Ian Stedman

@istedman.bsky.social

6 years ago

A #Rheumatology podcast with episodes that specifically discuss Cryopyrin Associated Periodic Syndromes - #CAPS #MWS #MuckleWells #FCAS #NOMID #CINCA



Also check out to learn more.

Ian Stedman

@istedman.bsky.social

7 years ago

#CAPS has a @RareConnect community page (). Also check out the Canadian CAPS Network (@CdnCAPSNet) on Twitter and our private FB group linked to on our website: #MWS #NOMID #FCAS #cryopyrin #raredisease

Ian Stedman

@istedman.bsky.social

8 years ago

From Dr. Tim Oberg, Moran Eye Center: #raredisease #autoinflammatory #CAPS #MWS #NOMID #FCAS #rheumatology #opthalmology #cryopyrin

Ian Stedman

@istedman.bsky.social

8 years ago

Skyelah's #raredisease Story: Living with #MuckleWells Syndrome (#CAPS #MWS #NOMID #FCAS) via @complexchildmag

Ian Stedman

@istedman.bsky.social

8 years ago

This young man has a challenging #CAPS variant that has left him w/o effective #treatment. He has truly endured a lifetime of #pain - but he won't let it hold him back! Please check out his #socialmedia channels and show him some #love. #raredisease #MWS #NOMID #FCAS #fighter

Ian Stedman

@istedman.bsky.social

8 years ago

Watch the video. See what it means to her. This explains who I am. #hope #kineret #anakinra #fcas #CAPS #NOMID #MWS

Ian Stedman

@istedman.bsky.social

8 years ago

#Ilaris is used for CAPS, including #mucklewells, #NOMID & #FCAS. Visit to learn more.

Ian Stedman

@istedman.bsky.social

9 years ago

And autoinflammatory disorders, like #CAPS #mucklewells #nomid #FCAS ! She's a real champion for our community! #canadiancapsnetwork