💬 Voices featured at #RareCancerDay:
Melody Burchett, Founder of @acureinsight.bsky.social
Jim Palma, CEO @targetcancer.bsky.social
Alexandria Caron, Membership Manager @nordrare.bsky.social
Katie Doble, Patient Advocate
Dr. Taran Gujral, PhD, @fredhutch.org
#RareCancer #CancerResearch
🌍 On 9/30, we joined
@nordrare.bsky.social
#RareCancerDay in DC—bringing together patients, advocates & researchers to spotlight the 1 in 4 living with rare cancer.
Stories of resilience, hope & advocacy were shared.
Read more➡️: bit.ly/4mVjpzF
#RareDisease #RareCancer
Rare Cancer Day 2025: Illuminating the Hidden Frontiers of Oncology
oncodaily.com/blog/rare-ca...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #RareCancers #RareCancerDay
A #braintumor can impact anyone, at any age.
Today, on #RareCancerDay and as #ChildhoodCancerAwarenessMonth ends, we reflect on the urgent need for better treatments and improved quality of life for people of all ages facing a rare #braincancer diagnosis.
Support rare cancer patients through awareness and funding #RareCancerDay bit.ly/DONATE-LSN
💚 Rare, but not forgotten. 💚 Today on Rare Cancer Day, we honor those affected by cholangiocarcinoma. The Cholangiocarcinoma Foundation supports patients and families, advances research, and works to improve quality of life and find a cure. #RareCancerDay #CCAhope
September 30 is #RareCancerDay! rareLife solutions is proud to stand with @NORD_rare and the Rare Cancer Coalition to raise awareness and support for those impacted by rare cancers. Join the zebra herd: https://bit.ly/RCD-23
#RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal
🦓 Today is #rarecancerday!
More than 1 in 4 cancers diagnosed are rare; all childhood cancers are.
Finding treatment in #NewMexico is a challenge for many.
Join us and let's improve healthcare!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
#RareCancerDay: Rare cancers account for ~25% of diagnoses but receive far less funding. Sarcoma, ~1% of adult cancers, urgently needs more research. Join SFA in advancing research: curesarcoma.org/ways-to-help/
#sarcoma #CureSarcoma #cancer
The Life Raft Group pledges to fight for all rare tumor patients. We are more alike than different and we can go further together. #RareCancerDay #DesmoidTumorAwarenessMonth
Recognizing Rare Cancer Day on September 30th with the National Organization for Rare Disorders' Rare Cancer Coalition
Foundation Medicine is proud to support the National Organization for Rare Disorders’ (@nordrare.bsky.social) Rare Cancer Coalition this #RareCancerDay. Let’s raise awareness and stand with the rare cancer community. Learn more: spkl.io/63320ATd3E
Today is Rare Cancer Day!
The A Cure in Sight team is in Washington, DC advocating for those living with ocular melanoma. We’re raising our voices for more research, better treatments, and stronger support.
#RareCancerDay #ACureInSight #AdvocacyInAction #HopeIsInSight
Spearheaded by the NORD Rare Cancer Coalition®, which is composed of 27 rare cancer-specific member organizations, #RareCancerDay is observed on September 30 to highlight the challenges patients face.
Appendix Cancer Myth ❌ or Truth ✅?
There's only 2 more days until #RareCancerDay! 🦓In the meantime, let's debunk a common #appendixcancer misconception.
⬇️ READ THREAD
❤️ Have you or a loved one been affected by a #rarecancer diagnosis? #RareCancerDay is coming up on September 30.
Share your story and learn how you can get involved on this important, upcoming day here: https://bit.ly/RCD-22
@rarediseases
Today is #rarecancerday, a global campaign to raise awareness about rare cancers including #appendixcancer and #pseudomyxomaperitonei (PMP).
Together, let’s…
✨Educate
✨Support
✨Learn
✨Research
✨Advocate
Comment below why Rare Cancer Day is important to you. 👇
About 1 in 5 people in the US living with #cancer is diagnosed with #RareCancer. You may be rare, but you’re not alone!
Learn how you can get involved to raise awareness on September 30 for #RareCancerDay: https://bit.ly/RCD-22 @rarediseases
“I’ve never heard of that!” How many times have you heard that response before? You may be rare, but you are not alone!
Spread the word that today is #RareCancerDay! 🦓🎗#AppendixCancer
There is often significant delay for rare cancer patients to get an accurate diagnosis, typycally longer than patients with more common cancers. Timely diagnosis can save lives.
Join the zebra herd and spread the word about rare cancers! #RareCancerDay #AppendixCancer
Today is #RareCancerDay! You are not alone fighting appendix cancer/PMP. You are not alone supporting a loved one through their journey. You are not alone at 10+ years NED.
We may be rare, but together we are zebras in a MIGHTY herd, unstoppable. #YouAreNotAlone #AppendixCancer
In honor of #RareCancerDay on September 30th, we'd like to share Deshanna's appendix cancer survivor story.
Read her story here: http://acpmp.org/patients-story/deshanna-armwood/
September 30th is #RareCancerDay!
Check out Jeremy's video that is featured on @RareDiseases. Jeremy shares his experience with pseudomyxoma peritonei and the role genomic testing has played in his treatment. rarediseases.org/voices-of-rare-cancer-je...
If you haven't yet, check out Jeremy's incredibly informative video where he shares information regarding his journey with #AppendixCancer #PMP and how #genomictesting has played a role in his treatment. https://youtu.be/kC-12ajc2kQ
#RareCancerDay
Knowing which #biomarkers are driving a patient’s tumor could open the door to personalized treatments options. Learn more about #GenomicTesting and #rarecancerday at http://acpmp.org/rare-cancer-day-2020
Don’t miss it! In 1 hour, tune into the special #RareCancerDay 'Genomic Testing and Personalized Care for Rare Cancer' webinar today @ 2pm ET.
•How genomic tests are done
•How genomic tests can help
•How genetic counselors can help
Register here:...
Today, September 30th, is #RareCancerDay!
Rare Cancer Day is an awareness day devoted to shining a light on rare cancers and the issues people living with them face. Help us share and spread awareness. #earlydiagnosis #genomictesting #appendixcancer...
Tomorrow is #RareCancerDay! Are you ready to join ACPMP and the @RareDiseases Rare Cancer Coalition to raise awareness about Appendix Cancer/PMP & genomic testing?
Share this infographic and #RareCancerDay in your posts tomorrow! https://acpmp.org/rare-cancer-day-2020/
Did you know #RareCancerDay is September 30th? An annual awareness day devoted to shining a light on rare cancers. ACPMP invites you to raise awareness about #appendixcancer and the emerging treatment tools currently available, such as genomic testing...
Join ACPMP & @RareDiseases in raising awareness about #RareCancerDay on September 30th! Rare Cancer Day is a day devoted to shining a light on #rarecancers. Jeremy shares his story of living with Appendix Cancer/PMP and his experience w/ genomic testing https://bit.ly/3m9ciFE
