Kako sam prije dvije godine našla da bol koju smo dijelile moja baka, mama i ja na istom mjestu u tijelu, s onsetom u istom životnom razdoblju ima ime #lipedema?

Tražila sam AI da mi izlista koje bolesti pogađaju žene, genetske su, i imaju određene značajke fizičkog bola na određenim mjestima.

" #Lipedema is not Obesity.
Lipedema is distinct from obesity, although they are often confused. Obesity-related fat is different from Lipedema-related fat and occurs throughout the body. In Lipedema, the fat occurs in the limbs (and sometimes lower trunk), typically sparing the hands and feet."

U Hrvatskoj čak i nakon dijagnoze #lipedema nema medicinske podrške jer bolest ne postoji u našem šifrarniku prema MKB 10.

Čekamo MKB 11.

Glasine kaže da postoje specijalisti koji će lipedemu pisati pod drugu šifru da bi žene dobile podršku. Još ih nisam našla, ali 🤞🏼, ne odustajem.

It’s taken an average of 17 years for women to seek medical attention after first noticing symptoms, and an additional 10 years to receive a formal diagnosis.
#lipedema

Though #lipedema was first identified in 1940, the condition was broadly ignored until recently.

Roughly half of all research papers on it have been published within the last five years.

Doja Cat Says She Might Have Lipedema. Here's What to Know About the Condition The painful fat disorder is frequently misdiagnosed as obesity.

"Because the condition is often mistaken for weight gain, many women spend years blaming themselves before they receive a diagnosis. [...] “Fat bias is internalized,” Seo says. “Everybody tells me it’s me, that it’s my fault, and we internalize that.” "
#lipoedema #lipedema
time.com/article/2026...

El lipedema y la técnica LPG: “En las fases iniciales nos permite controlar la enfermedad” Antonio Arjona, responsable de formación de LPG España visita el plató de ConSalud TV para abordar el lipedema y los avances en su abordaje

#ConSaludTV | 🔴 El #lipedema afecta hasta al 15% de las #mujeres 

🗣️ La detección precoz y abordajes como la técnica #LPG permiten controlar la progresión 

#Lipolymphedema
#Lipedema
vm.tiktok.com/ZNRHsF5QV/

Lipedema: What It Is, What You Can Do About It Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…

Got puffy lumps and fat pockets that may even hurt? It could be lipedema.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema
💕 #Wellness

Cartell amb llaç turquesa, i el text: "6 març. Dia Mundial del Limfoedema i Lipoedema. Il·luminem la Porta de la Mar de color turquesa". Logo de l'Ajuntament de València, i el lema "cap i casal", en la part inferior dreta.

💡 Esta nit, la Porta de la Mar s’encén de turquesa pel Dia Mundial del #Limfoedema i #Lipoedema.

Malalties cròniques del sistema limfàtic que afecten majoritàriament dones i condicionen el dia a dia.

Diagnòstic precoç i millor assistència = més qualitat de vida.

#Linfoedema #Lipedema

🧜‍♀️🌊 Yasmin Brunet deixou a web de queixo caído com fotos em Fernando de Noronha. Além da beleza óbvia, a modelo emocionou ao falar da sua luta e superação contra o lipedema.

#YasminBrunet #Noronha #Lipedema #SaúdeFeminina #BelezaReal #Viral

www.memeiros.com/2026/03/yasm...

Association Between Hormonal Contraceptive Use and Lipedema: A Cross-Sectional Study With 637 Brazilian Women Background: Lipedema is a chronic, progressive adipose tissue disorder that predominantly affects women and is characterized by disproportionate fat accumulation, pain, and edema. Hormonal fluctuation...

Sure woulda been nice to know about this 30 years ago: "...hormonal contraceptive use was frequently associated with self-reported worsening of symptoms, and a substantial minority reported symptom onset around contraceptive initiation."

www.cureus.com/articles/447... #lipedema #science #Healthcare

What Is a Gallbladder Attack? Abdominal pain can have so many causes, but a few specific symptoms can clue you in to whether you’re dealing with a gallbladder attack. A gastroenterologist explains.

What Is a Gallbladder Attack?
My online Friend Vicki from Australia who´s later been diagnosed with #Lipedema had had to get her gallbladder removed after she´d dieted too often...
health.clevelandclinic.org/when-to-susp...
@clevelandclinic.bsky.social

Amado Mundo Channel • 232 followers • Canal com informação e entretenimento sobre política, mundo, negócios e cultura. Dá para se informar sem surtar. 💛 📍 Confira os novos episódios no Youtube: https://www.yout...

Para não perder nenhum dos nossos conteúdos, entre no grupo do Amado Mundo no WhatsApp: whatsapp.com/channel/0029...

