💡 Clinical Tip: In MBC (esp. HER2+ & TNBC), discuss brain metastasis risk proactively — patient-centered dialogue is key while awaiting trial evidence.
#BreastCancer #BrainMets #MetastaticBC #OncoTwitter #MedicalWatch
Day 5 of #ProjectLead2025 with @nbccstopbc.bsky.social
The preso I’ve been waiting for! TY Sara Hurvitz from @fredhutch.bsky.social for laying out the good/bad/ugly of clinical trial design. Sh*tty Surrogate Endpoints, I’m coming for you! #metastaticbc #breastcancer
We just learned that Congresswoman Kristen McDonald Rivet is a YES! On #HR2408 Metastatic Breast Cancer Access to Care Act. Thank you, Congresswoman McDonald Rivet, for caring about the lives of patients with MBC.
#NBCCSummit #cansky #metastaticbc #breastcancer
#OOTD hitting the Capitol to fight for passage of #HR2408 Metastatic Breast Cancer Access to Care Act, and preservation of Medicaid & cancer research $ with #NBCCSummit
With research dollars evaporating with every Sharpie stroke, we’re fighting for our lives.
#metastaticbc
#breastcancer
Who else is too excited to sleep?! 15 hrs til @nbccstopbc.bsky.social Leadership Summit begins! 12 hr days of science, advocacy and activism—aka, what I live for! (Really). 👠👠
Unite to End BC Rally on 5/6. See you there 😘
MANY #OOTD pics coming bcz #cancersochic
#cancersky
#metastaticbc
#mbc
The shoe for the job! Heading to DC in 10 days to join @nbccstopbc.bsky.social for the Unite to End BC Rally & lobbying. Bringing voices of #metastaticbc to Congress. Join me! Can’t come? What do you want me to tell our reps?
#cansky
#mbc
#breastcancer
#cancersochic
#metavivor
@fluevog.bsky.social
Right? This is what so many folk don’t realize—these cuts, even IF restored, are going to create lag-effect harms for an entire generation of #metastaticbc patients. With an average 2-4yr survival after MBC diagnosis, delays of months getting new drugs is lethal.
Chemo chair thoughts about cuts to the FDA
@altfda.altgov.info @altcdc.altgov.info @altnih4science.bsky.social @um-ihpi.bsky.social @metavivor.bsky.social @nbccstopbc.bsky.social @cansky.bsky.social #breastcancer #metastaticbc
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Chemo chair thoughts about cuts to the FDA
@altfda.altgov.info @altcdc.altgov.info @altnih4science.bsky.social @um-ihpi.bsky.social @metavivor.bsky.social @nbccstopbc.bsky.social @cansky.bsky.social #breastcancer #metastaticbc
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50ish white woman leaning on a wall, with visible port IV hookup to chemotherapy drip. Outfit details (all thrifted or gifted): Silver boho pendant Necklace: vintage from my Grandma Purple strap jumpsuit with wide legs: Swan Studio Black leather jacket with silver spike studs on lapels, sleeves, collar and floral embroidery: BlankNYC from a cool biker chic in rural MI Chemo; Enhertu courtesy of U of M Rogel Cancer Center and private health insurance (for another 18 mos—then it’s Medicare, y’all, if we can keep it.)
Chemo #OOTD. Major progress in bones so back on infusion Tx.2 things I’m calling/emailing while hooked up:1. MBCAC Act. Introduced 3/17 shorturl.at/d1xOR 2. Hands off SSDI/Medicare
@nbccstopbc.bsky.social
@metavivor.bsky.social
#MBC #cancersochic #metastaticBC
#cansky
#stage4BC
Deets in alt id.
