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Today we celebrate our fundraisers of 2025, you have all been brilliant sharing photos and details of your fundraising. So much fun was had.
We thank you all for raising vital funds to help us change the lives of those with NF2 through our research.
#endNF2 #NF2awareness #NF2SWN #schwannomatosis

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Every single person that talks about NF2 helps to raise awareness.
Your story not only raises awareness but helps others on their journey too.
RAISE YOUR VOICE, TELL YOUR STORY & RAISE AWARENESS
#endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN
#NF2support #nf2 #nf2family #schwannonmatosis

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Want to celebrate to advance NF2 research but without organizing a fundraiser, we've got you covered!
You can still help us celebrate by donating to our fundraiser here:
www.peoplesfundraising.com/fundraising/...
Every penny counts!

#endNF2 #shwannomatosis #NF2 #NF2SWN

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Every single person that talks about NF2 helps to raise awareness.

Your story of how you overcame what you are going through will be someone else's survival guide
RAISE YOUR VOICE, TELL YOUR STORY & RAISE AWARENESS

#endNF2 #NF2awareness #Schwannomatosis #NF2SWN #nf2 #LetstalkNF2
#nf2charity

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AVAILABLE TO OXFORD NF2 PATIENTS ONLY
NF2 related Schwannomatosis support & Information Day run by the Oxford NF2 Clinic.
Location: Leonardo Hotel Oxford
Date: 10th may 2025 10am to 4pm

Come and visit our stand, hear all about our research.
#NF2 #ENDNF2 #NF2SWN #nf2awareness #schwannomatosis

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Fundraising is vital so we can continue our research into NF2 tumours
How can you get involved?
Head over to our fundraising page for inspiration
nf2biosolutions.org/nf2-biosolut...
#endNF2 #NF2awareness #charity #fundraising #donations #neurofibromatosistype2 #schwannomatosis #NF2 #NF2SWN

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Want do we do with your donations?
EVERY penny we receive goes towards NF2 research.
We are a non-profit patient led charity, entirely volunteers, who are patients, family, friends, or carers. Everyone has lived experience of NF2
No staff costs/premises costs
#endNF2 #NF2 #NF2SWN #schwannomatosis

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Meet the individuals living with NF2.
Today we meet Kim
NF2 can be a daily battle. Physically I have mobility difficulties, SSD, facial paralysis & dizziness. But the psychological side can be more disabling. I've fought daily battles with anxiety & depression.
#endNF2 #NF2 #schwannomatosis #NF2SWN

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The development of an artificial
intelligence auto-segmentation
tool for 3D volumetric analysis of
vestibular schwannoma

www.nature.com/articles/s41...

research funded by NF2 BioSolutions
#NF2 #ENDNF2 #Schwannomatosis #NF2SWN

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Video

#rarediseaseday #NF2 #schwannomatosis #NF2SWN

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Meet the individuals living with NF2. A rare disorder affecting around 1 in 35000 people
Today we meet Barbara who was diagnosed 11 years ago. "I have multiple meningiomas, a vestibular schwannoma and spinal tumours. The tumours affect my hearing and balance.
#endNF2 #NF2 #shwannomatosis #NF2SWN

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Meet the individuals living with NF2.
Today we meet Claudia. from Italy.
"I inherited NF2 from my father, and my 7 year old daughter inherited it from me. I suffer a lot from dizziness and widespread pain. I hope with all my heart that the research continues
#endNF2 #NF2 #schwannonmatosis #NF2SWN

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