Great work to FirstHealth of the Carolinas-Moore Regional Hospital for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! Learn more: bit.ly/pre1702-study

Kudos to @carlehealth.bsky.social for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

FirstHealth of the Carolinas-Moore Regional Hospital
is enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. More: bit.ly/pre1702-study

A promotional share-pic for the conference. Below the Title there’s a scenic view from Warsaw and the date 09.-10. April and a QR code pointing to the conference program at https://ern-ithaca.eu/events-news/eurondd/program/program-2026/

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around here going there as well? —> let’s connect!

I’m looking forward to present our work at www.findme2care.de AND hear about all the other projects.

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

Great work to @choosesjc.bsky.social for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

A patient registry turns individual stories into shared insight. For a rare disease every data point matters. Your experience helps complete the picture and move research forward. For more info: bit.ly/PatientRegis...
#GIST #PatientRegistry #MoveTowardACure

Kudos to Tufts Medical Center for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

@choosesjc.bsky.social is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

UM Greenebaum Comprehensive Cancer Center is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

Great work to ThedaCare for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

Kudos to Montefiore Medical Center for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

Join The Registry By completing the patient registry, you provide invaluable information about the symptoms and progression of MFM13 myopathy, that cannot be obtained otherwise. Data collected is crucial in…

Patient data is one of our most powerful tools. Do you know someone affected by #HSPB8 myopathy? Ask them to join our patient registry: buff.ly/ZFXFAGq

#PatientRegistry #MyopathyResearch #PatientAdvocacy #Join-The-Registry

Kudos to Stanford Cancer Institute Palo Alto for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

Great work to Baptist Memorial Health Care for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

Tufts Medical Center is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

Geisinger Cancer Institute is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

Great work to Vanderbilt University Medical Center for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/pre1702-study

@stanford-cancer.bsky.social is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

Kudos to @virtuahealth.bsky.social for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

Spotlight on Real-World Data Capture: The PrE1702 Registry Study in Lung Cancer This major new initiative is a unique opportunity for researchers and patients to help build an important real-world data registry of patients with EGFR-mutated non-small cell lung cancer

Great work to ProHealth Care for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. More: bit.ly/4hyZUue #LCSM

Thomas Jefferson University Hospital is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. Learn more: bit.ly/pre1702-study

Join The Registry By completing the patient registry, you provide invaluable information about the symptoms and progression of MFM13 myopathy, that cannot be obtained otherwise. Data collected is crucial in…

Patient data is one of our most powerful tools. Do you know someone affected by #HSPB8 myopathy? Ask them to join our patient registry: buff.ly/ZFXFAGq

#PatientRegistry #MyopathyResearch #PatientAdvocacy #Join-The-Registry

Spotlight on Real-World Data Capture: The PrE1702 Registry Study in Lung Cancer This major new initiative is a unique opportunity for researchers and patients to help build an important real-world data registry of patients with EGFR-mutated non-small cell lung cancer

Marshfield Clinic is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/4hyZUue

ClinicalTrials.gov

Kudos to the following institutions for enrolling their first patients in #RealWorldData #PatientRegistry PrE1702: Sibley Memorial Hospital, Good Samaritan University Hospital, and Northwestern University! More info here: bit.ly/pre1702-study #LCSM #RWD #RWE

12 years on the patient registry wait list and still no access to primary care. Twice a year I update and check my information with #HealthPEI.
Our #patientregistry went from 7,800 to over 39,000 for a population of 180,000.

#LiberalLeadership
#RobertMitchell #ToddCormier

Spotlight on Real-World Data Capture: The PrE1702 Registry Study in Lung Cancer This major new initiative is a unique opportunity for researchers and patients to help build an important real-world data registry of patients with EGFR-mutated non-small cell lung cancer

Kudos to The Valley Hospital (Luckow Pavilion) for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/4hyZUue

ID: Text in image reads “A landmark report on data collection for Usher syndrome. Our new report identifies the challenges and potential solutions needed to create an Usher syndrome registry that supports access to future treatments and clinical trials, while improving services in healthcare, education, mental health, employment, and accessibility.”. Underneath is an outline of a group of people standing in front of buildings.

We’re proud to share the results of our second major research project!🎉

This landmark scoping study identifies the data and model needed to lay the groundwork for a successful, sustainable Usher syndrome registry in Ireland.

🔗: usherireland.org/ush-registry...

#RareDisease #PatientRegistry

Spotlight on Real-World Data Capture: The PrE1702 Registry Study in Lung Cancer This major new initiative is a unique opportunity for researchers and patients to help build an important real-world data registry of patients with EGFR-mutated non-small cell lung cancer

Kudos to Aurora Saint Luke’s Medical Center for enrolling their first patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in patients not in a #ClinicalTrial. bit.ly/4hyZUue

Spotlight on Real-World Data Capture: The PrE1702 Registry Study in Lung Cancer This major new initiative is a unique opportunity for researchers and patients to help build an important real-world data registry of patients with EGFR-mutated non-small cell lung cancer

Kudos to John H. Stroger, Jr. Hospital of Cook County for enrolling their 1st patient in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in pts not in a #ClinicalTrial. bit.ly/4hyZUue

Spotlight on Real-World Data Capture: The PrE1702 Registry Study in Lung Cancer This major new initiative is a unique opportunity for researchers and patients to help build an important real-world data registry of patients with EGFR-mutated non-small cell lung cancer

University of Wisconsin Carbone Cancer Center is now enrolling patients in #RealWorldData #PatientRegistry PrE1702! This study is evaluating how well osimertinib +/- chemo/IO works to control EGFR+ #LungCancer in pts not in a #ClinicalTrial. bit.ly/4hyZUue