Pic of the page of Tessa’s obituary. Text in the link provided.

A lovely obituary in the @bmj.com for @tessajlrichards.bsky.social. Always one of my favourite editors, and an advocate to the last for good communication with and involvement of patients in their own care.

#MedSky
#Communication
#PatientPartnership

www.bmj.com/content/392/...

Patient Advisory Committee Engagement in a Precision Medicine-Focused Public Oncology Conference: Case Report of Lessons Learned - Sevtap Savas, Georgia Skardasi, Aaron A. Curtis, Marcelo F. Martinez,... Introduction and objectives: Public partnerships, engagement, and outreach are essential for meaningful knowledge dissemination and exchange activities in publi...

We - the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) - have just published our 2nd scholarly paper!! 💓

#MarathonOfHope #AtlanticCanada #PEI #NovaScotia #NewBrunswick #NewfoundlandAndLabrador #PatientPartnership

@marathonofhope.bsky.social

journals.sagepub.com/doi/10.1177/...

Read more: bit.ly/EBCDNews

[2/2]

#ExperienceBasedCoDesign #EBCD #PersonCentredCare #PatientExperience #HealthcareImprovement #QualityImprovement #EvidenceBasedCare #HealthInnovation #CollaborativeCare #PatientPartnership #CareExcellence #HealthLeadership #TransformingCare #PickerEurope

Laying the Groundwork Chat Summary PxP 2025 - PxP Roles in research was an insightful session at PxP 2025. Read the anonymised summary of discussion and resources shared...

📚 Read the chat summary: pxphub.org/laying-the-g...

#PxP25 #PatientPartnership #HealthResearch

Thanks to everyone who attended, presented and joined in the discussion.

#PersonCentredCare #PatientExperience #PatientSafety #PatientPartnership #PatientEngagement

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Weekly digest: OA Week, Crossref DOIs and patient involvement in RWD This week, we spotlight the upcoming International Open Access Week 2025, which will focus on the theme of Who owns our knowledge? We signpost the latest Open Pharma guest post by Kora Korzec, which e...

📢 Read this week’s #OpenScience news here! 📢

Sign up to our blog to receive your weekly news digest and more straight to your inbox!

#OpenAccess #OpenAccessWeek #OAWeek @crossref.bsky.social #FAIRData @cos.io #PatientPartnership

The HSE Dublin and North East Patient and Service User Council are currently recruiting new members.
If you are open to sharing your views and experiences of using health and social care services in HSE Dublin and North East visit hse.ie/patientcouncil

#PatientPartnership #ServiceUserVoice

Unapologetically Black Unicorns | Keris Jän Myrick Have you ever chatted with an Unapologetically Black Unicorn? Someone who symbolizes freedom, power, strength and is a true force of nature and thought, ‘WOW people need to hear this’? Now you can and...

🎙️ Recording tonight with
@KerisWithaK
— featured in #DrBot, a leading patient advocate. Excited to join her Unapologetically Black Unicorns podcast! 🦄✨
unapologeticallyblackunicorns.podbean.com

#AI #healthTech #patientpartnership

PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.

Learn more about PxP 2025 here: pxphub.org/event/

#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

Pleased to share that Jan Geissler, CEO of Patvocates, co-authored an article in the Springer Journal "𝗧𝗵𝗲 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 – 𝗣𝗮𝘁𝗶𝗲𝗻𝘁-𝗖𝗲𝗻𝘁𝗲𝗿𝗲𝗱 𝗢𝘂𝘁𝗰𝗼𝗺𝗲𝘀 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵" on 7 actions to advance #PatientAuthors & #PatientPartnership in research.
🔗 link.springer.com/article/10.1...
🖼️ Image: Article visual abstract

Thrilled to join fellow patient partners in this upcoming #webinar on growing your influence in patient engagement!

📆 May 12, 2026
⏰ 12 PM PDT

Let’s keep pushing the boundaries of #PatientPartnership

The work is far from finished

Sign up lnkd.in/eiRyWdFR

#PatientVoice #PXP @pxphub.bsky.social

Congratulations SKIP on an amazing job. Love moving conversation from #PatientEngagement to #PatientPartnership. Thanks for sharing your experiences and resources.

