To better support #MECFS & #longcovid GPs need training, tools & systems to respond to these conditions.
W/out this, people will continue to face delayed diagnosis, fragmented care, inappropriate advice & avoidable harm.
Share/tag your MP
#mecfsallianceaustralia #emergeaustralia
I reflect on a quote shared by Sandra Goodyer, a parent and carer of 2 young sons with #ME/CFS. One of her children said "I am going to be old by the time there is a cure". I hope we can find more scientific answers and better care and support for young people with #ME/CFS. #MECFSAllianceAustralia
We heard from James Dunn,who was at the peak of their legal career& patenthood when they got #ME/CFS #POTS. James went through an intense medical journey, traumatic at times, to get these diagnoses. Sadly, ending his career when cognitive load was impacting his limited energy #MECFSAllianceAustralia
Henry emphasises the need for young people to be included in research. Better access to medication and supportive medical care. 'People shouldn't need to travel interstate or overseas to get treatment for a slight chance of improved health'. Thank you for sharing your story. #MECFSAllianceAustralia
Henry Barker, a young person living with #ME/CFS and #LongCOVID. Has bravely shared their experience, sadly becoming 'an observer and not a participator' in everyday teenage activities. Life is less spontaneous & they continue to live with the ongoing fear of relapsing. #MECFSAllianceAustralia
A round table discussion setup. Co chairs Anne Wilson and Mike Freelander MP are speaking.
It is an honour to be invited to attend the 'Parliamentary Friends of ME/CFS- fluctuating Energy, Fixed systems' event in Canberra. Hosted by @emergeaustralia.bsky.social and the #MECFS Alliance. As a scientist I am here to show my support to the community.
#MECFSAllianceAustralia #LongCOVID
Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Join Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).
There is still time to join the Parliamentary Friends of ME/CFS meeting online today.
🗓️ TODAY 11am – 1pm AEDT
🌐 Register now to watch online: zurl.co/ySxF7
JOIN US HERE at 11am where we will live post the meeting.
#FairGoForME #MECFSAllianceAustralia
Promotional graphic for a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Photo shows a person typing on a laptop while seated on a couch. A green banner reads “Parliamentary Friends of ME/CFS – Email your MP.” Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.
📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/NfBan
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia
Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Three speaker headshots are shown with names: Prof Michael Kidd AO, Hon Rebecca White MP and Anne Wilosn. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).
5 days to go until #MECFSAllianceAustralia and co-chair Dr Mike Freelander MP host the the first, 2026 meeting of the Parliamentary Friends of ME/CFS group.
🗓️ Tuesday, 10 March 2026
⏰ 11:00am – 1pm AEDT
📍Online via Zoom
🔗 zurl.co/ByTGc
#fairgoforme
Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.
📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/DG4nc
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia
Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Three speaker headshots are shown with names: James Dunn, Sandra Goodyer and Dr Emma Tippett. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).
There is still time to register to join #MECFSAllianceAustralia and co-chair Dr Mike Freelander MP at the 2026 meeting of the Parliamentary Friends of ME/CFS group.
🗓️ Tuesday, 10 March 2026
⏰ 11:00am – 1pm AEDT
📍Online via Zoom
🔗 zurl.co/xRiMi
#FairGoForME
Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Four speaker headshots are shown with names: Dr Mike Freelander MP, Dr Monique Ryan MP, Prof Peter Schofield AO, and Henry Barker. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).
Join #MECFSAllianceAustralia and co-chair Dr Mike Freelander MP at the first, 2026 meeting of the Parliamentary Friends of ME/CFS group.
🗓️ Tuesday, 10 March 2026
⏰ 11:00am – 1pm AEDT
📍Online via Zoom
🔗 zurl.co/fyADw
#FairGoForME
Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.
📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/UFRXm
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia
