Learn about fertility issues caused by treatments for NF2-SWN. We have a 50% chance of passing NF2 on ( less if you are mosaic). Seek advise from professionals and your clinic
Photo credit NF2 Information & Services
#endNF2 #NF2awareness #schwannomatosis
#NF2support #nf2 #nf2family #LetstalkNF2

Continuing our knowledge today,
All about Hearing loss tumours
photo credit NF2 Information & Services
#endNF2 #NF2awareness #NF2schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis

Trustees Kim & Grace had the most amazing day on Thursday at Cambridge Rare Disease Network RareSummit 25.

We hope to bring you all the details very soon, lots to digest from the day.

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Another infographic to start the knowledge this week.
Thats NF2, all those tumour types
#endNF2 #NF2awareness #neurofibromatosistype2
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #schwannomatosis

Brain Health Day 2025 - Accelerating Novel Therapy Research for Neurofibromatosis Type 2 The GJBRC do amazing research, and I am very proud of us in the spotlight amongst the very big research studies

Saturday on the blog in NF2 Awareness month and today we are reliving that fabulous Brain Health Day
grab a cuppa and have a read here:
nf2biosolutions.org/2025/05/01/b...

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Deaf Awareness Week 2025
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Deaf Awareness Week 2025
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Deaf Awareness Week 2025
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Deaf Awareness Week 2025
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2
#deaf #deafAwafrenessWeek

Every single person that talks about NF2 helps to raise awareness.

Your story of how you overcame what you are going through will be someone else's survival guide
RAISE YOUR VOICE, TELL YOUR STORY & RAISE AWARENESS

#endNF2 #NF2awareness #Schwannomatosis #NF2SWN #nf2 #LetstalkNF2
#nf2charity