May 17th is World NF Awareness Day. This date was chosen because the gene that causes NF1 (the most common form of NF) is located on Chromosome 17.

#NFawareness #EndNF

Once formally diagnosed with NF1, regular screenings for tumor growth and other symptoms can help to catch problems early and make interventions more effective.

#NFAwareness #EndNF 3/3

Before we even began trying to conceive, I started taking pre-natal vitamins and avoiding foods, drinks, and chemicals that could harm a developing baby. My efforts likely helped prevent other problems, but NF1 was encoded in my son's DNA from the very beginning.

#NFawareness #EndNF

A friend of ours passed away suddenly last year when an NF tumor in her chest created too much pressure on her heart. Other friends are losing their vision, hearing, and mobility due to NF tumors.

Federal funding for NF research has been eliminated for at least the next year.

#NFawareness #EndNF

May is Neurofibromatosis (NF) Awareness Month

Neurofibromatosis, called "NF" for short, is a long word that describes a collection of genetic conditions with overlapping symptoms. The name refers to tumors called "neurofibromas" that can grow on nerves throughout the body.

#NFAwareness #ENDNF

March 31 is Cesar Chavez Day!
#CesarChavezDay #WithTheseHands #NFawareness

Farmworker Awareness Week!

Please consider donating to the National Long Sleeve Shirt Drive. afop.org

Support local farms and farmworkers!!!

Delighted to announce our first festival selection of 2025 at the 4th edition of Northampton Film Festival.

Hedgehog will screen in the Celebrating Identity strand at 2pm on Friday 7th March at Delapré Abbey.

#shortfilm #filmfestival #NFF2025 #indiefilm #neurodiversity #nf1 #nfawareness

It’s always motivating at a disease-state 5k to see those fighting able to get out with us...I always feel like I run faster because of them!
#endNF #NFAwareness 🥊💙💚