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Hashtag
#MultipleHereditaryExostoses
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My bone disease is a lot like this except instead of "fifty" it was more like "nine"

#MHE #MultipleHereditaryExostoses

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Preview
a woman says " i 'm so sore " while standing next to a ladder ALT: a woman says " i 'm so sore " while standing next to a ladder

I physically hurt today so much lol 🥲

Winter is kicking my ass.

I guess it doesn’t help that I fell in the breezeway yesterday after letting the dogs out 🤷‍♀️

#MultipleHereditaryExostoses

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Video

Surgery day for our 15 yo. He’s currently in the operating room having 2 Exostoses removed from both of his legs (below the knee).

The Exostoses were so long, they looked like icicles and the tendons & ligaments caught on them every time he bent his knees or walked.

#MultipleHereditaryExostoses

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Shoutout to my #MHE #MultipleHereditaryExostoses homies

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