Photo of a red car parked mostly on the pavement next to two bins. The pavement is completely blocked.
Don't you just love bin day😡 #BlindLife #RPAwarenessMonth
#PavementParking
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#RPAwarenessMonth
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As #RPAwarenessMonth closes, Jack, Engagement Manager for the North East, shares a powerful update on living with Retinitis Pigmentosa.
“I won’t give up - blind or otherwise, I’ll always have something to smile about.”
Read his story on resilience and adapting to sight loss: https://bit.ly/4qVsxpS
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Retina UK logo with a gold “50” to it’s right.
Thank you so much Retina UK for sharing important information about retinitis pigmentosa on our social media takeover today as part of #RPAwarenessMonth and all the invaluable support you offer for people with this eye condition!
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Image shows 21 of our volunteers all stood and sat on a stage smiling at the camera.
Our community drives everything we do. If you’d like to support research, volunteer or share your story, explore opportunities at RetinaUK.org.uk/get-involved
#RPAwarenessMonth @retinauk.bsky.social
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Picture taken from 2025 Professsionals conference room. Image shows two women talking to each other, there are other people facing away from the camera.
Join us at the 2026 Professionals’ Conference - a chance to learn, connect and share best practice across the sector. CPD accredited. Register your interest here: https://retinauk.org.uk/event/professionals-conference/
#RPAwarenessMonth Retina UK
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Image shows a man that is walking through a wide corridor. He is using a white cane.
Living with RP can affect more than vision.
Employment, education and confidence can all be impacted. Access to the right information and practical support is essential.
#RPAwarenessMonth @retinauk.bsky.social
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Woman using tech on phone.
Accessible tech can make a real difference when living with RP.
Our Top Tech Tuesday series shares practical tips, tools and apps recommended by people with lived experience.
Discover more: retinauk.org.uk/resource/toptechtuesday/
#RPAwarenessMonth @retinauk.bsky.social
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Picture shows two hands wearing green gloves. Surrounding the gloves is a table with numerous research equipment including bottles and testing samples.
Research into inherited retinal diseases is advancing.
From gene therapies to innovative clinical trials, progress is being made thanks to the commitment of researchers and our community. Read our most recent research news here: https://retinauk.org.uk/news/
#RPAwarenessMonth @retinauk.bsky.social
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Image shows 4 people standing and smiling at each other. There is a person to the left of the image facing away with long blonde hair.
A diagnosis of RP can feel overwhelming.
Connecting with others who understand can help. Our peer support and local groups offer safe spaces to share experiences and advice: retinauk.org.uk/information-and-support/...
#RPAwarenessMonth @retinauk.bsky.social
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Picture of person on the phone wearing a Retina UK t-shirt.
If you or someone you support is navigating inherited sight loss, our Helpline team is here to listen and guide. Our trained volunteers all have lived experience of inherited sight loss.
Call 0800 111 4000 or email helpline@RetinaUK.org.uk
#RPAwarenessMonth @retinauk.bsky.social
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Image is a close up of a person eye. The image shows brown eyebrows and an open eyelid.
RP is a progressive inherited retinal condition.
It often begins with difficulty seeing in low light and can gradually affect peripheral vision.
No two people experience RP in the same way.
#RPAwarenessMonth @retinauk.bsky.social
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Retina UK logo with a gold “50” to it’s right.
We’re taking over today for #RPAwarenessMonth! Retinitis pigmentosa (RP) is a group of inherited retinal conditions causing progressive sight loss. Around 1 in 4,000 people are affected.
Don’t forget to follow @retinauk.bsky.social today as part of RP awareness month!
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Retina UK logo with a gold “50” to it’s right.
We are excited to have @retinauk.bsky.social take over our social media as part of #RPAwarenessMonth to raise awareness of the eye condition retinitis pigmentosa and the support they offer.
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I get this a lot. It's usually meant as a compliment. But most #blind people hate this phrase, so unless you know the person well, best not to use it. #RPAwarenessMonth
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#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
This week’s Myth Busting Monday tackles the phrase “you don’t look blind.” Sight loss isn’t always visible. RP varies day to day and person to person, and no one should have to “look” a certain way to be believed. Every experience is valid. #RPAwarenessMonth
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Dave Smith being interviewed during a simulation walk in Brighton. He is facing the news anchor, Ian Palmer and there is a camera man holding up a camera and filming them to the side.
Dave Smith, Engagement Manager for South East England, pictured at the 2023 SLC Conference. Dave is speaking into a microphone.