#Saúde #Lipedema #SaúdeDaMulher #Medicina

(CROSS POST FROM OLDER POST ON A DIFFERENT PLATFORM). Check in
on me...l might do things differently this time...Actually BRING people along... 14 days until this next chapter #royaleoliver #lymphedema #lipedema #14days #mindsetchange

(CROSS POST FROM OLDER POST ON A DIFFERENT PLATFORM). 17 days left until 1 am 98% on medical bedrest #royaleoliver #lymphedema #lipedema #countdown #day17

Lipedema: What It Is, What You Can Do About It Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…

Got lumps?

#BlogPost #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #POTS #HolisticHealth #Lipedema #TuiNa 💕 #Wellness

Debljina ili lipedem?

#Lipedem #lipedema

youtu.be/LK9eVIuziyM?...

A beautiful woman with a megaphone.

Speak up anyway.

#blog #lipedema #EDS #POTS #chronicallyill

The billing department will promise to fix things and then not fix them. This will happen more than once. It will happen for months. You will wonder if you're crazy.

#blog #lipedema #EDS #POTS #chronicallyill

A Difficult Patient — Zebra in the Desert In " Misunderstood ," I wrote about what it's like to walk through the world in a body people think they understand at a glance. The assumptions. The judgments. The way a stranger's eyes land on you a...

The system will tell you you're the problem. Risk management will call your documented concerns a matter of "expectations." Providers will sigh when you pull out your notes.

zebrainthedesert.com/blog/a-diffi...

#blog #lipedema #EDS #POTS #chronicallyill #women

Radical Compassion: Learning to Love Yourself & Your World with the Practice of RAIN | Powell's Books One of the most beloved and trusted mindfulness teachers in America offers a lifeline for difficult times: the RAIN meditation, which awakens our courage and heart Tara Brach is an in-the-trenches te...

I'm not Buddhist. I'm a Quaker. But, I digress ...

Her book "Radical Compassion" was very helpful in my life.

www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema

Radical Acceptance Embracing Your Life with the Heart of a Buddha | Powell's Books The life-changing guide to finding freedom from our self-doubt through the revolutionary practice of Radical Acceptance from the renowned meditation teacher, psychologist, and author--now revised and ...

Listen up, mofos:
You can't diet or exercise your way out of lipedema.
You can't supplement your way out of any brand of EDS.

And that's why I'm reading "Radical Acceptance," by Tara Brach.

www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema

Misunderstood — Zebra in the Desert All my life, people have looked at my body and decided they know my story. They know I'm lazy. They know I eat too much. They know I don't exercise enough. They know I lack discipline, willpower, sel...

I've had strangers yell "Here comes the bus!" while I'm walking down the street, minding my own business. When people get angry at me, the first insult out of their mouths usually starts with "fat."

zebrainthedesert.com/blog/misunderstood

#lipedema #chronicillness #POTS #EDS #MCAS #writer #blog

Big Legged Women — Zebra in the Desert The photograph is from the 1890s. My great-great-grandmother stands with her fists on her hips, staring down the camera in a stance at least one of her eight surviving children knew well. She's wearin...

"But we didn't know that. None of us knew. So we blamed ourselves, and we were blamed by others — by doctors, by family, by a culture that sees a woman's body as a project she's failed to complete."

zebrainthedesert.com/blog/big-leg...
#newpost #blog #writing #lipedema #EDS #women #health

Comorbidity — Zebra in the Desert In medical school, students are taught: "When you hear hoofbeats, think horses, not zebras." It means look for common diagnoses first. Don't jump to the rare stuff. It's good advice, in theory. The p...

One of the most difficult things about learning I have genetic hypermobile Ehlers Danlos Syndrome (hEDS) is also learning that I have a lot of other stuff, too.

zebrainthedesert.com/blog/comorbi...

#EDS #hEDS #POTS #MCAS #CVI #lipedema #blog #NewPost #chronicillness

On the desert — Zebra in the Desert I've recently moved to the desert. Actually, the place I live is broadly called the Scablands. It’s a landscape shaped by ancient catastrophic floods that left behind stark basalt formations, dry coul...

I've come to realize that "desert" describes more than geography.

First blog post alert! 🚨

zebrainthedesert.com/blog/on-the-...

#zebra #EDS #hEDS #POTS #MCAS #lipedema #desert

Elle James | Lipedema Coach on Instagram: "LETS TALK LIPEDEMA AND ALCOHOL I pretty much stopped drinking and if I do its once a month, because for me…. It’s not just the hangover. 🍷 With lipedema, a... 190 likes, 27 comments - elle_lipedema_fit on August 10, 2025: "LETS TALK LIPEDEMA AND ALCOHOL I pretty much stopped drinking and if I do its once a month, because for me…. It’s not just the hangover...

#Lipedema and alcohol

Risk it for the biscuit pain day.

www.instagram.com/p/DNMkvIZpWk...

Lipedema: What It Is, What You Can Do About It Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…

There are gentle ways to resolve (or at least ameliorate) lipedema. Have a look.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema
💕 #Wellness

Last week we had the distinct privilege to welcome Bailey @lipedemaspecialist to come share about the work she does and how manual lymphatic drainage can be beneficial.

#massagetherapy #studentlife #manualtherapy #lipedema #lipedemaawareness