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The brand new Retina UK online auction is here! 💰

Please start your bidding on some fantastic prizes and support those living with inherited sight loss: http://retinauk.org.uk/auction ☺️

#Auction #Fundraising #RetinaUK

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#Accessible A festive branch with pine needles, red berries, and snow-dusted pinecones lies across the top of a white background. Below, red and black text reads: “Merry Christmas from the team at Retina UK!”

#Accessible A festive branch with pine needles, red berries, and snow-dusted pinecones lies across the top of a white background. Below, red and black text reads: “Merry Christmas from the team at Retina UK!”

Merry Christmas from all of us at Retina UK!

We’re so grateful for our incredible community, everyone affected by inherited sight loss, their families, and our amazing supporters. 💙

Wishing you a peaceful and joyful Christmas. ✨

#MerryChristmas #RetinaUK

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centre of the image is the blue text "THANK YOU! That's a wrap! Thank you for watching the Retina UK BBC Lifeline appeal". Top left is the Lifeline logo and bottom right is Retina UK's logo.

centre of the image is the blue text "THANK YOU! That's a wrap! Thank you for watching the Retina UK BBC Lifeline appeal". Top left is the Lifeline logo and bottom right is Retina UK's logo.

Thank you all so much for tuning in to watch the #RetinaUK #BBC #Lifeline appeal 🙏.

If you missed it, don’t worry  as it will be on BBC Two soon! Your support helps us keep assisting those living with inherited sight loss. Please keep spreading the word about Retina UK 💙

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Today is the day! The #RetinaUK #BBC #Lifeline appeal will be going live at 12.45pm🥳. This is a great opportunity for our charity to gain the exposure we need to continue our vital work. Please tune in today to make this appeal as much of a success it can be. We are grateful for your support.

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centre of the image is a circle with a picture of Ryan smiling at the camera wearing a blue shirt. Below is the text "To hear more about Ryan's story, tune in to see the Retina UK BBC Lifeline appeal on BBC one 16/11/2025.

centre of the image is a circle with a picture of Ryan smiling at the camera wearing a blue shirt. Below is the text "To hear more about Ryan's story, tune in to see the Retina UK BBC Lifeline appeal on BBC one 16/11/2025.

The #RetinaUK #BBC #Lifeline Appeal will be going live tomorrow at 12.45pm! 😀 Every single person who tunes in will be making a massive difference in spreading the word about the great work we do that Retina UK 🧑‍💻. Please tell your friends, family and loved ones to make the appeal a great success.

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 centre of the picture is the blue text "Our life has changed completely since that wonderful first call in a positive way. It was so inspirational in so many ways and encouraged us to come to a peer support group outing of which we did." - Maria. To hear more about Maria's story, tune in to see the Retina UK BBC Lifeline appeal on BBC one 16/11/2025.

centre of the picture is the blue text "Our life has changed completely since that wonderful first call in a positive way. It was so inspirational in so many ways and encouraged us to come to a peer support group outing of which we did." - Maria. To hear more about Maria's story, tune in to see the Retina UK BBC Lifeline appeal on BBC one 16/11/2025.

On Sunday, 16th November exactly one week today, #RetinaUK will be live on #BBC with our #Lifeline appeal 📺. We are so excited to have this opoprtunity to showcase the work we do and spread awareness of our cause. If you have 10 minutes to spare, please tune in to make the appeal a great success 🧑‍💻.

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Yesterday we accompanied a friend to the doctors. As well as providing moral support, #GuideDog Mabel provided a welcome distraction which meant my friend didn't feel she was being looked at while she did her blood pressure in the large busy waiting room. #RetinaUK #RetinaUK50

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Yesterday I continued clearing out the upstairs bedrooms. It's a slow job when you have #LowVision but I also find it therapeutic and know the end result will make it worth while. I'm making sure as much as possible is recycled or goes to charity. #RetinaUK50 #RetinaUK #RP

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Whilst shopping yesterday, a friend saw me and asked if I needed any help. I could have been miss independent and said no. But I told him what I was looking for and he helped me find it whilst having a natter. Sometimes social interaction is more important than independence. #RetinaUK50 #RetinaUK

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We’re here to tell you about the #RetinaUK Membership, open to the inherited sight loss community. 🚨 Join our club for just £24 a year and have your voice heard. 💙

Find out more: https://retinauk.org.uk/membership
 
#Accessible Video of a staff member talking about membership.

