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#
Hashtag
#MPSVI
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Tigem
Tigem
@tigem.bsky.social
10 months ago

#MPSAwarenessDay #MPSVI #GeneTherapy #RareDiseases #LysosomalDisorders #TIGEM #FondazioneTelethon #MEUSIX #ClinicalTrials #TranslationalResearch #HopeForRare

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Kendra Gottsleben
Kendra Gottsleben
@kegottsleben.bsky.social
1 year ago
Infusion pump with cords and tubes coming out of the pumps. Photo is black and white.

Infusion pump with cords and tubes coming out of the pumps. Photo is black and white.

Female wearing an oxygen tube in her nose. It’s a selfie of the female. The photo is in black and white.

Female wearing an oxygen tube in her nose. It’s a selfie of the female. The photo is in black and white.

Today is the last #Naglazyme infusion of 2024. These weekly infusions have been occurring for over 20+ years. I’m so lucky that researchers took the time to work for a treatment for #Mucopolysaccharidosis Type VI. Feeling grateful.

#MPSVI #RareDisease #Disability #CareAboutRare

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