Catherine smiling in sunspecs in front of a large ferris wheel (the London eye).

A wall of hearts: the uk covid memorial.

A view along the river Thames with a wall of hearts on the right: the UK covid memorial

It's #LongCovidAwarenessDay & co-incidentally my 4th anniversary of #LivingWithLongCovid.

Good news: every month I get that little bit better. I am the Queen of pacing!

Bad news: there is no cure, no treatment, just patience.

Sending love & spoons to all my fellow #ME/CFS #LC friends today.

March 15 is Long Covid Awareness Day 💚

Our Long Covid awareness pins are available now.

Shop here 👉 shh-uk.org/shop/

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness

March 15 is Long Covid Awareness Day 💚

Our Long Covid awareness pins are available now.

Shop here 👉 shh-uk.org/shop/

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness

March 15 is Long Covid Awareness Day 💚

Our Long Covid awareness pins are available now.

Shop here 👉 shh-uk.org/shop/

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness

#LivingWithLongCOVID

March 15 is Long Covid Awareness Day 💚

Our Long Covid awareness pins are available now.

Shop here 👉 shh-uk.org/shop/

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness

Original post on infosec.exchange

I can no longer recommend the Visible: Pacing for Illness app from Visible Health Inc. Although it was one of the most valuable tools I had for managing my exertion levels and avoiding crashes, they just chose to add a bullshit computer chatbot to their customer support. Which, in fine chatbot […]

Bright! Yellow! And scarlet and pink and violet and peach and lavender snapdragon flowers explode out of their leafy green bases planted in a terra cotta colored plastic pot under the overhang of a brown porch wall and soffit, the rustic wall interrupted by a white-trimmed window—seen nearly edge on—and a double-headed floodlight.

I have been tracking my physical activity levels with my fone and various wearables since late 2021, specifically so that if I got Covid I would be able to have some pre-infection baseline data on myself. I just took a look, and my average daily activity […]

[Original post on infosec.exchange]

Looking at my data, I've been sitting or lying down for 20 of the past 24 hours.

This #LivingWithLongCovid doesn't come easy!

#Pacing and #Resting to avoid #LongCovid #PEM

Original post on infosec.exchange

Some days, it takes until mid-afternoon for me to realize that I am still crashed from over-exertion two days ago. I just realized that in 6 hours, I have so far succeeded at

1. Getting out of bed
2. Taking morning meds
3. Making coffee and breakfast
4. Eating and drinking same
5 […]

Original post on infosec.exchange

I sent this link to my primary care physician via their patient portal messaging. If you have long COVID or ME/CFS, you may want to do so as well.

#LC #LongCovid #LivingWithLongCovid @longcovid

www.mayoclinicproceedings.org/article/s0025-6196(23)00... […]

🧵In honor of #longcovidawareness day Saturday, I’m sharing the artwork I’ve created & previously posted on X. I’ve had another one in the works for a while that just hasn’t gotten very far. On Sat, I had been sick for 1,179 days… #arttherapy #livingwithlongcovid #longcovid

You are not alone.❤️‍🩹❤️‍🩹❤️‍🩹 /1

Image of a man's face Header text on image is Long Covid: 5 years on Further text on image: Barry 62 Life on hold for 1518 days 1 career gone that I very much enjoyed Used to be able to mountain hike & cycle, now climbing the stairs Is a struggle 3 friends who lost their lives due to Covid-19 Gaslighting from one doctor brought me very close to suicide. LCAI logo appears on bottom right corner of the image

*Trigger warning*
Potentially upsetting content

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Image of a young woman with long dark hair sitting in a chair Header text on image is Long Covid: 5 years on Further text on image: Life on hold 1327 days 3 years of having to defer university 10 months spent relearning to walk 120+ nights spent in hospital Countless days spent in bed grieving my old life while watching everyone else move LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