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💙 Play the #RetinaUK #Lottery for just £1 a go & you could win £25,000 weekly! 💥 28 supporters have already won – you could be next: https://retinauk.org.uk/lottery

#Accessible: Photo of lottery balls with text “Win £25,000 in time for Christmas with the Retina UK Lottery!”.

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A table filled with brown paper bags under a screen displaying "RETINA UK 50 Years," supporting inherited sight loss.

A table filled with brown paper bags under a screen displaying "RETINA UK 50 Years," supporting inherited sight loss.

It’s lunchtime here at the #RetinaUK Professionals’ Conference! An excellent opportunity to network with fellow professionals and exchange ideas about the future of eye care support. Let’s keep the conversation going!

#RetinaUKConf25
#Networking
#EyeCareSupport

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Text reading "What does Retina UK mean to you?" with a prompt to "Let us know in the comments!" on a blue background.

Text reading "What does Retina UK mean to you?" with a prompt to "Let us know in the comments!" on a blue background.

As we celebrate our 50th anniversary, we’re reflecting on the impact we’ve had together over the years. 🩵

What does Retina UK mean to you?

Share your thoughts in the comments, as your story is an important part of our journey.

#RetinaUK #RetinaUK50 #InheritedSightLoss

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Green speech bubble on a blue background reads: "Johnson & Johnson gene therapy update – What happens now?"

Green speech bubble on a blue background reads: "Johnson & Johnson gene therapy update – What happens now?"

Recently reported results from the phase 3 trial of Johnson & Johnson’s X-linked RP gene therapy are a mixed bag and we await the company’s decision on next steps.

Read our #ResearchNews piece here: retinauk.org.uk/news/johnson-johnson-gen...

#RetinaUK

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#Accessible two promotional graphics for the Retina UK Professionals' Conference. On the left side, there's a photo of Michael. On the right side, there is text on a white and navy blue background with orange and white accents. The text reads: "Retina UK Professionals’ Conference – Speaker Spotlight: Michael Crossland – Supporting the mental wellbeing of young people with inherited, progressive vision impairment ". The second image is exactly the same but with Rachels name and picture.

#Accessible two promotional graphics for the Retina UK Professionals' Conference. On the left side, there's a photo of Michael. On the right side, there is text on a white and navy blue background with orange and white accents. The text reads: "Retina UK Professionals’ Conference – Speaker Spotlight: Michael Crossland – Supporting the mental wellbeing of young people with inherited, progressive vision impairment ". The second image is exactly the same but with Rachels name and picture.

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✨ Speaker Spotlight ✨

Join UCL’s Michael Crossland & Rachael Canavan for a vital session on supporting the mental wellbeing of young people with progressive vision loss.
📍 London & online.

🔗 Register: retinauk.org.uk/professionals-conference

#RetinaUK #YouthMentalHealth #VisionImpairment

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✨ Speaker Spotlight ✨

Don’t miss “Learning from lived experience” – a powerful panel with our community & Paula McGrath, Deputy CEO of Retina UK. Discover how real stories shape better support.
📍London & online.

🔗 Register: retinauk.org.uk/professionals-conference #RetinaUK #LivedExperience

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#Accessible Green background with a picture centre of Kim side smiling at the camera wearing a pink shirt. Above is the curved text "Volunteer Spotlight" and below is a blue box with the white text "Joe Rizzo-Naudi".
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#Accessible Green background with a picture centre of Kim side smiling at the camera wearing a pink shirt. Above is the curved text "Volunteer Spotlight" and below is a blue box with the white text "Joe Rizzo-Naudi". 3w

🌟 Volunteer Spotlight 🌟

Meet Kim, our ‘Bumpers’ group facilitator in Belfast: “It changes lives. Some feel so low they can't leave home—what we do really matters.”
Thank you, Kim! 💙

Learn more: https://retinauk.org.uk/
Volunteer: volunteering@retinauk.org.uk#

#RetinaUK #Community

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#Accessible Backdrop of Birmingham canal. Top left is navy bubble with white font "Sight Village Birmingham". On the right are 3 bubbles (navy, light blue and navy) with dates of the event and times "7th and 8th July" and "Monday: 10am - 4pm and Tuesday: 9:30am-3:30pm) and the venue "Eastside Rooms Woodcock Street Birmingham B7 4BL".