Holly Rider--Voice of MBC Legislative Advocate on behalf of Metavivor in virtual meeting with staff members from Senator Elissa Slotkin's office as a part of Groundswell 2025 campaign. Outfit deets: All thrifted. Blouse and necklace: Trina Turk; earrings: from My Sister's Closet in Birmingham, AL--a GREAT thrift boutique run by the YWCA that supports persons recovering from domestic violence.
https://donate.metavivor.org/event/2025-groundswell/e647779 Are you impacted by metastatic breast cancer as a patient, caregiver, loved one or provider? Join us! Follow the link to METAvivor and sign up.
My #OOTD for a #groundswell2025 virtual meeting on behalf of @metavivor.bsky.social with @slotkin.senate.gov health legislative team. Thank you, Andrew and Savannah for investing time in the #metastaticbc community. The agenda: preserve fed research $; increase QoL for MBC folx.
deets in alt text
#OOTD from March 2023; w/ #cancersochic chemo hook-up.Today calling to save DoD Breast Cancer Research program (BCRP);it will shut down without funding bill passing @nbccstopbc.bsky.social naming it “dire threat”
www.stopbreastcancer.org/urgent-actio...
#cancersky #breastcancer
#metastaticBC
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I am a Michigander and am reliant on SSDI since my metastatic breast cancer forced me to stop working at the age of 51. Please keep fighting hard to preserve Social Security payments, as well as Medicaid & Medicare; it is life-preserving support.
#breastcancer
#metastaticBC
#cancersky
#cancersochic
Goals:
-Restore $ for research
-Unmuzzle scientists from sharing findings and data
-Stop DEI bans that harm research #SciencenotSilence
#OOTD deets (gifted or thrifted):
Skirt: Missoni
Turtleneck: Brooks Brothers
Bag: 🤷🏻♀️
#cancersochic
#metastaticBC
#MBC
#breastcancer
White woman wearing dark plum jumpsuit with spaghetti straps and wide legs standing on a balcony overlooking mural
Selfie of White woman wearing striped blouse, plum jumpsuit and sunglasses
Thanks for amazing day of fashion, food and art, @miamidesign.bsky.social
Day to night #ootd
Thrifted
Jumpsuit: Swan Studio
Blouse: DVF
Shoe:Miz Mooz
Necklace: KW market
Self-created Problem: eating so much my jumpsuit is now too tight to unzip
#cancersochic
#MetastaticBC
#Stage4BC
#resistance
#KeyWest Hank’s Hair of the Dog saloon backdrop for #OOTD pics!
#cancersochic
#breastcancer
#metastaticBC
#stage4BC
Today’s theme: #queerjoy is #resistance
🧵for deets
Denim skirt, grey tights, olive boots
White woman with red lipstick, scarf, curly hair olive sweater; frustrated face.
White woman with scarf, olive sweater, showing the end of an infusion port
#OOTD @uofmichigan.bsky.social Cancer Center. Awaiting my Zometa infusion. I always dress for visits to the “clubhouse”. Outfit deets in 🧵#cancersochic
#cancersky
#breastcancer
#mbc
#metastaticBC
Fellow #metastaticBC patient,
singer, and general woman extraordinaire @cierrasisters introducing the first speakers #schd19
T1. ALL #metastaticBC trials (hell, all any stage BC trials!) should include men! #menhavebreaststoo @MBCC_MHBT #bcsm
Kelly, former ob/gyn current #metastaticBC patient, checking in from rainy and avalanche-a-day Lake Tahoe. #bcsm
And yet another reason to attend @LivingBeyondBC #metastaticBC conference: @ESchattner is a panelist!
Naomi Walder. Emma Gonzalez. Cameron Kasky. David Hogg. Edna Chavez. Mya Middleton.
I hope #metastaticBC lets me live long enough to vote for them, for they will be the leaders of this country.
#Enough #GunControlNow
Congratulations to @LivingBeyondBC, an outstanding organization that is so supportive of the #metastaticBC community.
.@realDonaldTrump why are you trying to kill us? People like me with #MetastaticBC will die even sooner thanks to your heartless policies
