This recently published paper shows that patients with #MPNs experience notable impairments in daily functioning, especially fatigue. The authors highlight that clinicians often underestimate symptom burden, reinforcing the need for routine patient‑reported outcomes 👉https://bit.ly/4q2Zwcb
MPNS just added images for the first time! 🌿
A major update for anyone working with medicinal plants, making names easier to verify, compare, and communicate across research & regulation.
👉 https://loom.ly/r8GWxXg
#MedicinalPlants #MPNS #Ethnopharmacology #PlantScience #ResearchTools
Season’s Greetings from the Global MPN Family ✨
As 2025 comes to an end, we want to say thank you 🙏
👉 Watch our 2025 recap: www.gmpnsf.org/post/season-s-greetings-...
#MPNs
72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25
Une 2e capsule vidéo du prix, créé par un legs du Pr Alvarenga, de #piaui, décerné cette année au Dr Nicolas Papadopoulos, de l’ #UCLouvain pour son travail sur le récepteur à la Thrombopoïétine au coeur des Néoplasmes Myéloprolifératifs youtu.be/_g0d-oGKBFA #cansky #MPNs
We raised over $100,000 this #BloodCancerAwareness Month to research #MPNs — rare, misunderstood, and under-funded cancers that start in the bone marrow.
If you donated, see if your employer will double it: mpnresearchfoundation.org/employer-match-double-yo...
In patients with #MPNs, cardiovascular risk factors appeared predictive of poorer OS and thrombosis in a study published in @bloodjournals.hematology.org.
https://bit.ly/4mLBKiu
Honored to Have Given a Keynote on MPNs at the 2025 National Hematology Summit - Ruben Mesa
@rubenmesamd.bsky.social
oncodaily.com/voices/ruben...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #MPNs #HemeSummit25
#MPNs affect 300,000+ in the U.S. — yet still fly under the radar. This #BloodCancerAwarenessMonth, help bridge the gap.
💬 Reply with your MPN type
🔁 RT to raise awareness
📖 Share your journey
Every voice helps change the story. #MPNs #BCAM2025
🩸 Don’t miss Blood Cancers OncTalk 2025!
Hear from Dr. Ashwin Kishtagari (Vanderbilt University), expert in #MPNs, #MDS, and #AML.
📅 Register today: give.cancergrace.org/event/2025-b...
🏆 Big moment for MPNs: PV research took the plenary stage at #ASCO2025. Dr. Andrew Kuykendall presented VERIFY trial results on rusfertide:
✓ 62% maintained Hct <45%
✓ Better symptom control
✓ Fewer skin malignancies
#MPNs #PVawareness #Rusfertide #VERIFYtrial
Dr. Gabriela Hobbs, MD repurposes clinical trials that better serve patients. Learn how she’s turning every tissue sample into progress.
Read more: mpnresearchfoundation.org/news/every-sample-every-...
#MPNs @MPNResearch
The Leukemia & Lymphoma Society (LLS) & MPN Research Foundation unite to provide clinical trial nurse navigation support.
Get support today: https://mpnresearchfoundation.org/mpn-clinical-trials/
#MPNs #ClinicalTrials #Hematology #Oncology #PatientSupport #MPNRF #LLS
MPNs are dynamic — new symptoms, changing blood counts, spleen enlargement.
Even subtle shifts may raise the risk of disease progression, which looks different from patient to patient. Symptom tracking matters.
#MPNs #RealWorldEvidence #Myelofibrosis #PV #ET @MPNResearch
20 years after her ET diagnosis, MJ Tooey’s journey is one of research, resilience & trust. From treatment setbacks to advocacy wins, her care team partnership made all the difference.
Read her story here: https://mpnresearchfoundation.org/patient_stories/mj/
#MPNs #PatientVoice #MPNCommunity
Pruritus = 2nd most common symptom in #PV + #ET, 4th in #MF (2024 MPNRF Unmet Needs Survey). Once seen as PV-only, we now know itching affects all #MPNs — and it’s underrecognized. It can impact sleep, mood & clot risk.
It’s time we take it seriously.
#MPNsymptoms #BloodCancer
Why do some MPNs progress?
Scientist like Dr. Anandi Krishnan measure MPN mutant cell dysfunction to get answers: “Quality control is gone” — like “a factory where the pace has increased so much that the protein folding machinery is going awry.”
#MPNProgression #MPNs
I finally put together a blog post about the arcade cabinet project. #arcadecabinet #arcadecabinetart #tobygray #tobysbrain #clipstudio #monkey #pmd #plungermonkey #plungermonokeydynamo #ipmdt #itsplungermonkeydynamotime #eyezak #fishy #mpns #squid #cuppy
www.tobys-brain.com/2025/05/19/p...
In myeloproliferative neoplasms with no history of thrombosis, primary prevention mainly involves the use of aspirin, and cytoreduction is added in high-risk patients. buff.ly/4KdEi5m #hemesky #MPNs
Why do rare #bloodcancers like #MPNs progress over time?
Join us for a conversation about the future of MPN #progression #research.
Monday, April 15 @ 1:30PM CT
Live on Linkedin: https://f.mtr.cool/xhqwxtpajj
In MF, mast cells & basophils may fuel inflammation & fibrosis. Li et al. 2024 suggest this might be due to the overproduction of a protein called galectin-1. Could blocking it help? #MoreResearchNeeded
#MPNs #Myelofibrosis
Want to find out about the IMPROVE-MF trial, which is investigating a combination of imetelstat and ruxolitinib in #Myelofibrosis?
Click here to watch our interview with John Mascarenhas from #ASH24:
👉 https://buff.ly/3BEFkta 👈
#MPNs #CTSM #TrialUpdate #HemeOnc @ash-hematology.bsky.social
Want faster charging #Lithium Ion #Batteries?
Donghyuck Park and Amanda Ellis present a one pot coating of #NMC #cathodes with #MPNs to increase their #capacity, #lifetime, and #rate performance, in #AdvancedFunctionalMaterials. 🚗 ⚡
doi.org/10.1002/adfm...
#battchat #ozchem #chemsky 🧪 🔋
Myeloproliferative Neoplasms (MPNs) and inflammation. youtu.be/OrGUowsYYf8?...
#CanSky #HemeSky #MedSky #BloodCancer
#MyeloproliferativeNeoplasm #MPNs #PolycythemiaVera #PV #Myelofibrosis #MF #EssentialThrombosis #ET