🚀 Join RADeep team at @vhir.bsky.social in Barcelona! 🚀
🔹 Data Engineer
👉 lnkd.in/d6Mkwg5q
🔹 Data Manager
👉 lnkd.in/dBsZrTXF
#Hiring #DataEngineer #DataManager #RealWorldEvidence #CareerOpportunity #RADeep #RADs
📣The #RADeep team is at #ASH25 in Orlando!
We’re excited to be part of the 67th ASH Annual Meeting, taking place from December 6-9, 2025, at the Orange County Convention Center in Orlando, Florida. 🩸
Find out more: hematology.org/meetings/ann...
#RADeep #Hematology #Research
📣We are pleased to announce that #RADeep will participate in the 67th #ASH25 Annual Meeting and Exposition!
✅This year, we will present four key contributions focused on real-world data, outcome research in hemoglobinopathies, and Europe-wide data standardization efforts.
✅ Day 1 | ERN-EuroBloodNet & @radeep.bsky.social – #SCD Patients Session at #ASCAT2025 !
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
✅A successful and inspiring RADeep DAC Annual Meeting!
🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron.com for the annual #RADeep Data Access Committee (DAC) meeting.
www.radeepnetwork.eu @ec.europa.eu
📢Exciting news! The RADeep Data Access Committee (DAC) is meeting next Thursday, the 18th, at @vhir.bsky.social
We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝
🌐https://www.radeepnetwork.eu/
#RADeepNetwork #RADeep #RareDiseases
🗓On April 11, #RADeep hosted an in-person Hands-On Session on Data Entry at @VHIR_ , Barcelona.
🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece.
▶️Find out more www.radeepnetwork.eu
#RareDiseases #hematology
🚀The new RADeep REDCap Platform is live!
A major step forward for rare anemia data collection and management across Europe.
This updated version offers significant improvements in:
✅Data visualization
✅Quality control
✅Overall efficiency in managing information
#RADeep #hematology
🌍🩸#WorldSickleCellDay RADeep: Advancing Research in Sickle Cell Disease
📊Currently, the #RADeep registry includes comprehensive clinical, epidemiological, and laboratory data from 3,580 pediatric and adult patients with #SCD, spanning 8 European countries*.
#WSCD25
🌍🩸@mmanupe.bsky.social , #RADeep coordinator, presented innovative sequencing techniques for the diagnosis of rare anemias. She introduced RADeep uRADAR, a new referral framework designed to support patients affected by ultra-rare anemias (uRADs) across the EU.
🔗 radeepnetwork.eu
#EHA2025
🩸🌍 RADeep Network is at #EHA2025!
The #RADeep Network team is on site at the European Hematology Association (EHA) Congress 2025, connecting, sharing and advancing knowledge about rare anaemia disorders across Europe.
📍 Come meet us at the ERN-EuroBloodNet booth!
#hematology #EHA2025
🎙️Discover RADeep’s mission and impact!
🔎 Did you know? #RADeep is endorsed by the European Rare Blood Disorders Platform (#ENROL) and the European Hematology Association (EHA)!
👉 Don’t miss it! lnkd.in/d5YeJn55
#RADeepNetwork #RareDiseases #RareAnaemia #PatientRegistry #HealthcareInnovation
🩸🌍The RADeep Network is now live on social media!
🔎What is #RADeep?
Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.
#SYNTHEMA collaborates with #RADeep, the EU-wide platform gathering data on rare anaemia disorders. With 200+ healthcare providers in 13+ countries, RADeep—under the @erneurobloodnet.bsky.social umbrella—bolsters our efforts to improve research and care.
👉Learn more about SYNTHEMA: synthema.eu