Image of the title and abstract of a research article

🌟 SKIP has embedded patient partnership at every level - and we’re proud to share how in our latest publication.
📖 Read more: rdcu.be/egRQZ
#ItDoesntHaveToHurt #PatientPartnership

@seastarbatita.bsky.social @dawnrichards.bsky.social @drcchambers.bsky.social @egruenwoldt.bsky.social

When we put #PatientSafety and #PatientVoice at the centre of our work with #PatientPartnership as our goal, we will build better services, stronger relationships, and improve outcomes and experience.

Yesterday I met many MPs, including @alisonebennett.bsky.social & @seanlwoodcock.bsky.social
at a Dedalus parliamentary drop-in session to speak about AI, tech & digital in #health. I mainly spoke about it being great, as long as there's transparency & #patientpartnership @patientsassoc.bsky.social

SPOR | NAPHRO Explore the key themes and insights gathered from SPOR communities across Canada as part of the 2023-24 engagement process. This document outlines strengths, challenges, and emerging needs in patient-...

The final report on the refresh for Canada’s Strategy for Patient-Oriented Research (SPOR) is now available.
Lots of recommended actions, including changing the name to "Strategy for People-Centred and Partnership Oriented Research". #PatientEngagement #PatientPartnership #PPI

📢 CANTRAIN Launches a New International Initiative with EUPATI and MRCT Center and Joint Task Force for Clinical Trials Competency

Learn more about this new initiative: tinyurl.com/PatientEngag...

#PatientEngagement #PatientPartner #PatientPartnership

This will be a really interesting presentation - I especially love that includes #PatientPartnership.

#PatientEngagement #PatientPartnership

This morning, myself & Curie, a member of @patientsassoc.bsky.social had a tour of No10 Downing Street. We were invited as the pair of us were at the launch of the Prime Minister's 10year health plan of the NHS & we hope to continue working with government supporting with #patientpartnership

Fab day yesterday at HETT Show. A @patientsassoc.bsky.social member & I quizzed some innovators on their #patientpartnership & then we took part in a Health Innovation Network roundtable discussing how PPIE needs to be embedded into #healthcare innovation to ensure #healthinequalities are addressed

Such a great webinar. 💙
Please watch and share!

#MECFS #SevereME #PatientPartnership

Looking forward to being a part of this roundtable with the
Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25

What's in a name? "What's in a name? That which we call a rose by any other name would smell as sweet"     William Shakespeare     Romeo and Juliet, Act II, ...

ICYMI, I recently posted about the controversy around language in patient partnership. I'm very much in the camp of using the terminology #PatientPartner
over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement

modelingchange.blogspot.com/2025/01/what...

What's in a name? "What's in a name? That which we call a rose by any other name would smell as sweet"     William Shakespeare     Romeo and Juliet, Act II, ...

It's been *waaay* to long in coming, but I've been wanting to write this piece on #PatientPartnership language for well over a year (2 years maybe?). In it I describe why I use the language I do.
#PatientEngagement #PatientOrientedResearch

modelingchange.blogspot.com/2025/01/what...

The Patients Association 10-Year Health Plan organisation consultation submission Read our organisational submission to the Government's 10-Year Health Plan consultation.

The Govt's gathering feedback & ideas to shape the upcoming 10-Year Health Plan. As part of this biggest ever conversation about the NHS, @patientsassoc.bsky.social has submitted an organisational response to the consultation. #PatientPartnership #NHS
www.patients-association.org.uk/the-patients...

Patient partner compensation in research and health care: the patient perspective on why and how As patient and family engagement activity broadens across the continuum of care and expands around the world, the question of compensation for an increasingly competent advisory community continues to...

Was honoured to work with @dawnrichards.bsky.social , Zal
Press, and K. Strain on this important paper on #PatientCompensation

pxjournal.org/journal/vol5...

#PatientPartnership

My thing: #patientadvocacy #patientpartnership #PPI #PPIR (patient&public involvement in #research) #coproduction #patientempowerment #letpatientshelp! 🧩

Started 15yrs ago on Twitter, when #patients got together to build #patientcommunities, mentor one another, find their peers & become #empowered.

Ready to start the day at the CQuIPS Annual Symposium 2024. Looking forward to presenting as part of a session on broadening our understanding of harm. #patientsafety + #patientengagment + #patientpartnership = #improvement in #safetyandquality