@thesicktimes.bsky.social
@theskylark.bsky.social

Image of a woman in bed wearing a medical mask Header text on image is Long Covid: 5 years on Further text Joy 43 Life on hold for 1,190 days • 1 job and 2 businesses lost • 1 carer needed • 10 family visits cancelled • 63 symptoms to date • All independence lost LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Image of a runner tying shoes Header text on image is Long Covid: 5 years on Further text on image: Ben, 31 Life on hold for 1,211 days • 2 failed attempts to return to the job that I loved • 1 relationship lost • 1 year of being told this was in my head • Running half marathons replaced with struggling to walk 20 minutes LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Hilary Image of a women hair tied back, window behind her Header text on image is Long Covid: 5 years on Further text on image: Hilary Life on hold for 1644 days Hilary Age 41 - 1287 days of dependent living - 9 Family Milestones missed - 8 friendships lost - 1 Career on hold/in jeopardy LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is Long Covid: 5 years on Further text on image: Maureen 47 1,284 days of Long Covid 16 steps my husband carries me up to bed 147 pills taken each week 3 kids who can't recall their mom being healthy This is not the life I've chosen. LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Image of male chest, male hand clutching chest Header text on image is Long Covid: 5 years on Further text on image: Tom 44 1,461 days of Long Covid 2 particularly difficult symptons right now - insomnia & tachycardia 3 seizures weekly on average 1 Career on hold Finally am no longer being medically gaslit ! LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is Long Covid: 5 years on Further text on image: Lucy (10) 1095 days 1 × type 1 diabetes diagnosis 3960 injections & 1 insulin pump 210 sick days from school 2 Psychologists seen LCAI logo appears on bottom right corner of the image

#LongCovidKids #LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Image of a teenage boy Header text on image is Long Covid: 5 years on Further text on image: Conor, 18 Life on all of 1800s+ days 4 underlying conditions diagnosed including haemochromotosis and bartonella 5 years of school missed 100 hurling matches & 280 training sessions missed 1 x 18th birthday spent in bed LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Image of grey clouds in the sky Header text on image is Long Covid: 5 years on Further text on image: Adrienne 62 Life on hold for 1812 days Thousands of euro spent on alternative medicine. Nothing helped 365 days spent bedbound 5 years unable to work & stuck at home Countless symptoms including chronic brain fog , chronic fatigue , PEM & POTS. LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Image of a woman, dark hair Header text on image is Long Covid: 5 years on Further text on image: Siobhan Life on hold for. days Life on hold for 1493 days Vaccine induced Long Covid 1493 days unfit for work & no income 1,250+ days bedbound or housebound Every day spent in pain LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid #postvaccinesyndrome

Header text on image is, Long Covid: 5 Years On Life on hold for 1,278 days -3 Years of part time school -6 missed milestones including learning to swim and ride a bike -5 meds taken daily -Countless hours spent alone Additional image info: The image shows rows of tables and chairs in a classroom setting with a window in the background. LCAI logo appears on bottom right corner of the image.

ZERO pediatric #LongCovid services or support in #Ireland.

Long Covid affects people of all ages including children.

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is, Long Covid: 5 Years On Al, 54 Life on hold for 1,800 days -2 jobs given up -Used to be able to lift 25kg weights, now I get light headed brushing my teet -Days on end spent lying down Additional image info: Image shows empty agricultural bags lying crumpled on top of straw. LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Long Covid: 5 Years On Niamh, 45 Life on hold for 1,800 days -25 year career in healthcare at risk -6 month return to work failed -5 New consultants and daily meds -Changed as a mother, wife, daughter snd friend Additional image info: Image shows a close up photo of a woman with an oxygen mask strapped to her face. LCAI logo appears on bottom right corner of the image

Healthcare workers STILL one of the most at risk professions until we mitigate, ventilate and mask in hospitals and ALL healthcare settings.

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is, Long Covid: 5 Years On Janet, 54 Life on hold for 1,460 days -Vaccine Induced Long Covid -8 specialists seen between neurology, immunology, cardiology, haematology, ID, pain management and physio -Countless lost days and dreams Additional image info: Close up photo of a woman's face looking directly at the camera. LCAI logo appears on bottom right corner of the image.

Shout-out to the vaccine induced LC community too. Post-vaccination syndrome researched by @putrinolab.bsky.social @virusesimmunity.bsky.social

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is, Long Covid: 5 Years On Life on hold for 1,809 days -€10,000 spent on healthcare -1,150 spent home alone -17 tablets taken every day -5 Years of lost time with my husband Additional image info: The image shows a large number of different types of medications in foil wrappers. LCAI logo appears on bottom right corner of the image.

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is, Long Covid: 5 Years On Elaine, 40s Life on hold for 1,324 days €3000 spent on private healthcare -1 Masters abandoned -1 Promotion lost -Not believed by my boss or others in my life Additional image info: Image features a graduation cap on top of a bank note and a torn piece of paper with M.B. printed on it. LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid

Header text on image is, Long Covid: 5 Years On Eden, 21 years old Life on hold for 1,114 days -900 days of university missed -3 years of not having enough energy to learn how to drive -5 hobbies lost such as taekwondo -10 close friends lost Additional image info: Someone lying down in bed surrounded by blankets/covers. A plush toy is visible in the background. LCAI logo appears on bottom right corner of the image.

#LongCovid affects people of ALL ages

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid