsky.social has developed the Mental Health & Wellbeing Toolkit: mhtoolkit.eurordis.org#tools-resour...
#PKDInternational #EURORDIS
In a new blog post published by PKD Foundation of Canada, Emily Campbell, shares practical and easy-to-apply strategies to help people with PKD make informed choices when eating out, without giving up the pleasure of good food 👉 www.endpkd.ca/smart_strate...
#PKD #PKDInternational
#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD.
👉 pkdinternational.org
🔬 From Lab to Life: How Multi-Omics is Revolutionizing Kidney Research
Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies.
What Makes Multi-Omics Different 👇
#PKDInternational #PKDResearch
🤝 Stronger Together: #PKDInternational & PKD Familiäre Zystennieren
🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice.
🔗 pkdcure.de
💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families.
🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org
#PKDInternational #RareDiseases
💛 Support the PKD community today – your generosity truly matters!
🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
