Announcement: I was up and doing chores before 2 pm. Please clap. Also, it's blindingly bright outside. Might try to vacuum. I wonder when the PEM will hit. #LongCOVIDLife

4 ans que j’ai été infectée par la covid

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Photo : reflet sur le mur de la chambre où je passe beaucoup trop de ma vie désolmais

#covidlongue #encephalomyelitemyalgique #POTS #potssyndrome #longcovidlife #LongCovid #longcovidawareness #mecfs #mecfsawareness

Me living that #LongCovidLife

Insta Reel from 2 years ago.
Gone further downhill since.
Tore my knees up, while moving. #INeedABreak!

#DisabledArtist
#SupportDisabledArtists
#SupportYourArtistFriends_BUYsomeOfTheirArt

#LongCovidLife #Spoonie
#LongCovid #MECFS #POTS
#PEM #BackProblems
#ChronicPain
#ChronicIllnessesSuck

Drink apple cider vinegar, foul-tasting herbal medicine and coffee made by fine flatmate.

Write this post.

Exhausted and still in pain.

It’s 9am. I’m done.

#DisabilityLife #LongCOVIDLife #LivingWithLyme #MyalgicEncephalomyelitis

🧵

Misobroken

Recent exposure to a virus?

Herxheimer reaction to herbal meds?

Who knows?

#longcovidlife #pwme #lyme

Ik doe dat overigens omdat ik al bijna een jaar niet geknipt ben. Geen energie voor de kapper. #longcovidlife

Cup of coffee on a table. In the background there is a beautiful bright blue sky.

#BlueSky
Soaking up the rays between the clouds.
#LongCovidLife #LongCovid

#LongCovidLife It's roughly 1AM PST. Here's what's keeping me up tonight:
- Neuropathy/Pins and Needles presenting in my lips and across my mid-back
-GI Track keeps threatening to fire all cannons like its the 1812 Overture of 💩
-Brain is all "Put your left foot in, hand jive, hey Macarena!"

I used to go on the fastest rollercoasters, now I feel sick sitting in a rocking chair!

Seriously, I had to ask someone to swap seats with me at a friend’s house yesterday… Horrible feeling! 😵‍💫🤢

#LongCovidLife #LongCovid

My happy place.
When you loose the ability to go outside for long periods & feel the sun on your face it changes your perspective.

Exert moment counts.
Soak up the winter sun ☀️

#Sea
#LongCovidlife
#LongCovid

Me, with short term memory loss, wondering why my mouth feels numb & tingly and my headache hurts more than normal.

"Oh, yeah I had caffeinated bubble tea 😅."

Chose to suffer today, as I'm retrying my sleeping medication. Hoping it cancels out the caffeine-induced insomnia.

#LongCOVIDLife

This is what #LongCOVIDLife looks like right now:
Short hair because it hurt too much lifting my arms for long periods to wash and style long hair. I had my stylist cut it all off.
Ice packs because I am trying to numb pain drugs don't touch.
In bed, because no energy for "up" time.
#ChronicIllness

Spouse: Why did you buy a 3.5lb of light salted roast peanuts??

Me: Because I don't always have the energy right now to fix myself food during the day. But I can usually manage to fill an individual ramekin with peanuts. Which is better than cookies or chips.
#LongCOVIDLife
#ChronicIllness

Pins and needles is a weird thing to call a symptom that feels like someone is shoving red hot tiny pins in your flesh.

#LongCOVIDLife #ChronicIllness

I largely worked from bed today after a weekend of travel. My pain level is still about a 6.5-7. I rode along to pick up our black cat from the vet, but when I get home, I am going to flat with some cold packs for a while.

#LongCOVIDLife #ChronicallyIll #StraightOuttaSpoons

I have to work tomorrow morning, and why we schedule this event on Halloween 🎃 weekend every damn year is beyond me.

And this year, all my spell slots are probably getting used up by this. Ugh.

Oh well, the bat onesie snd Halloween movies for the win, I guess.

#LongCovidLife #WorkLifeUnbalance

A CRBox that filters my air. Home-made complete with pinky-purple galaxy Gaffer tape.

More bad: Still need to rest for ½ the day. Still no cure, no support from doctors. 💔

Current preoccupation: Not to catch covid again! My 3 infections were from my 3 biohazard children. We now have multiple air-filters in the house and the kids rarely see me without my FFP3 mask on. #LongCovidLife