Patients and behavioral scientists call for single, simple PAL phrase and major education push Consumer advocates, FDA behavioral researchers and clinicians urged a single standardized precautionary allergen label wording, extensive consumer testing and clinician education before any threshold-based system is rolled out.

Patient advocates and scientists are demanding a clear, standardized allergen label to eliminate confusion and enhance safety for consumers.

Learn more here!

#US #HealthCommunication #CitizenPortal #PatientGroups #ConsumerEducation #FoodSafety

ERDERA launches survey to put rare-disease patients at the heart of research - ERDERA ERDERA’s patient-engagement working group has opened an online survey to gauge how rare-disease patient organisations experience their role in publicly funded research, including projects financed und...

Really neat initiative: Assessing Needs and Expectations for Inclusive Development in Rare Disease Research. #RareDisease #PatientGroups can share their views on this form for the next 6 weeks: erdera.org/news/erdera-...