“I was told I would never work.”
Dave, Engagement Manager for SE England, was diagnosed with RP at 16. He was told he’d eventually go blind and never work.
He’s now built a career across multiple roles, adapting as his sight changed.
Read his story for #RPAwarenessMonth 👉bit.ly/3YyUeJk
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SLC graphic which includes teal and dark-blue curved shapes in the top-right corner and bottom left corner. Quote reads: ‘One of the biggest changes RP has brought into my life is learning to ask for help and accept it. I’ve always been very independent, so this was a huge shift for me. Now, I find kindness in strangers every day, which is hugely life affirming.’ Ann, North London Sight Loss Council. White text underneath reads ‘Retinitis Pigmentosa Awareness Month’ on a dark blue background.
RP affects everyone differently. One volunteer shares:
“One of the biggest changes RP has brought into my life is learning to ask for help and accept it… I find kindness in strangers every day, which is hugely life affirming.”
Read their stories: https://bit.ly/4rKJB2D
#RPAwarenessMonth
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A tree stump with a heart shaped crevice in it which is filled with water and has a leaf in it. There is a smaller crevice just above the top of the Hart which has water and a small white feather in it.
#nature #trees #blind #photography. One of the few good things about tunnel vision is that I often see things that others don't. Kind of ironic. I'm sure the people walking past seeing me take a photo of this thought I was mad😬 #RPAwarenessMonth
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A six‑image collage created for Retinitis Pigmentosa Awareness Month. The top row is features SLC volunteers, Josie, Amin, and Dannie. The bottom row is features Gill, Johnny, and Ann. Dark blue text on a white background reads ‘Retinitis Pigmentosa Awareness Month. The Sight Loss Councils logo appears in the bottom right corner.
This February is #RPAwarenessMonth 💜
Retinitis Pigmentosa affects everyone differently. We’re proud to share the voices of Sight Loss Council volunteers living with RP, the myths they face, and what helps them stay independent.
Read their stories: https://bit.ly/4rKJB2D
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Retina UK are so good at this. I have a great deal of respect for the groups and their facilitators. They really can be a lifeline. #RPAwarenessMonth
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Liam O'Carroll, Engagement Manager for London SLCs is stood on stage in a white tent, holding a microphone. He is wearing a dark suite and burgundy bow tie. A seated person is visible in the background, next to a sign which reads 'Elephant & the Nun'.
“I was a person who was blind but not a blind person. But I grew ready, there was no choice of course. Time made me.”
February is #RPAwarenessMonth. This month, we’re sharing stories that show the many ways RP shapes people’s lives.
Read Liam’s story here: https://bit.ly/3Zh6I90
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#RPAwarenessMonth
Although I wasn't diagnosed until I was an adult, I now know I had issues as a child and as a teenager, especially night blindness. Just because you know one person with RP does not mean you know all about RP. That includes me! I know my RP.
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Liam O'Carroll, sits on a wooden chair during a Q&A panel. He is holding a Sight Loss Council leaflet in one hand and a microphone in the other. He is wearing a white hoodie which has the Sight Loss Councils logo on the front. In the background, tables, chairs and green plants feature.
February is Retinitis Pigmentosa Awareness Month. In this powerful personal essay, Liam O’Carroll reflects on living with RP, exploring vision, identity and creativity - and reminding us that RP is not one story, but many. 👉 https://bit.ly/3Zh6I90
#RPAwarenessMonth #RetinitisPigmentosa
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A quote from a medical researcher: ''I think the biggest challenge is general quality of life - people regard sight and I think rightly so as the most important sense, if you think of how life is without sight how many limitations do people face, that plus despite its widespread presence especially with ageing population, we don’t yet have truly efficient treatments for the most severe for eye pathologies. Professor Paraoan - Manchester Metropolitan University."
Today is the start of Retinitis Pigmentosa Awareness Month! 👁️
If there are aspects of inherited sight loss that you think are important for the wider public to be more aware of, please share them with Retina UK in the comments below! 😊
#RetinitisPigmentosa #RPAwarenessMonth #RetinaUK50
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Picture of our volunteers on the stage at our annual conference smiling at the camera.
Our community means everything to us and to each other. They're the reason we can support those with inherited sight-loss conditions through research and practical support. You can get involved in fundraising or volunteering too: retinauk.org.uk/get-involved/
#RPawarenessMonth @retinauk.bsky.social
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