Advertisement · 728 × 90
#
Hashtag
#PediatricRareDiseases
Advertisement · 728 × 90
Access Pathways for Therapies Unfit for Commercialization
Advance initiatives that support the development and implementation of therapies that are unlikely to be commercially viable but offer meaningful benefits for rare disease patients and their families.

Access Pathways for Therapies Unfit for Commercialization Advance initiatives that support the development and implementation of therapies that are unlikely to be commercially viable but offer meaningful benefits for rare disease patients and their families.

Global Engagement
Continue to build on international collaborations to increase access to innovative PRDCTs and improve pediatric rare disease outcomes 
in Canada.

Global Engagement Continue to build on international collaborations to increase access to innovative PRDCTs and improve pediatric rare disease outcomes in Canada.

Regulatory Pathways 
Identify policy objectives that promote a competitive Canadian regulatory environment aligned with international best practices and reduce barriers to pediatric rare disease treatments.

Regulatory Pathways Identify policy objectives that promote a competitive Canadian regulatory environment aligned with international best practices and reduce barriers to pediatric rare disease treatments.

RareKids-CAN is committed to enabling timely access to pediatric rare disease therapies in Canada. Our third strategic priority is all about driving regulatory reform and system innovation.

Read more here
static1.squarespace.com/static/662c1...

#RareDiseaseResearch #PediatricRareDiseases

4 2 0 0
National Expertise Catalogue: Develop and maintain a centralized database of methodological and RD clinical experts to assist with protocol development and site and investigator identification.

National Expertise Catalogue: Develop and maintain a centralized database of methodological and RD clinical experts to assist with protocol development and site and investigator identification.

Registry Development Support: Advance the development, maintenance, and use of patient registries and real-world data to support the full pediatric rare disease clinical trials life cycle.

Registry Development Support: Advance the development, maintenance, and use of patient registries and real-world data to support the full pediatric rare disease clinical trials life cycle.

Trial Matching & Patient Identification 
Develop a centralized, data-driven portal that supports trial planning, attracts new PRDCTs, and enables optimized patient-trial matching across Canada to enhance PRDCT visibility and feasibility.

Trial Matching & Patient Identification Develop a centralized, data-driven portal that supports trial planning, attracts new PRDCTs, and enables optimized patient-trial matching across Canada to enhance PRDCT visibility and feasibility.

RareKids-CAN's second strategic priority aims to optimize participant, site, and trial matching.

Read more here: static1.squarespace.com/static/662c1...

#RareDiseaseResearch #PediatricRareDiseases #ClinicalTrials

1 0 0 0
Video

Following the release of our Strategic Plan, RareKids-CAN is sharing our first strategic priority: Strengthening PRDCTs Capacity and ATMPs Readiness.

Read more here: static1.squarespace.com/static/662c1...

#RareDiseaseResearch #PediatricRareDiseases #ClinicalTrials

1 0 0 0
Post image

We’re pleased to share the revised 2025-2029 Strategic Plan!

We’re grateful to our patient and family partners, researchers, institutions, and collaborators who shaped this evolution.

Read the full plan here: static1.squarespace.com/static/662c1...

#RareDiseaseResearch #PediatricRareDiseases

4 2 0 0
Post image

The #RareKidsCAN Pharmacology Sub-Platform is organizing focus groups to better understand the experiences of patients and families when searching for information about medications & #ClinicalTrials for #PediatricRareDiseases. Learn how to get involved: tinyurl.com/2sdkbz2t

#RareDiseaseResearch

3 1 0 0
Preview
Rare Diseases Weekly News – July 3rd 2025 🧬 This Week in Rare Diseases: First MAS Approval, AI-Powered Diagnostics, Global Designations, Strategic Collaborations and more From the first […] The post Rare Diseases Weekly News – July 3rd 2025 appeared first on LucidQuest Ventures.

FYI: LucidQuest Views >>> Rare Diseases Weekly News – July 3rd 2025 #News #pediatricrarediseases #patientadvocacy Comment below!

0 0 0 0
Preview
Rare Diseases Weekly News – July 3rd 2025 🧬 This Week in Rare Diseases: First MAS Approval, AI-Powered Diagnostics, Global Designations, Strategic Collaborations and more From the first […] The post Rare Diseases Weekly News – July 3rd 2025 appeared first on LucidQuest Ventures.

ICYMI: LucidQuest Views >>> Rare Diseases Weekly News – July 3rd 2025 #News #pediatricrarediseases #patientadvocacy Comment below!

0 0 0 0
Preview
Rare Diseases Weekly News – July 3rd 2025 🧬 This Week in Rare Diseases: First MAS Approval, AI-Powered Diagnostics, Global Designations, Strategic Collaborations and more From the first […] The post Rare Diseases Weekly News – July 3rd 2025 appeared first on LucidQuest Ventures.

LucidQuest Views >>> Rare Diseases Weekly News – July 3rd 2025 #News #pediatricrarediseases #patientadvocacy Comment below!

0 0 0 0