¿Qué logra el nuevo fármaco que frena una ELA genética? Can Ruti estrena tofersen para ELA SOD1: punción lumbar a quién va dirigido y qué cambia en fuerza, respiración y supervivencia del paciente. El Hospital Germans Trias i Pujol, el Can Ruti de Badalona...

¿Qué logra el nuevo fármaco que frena una ELA genética? #11defebrero #felizmiercoles #ELA #EsclerosisLateralAmiotrofica #Tofersen #Qalsody #Sanidad #Salud #Neurologia #InvestigacionMedica #EnfermedadesRaras #Barcelona #Catalunya #CanRuti #MedicinaDePrecision donporque.com/nuevo-farmac...

Le #Qalsody finalement remboursé ? Le nouvel espoir des malades de Charcot et de leurs proches (Il y a bientôt un an, la #HAS donnait un avis défavorable

Grande nouvelle! Des recherches cliniques menées au Neuro ont permis de valider une thérapie révolutionnaire qui peut ralentir la progression de la #SLA de type #SOD1. #SantéCanada a accordé une approbation conditionnelle au #Tofersen maintenant appelé #Qalsody. Entrevue: bit.ly/qalsodyurc

Montreal research results in ‘breakthrough’ drug for ALS Clinical trials for a new ALS drug took place at the Neuro Hospital in Montreal and the results are being called a 'breakthrough.'

*This* is why clinical research is vital! A trial run at the CRU led to a breakthrough therapy that allows individuals with #SOD1 #ALS to stabilize their disease and even regain function. #Qalsody has now received conditional approval from Health Canada. #raredisease #tofersen
bit.ly/qalsodyhcan

I have a rare form of ALS. I have to fight my insurance company every six months for a game-changing drug Shelby Kinsey lives with a rare, fast-progressing form of ALS — but she has to spend her precious time fighting for insurance coverage of a drug that helps.

For Shelby, and the hundreds of other people who depend on #Qalsody, it should never come to this. My fight to get insurance to cover my pricey #ALS drug | STAT

www.statnews.com/2024/12/13/a...

Historic CMS Directive Expands Access to Qalsody for ALS Patients on Medicare Advantage Plans A groundbreaking directive from CMS mandates coverage of Qalsody for ALS patients on Medicare Advantage, marking a significant win for the ALS community.

Historic CMS Directive Expands Access to Qalsody for ALS Patients on Medicare Advantage Plans #USA #Arlington #ALS #CMS #Qalsody