#Accessible Backdrop of Birmingham canal. Top left is navy bubble with white font "Sight Village Birmingham". On the right are 3 bubbles (navy, light blue and navy) with dates of the event and times "7th and 8th July" and "Monday: 10am - 4pm and Tuesday: 9:30am-3:30pm) and the venue "Eastside Rooms Woodcock Street Birmingham B7 4BL".

We'll be exhibiting at #SightVillage Birmingham on the 7th and 8th July 2025. 

You'll be able to meet us in person and find out more about what we offer.

We look forward to seeing you on the day!

#RetinaUK #InheritedSightLoss #Birmingham

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🚨 Just 1 place left in our biggest ever #TeamRetinaUK for the Great North Run 2025! 🏃

Join us on 7 Sept during our 50th year 🎉

Secure the final spot now: https://retinauk.org.uk/event/great-north-run-2025

#RetinaUK #ChallengeEvent #GreatNorthRun

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#Accessible  graphic to mark Pride Month, featuring a white square in the center with dark blue text that reads: "Pride Month – 1–30 June 2025." Surrounding the square are sweeping rainbow-colored curves representing the Pride flag. The colors flow from top left to bottom right in this order: red, orange, yellow, green, blue, and purple, creating a vibrant and celebratory design.

#Accessible graphic to mark Pride Month, featuring a white square in the center with dark blue text that reads: "Pride Month – 1–30 June 2025." Surrounding the square are sweeping rainbow-colored curves representing the Pride flag. The colors flow from top left to bottom right in this order: red, orange, yellow, green, blue, and purple, creating a vibrant and celebratory design.

This month, and every month, we stand with our LGBTQ+ community members, volunteers, supporters and everyone affected by inherited sight loss.

Our commitment is clear: to create a safe, inclusive and empowering space where everyone feels heard, respected and supported. 

#RetinaUK #Pride2025

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Photo of Retina UK volunteers stood on a stage and smiling at the camera at our 2024 Annual Conference.

Photo of Retina UK volunteers stood on a stage and smiling at the camera at our 2024 Annual Conference.

@retinauk.bsky.social want to say a huge thank you to every single one of our amazing volunteers.

Your time, compassion and commitment mean the world to us and to everyone in the Retina UK community. 💙

#ThankYouVolunteers #RetinaUK #VolunteersWeek2025

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New #RetinaUK podcast! 🎧 Kate Arkell chats with researcher Rebecca Rosi about which support services best help people with RP. Don’t miss this deep dive into health economics research.

Listen now 👉 retinauk.org.uk/resource/podcast-discuss...

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#Accessible white background with the "Sight Loss" in blue font, with 6 coloured boxes underneath; Pink "S", green "U", blue "R", grey "V", yellow "E" and pink "Y". "2025" underneath in blue. Top right hand corner is the Retina UK logo. There is pink text "Complete our" above and "and win a £50 Amazon voucher!" below.

#Accessible white background with the "Sight Loss" in blue font, with 6 coloured boxes underneath; Pink "S", green "U", blue "R", grey "V", yellow "E" and pink "Y". "2025" underneath in blue. Top right hand corner is the Retina UK logo. There is pink text "Complete our" above and "and win a £50 Amazon voucher!" below.

#RetinaUK Sight Loss Survey 2025 🔵 Help us shape the future of support for people living with inherited sight loss by sharing your experiences. 

📅 Deadline: Friday 25 April 2025.
📝 Take the survey: surveymonkey.com/r/SightLossSurvey2025
📞 Need help? Call 01280 821334 to complete it over the phone.

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