A blue colour slide with a blurry image.

A green slide featuring white text: “Did you know? This year, SMA Europe celebrates its 20th Anniversary.” The rotated 20 Years logo appears above the text, with the SMA Europe logo in the top left corner and the “All Together. One Goal.” stamp in the right corner.

A blue slide featuring white text: “And we will celebrate it during our 5th International Scientific Congress on SMA in Budapest!” The rotated 20 Years logo appears above the text, with the SMA Europe logo in the top left corner and the “All Together. One Goal.” stamp in the right corner.

A green slide featuring white text: “Join us at the Congress and share a special evening celebrating the Lifetime Achievement Award ceremony!” The rotated 20 Years logo appears above the text, with the SMA Europe logo in the top left corner and the “All Together. One Goal.” stamp in the right corner.

20 years of united patient voices.
20 years of progress.

In Budapest, we celebrate this milestone through a special Lifetime Achievement Award ceremony at the 5th International SMA Congress. Stay tuned! 🤩

https://congress.sma-europe.eu/

#20YearsStrong #WeAreOne #SMAEurope

An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Register NOW!” The SMA Europe's 20 years logo appears in the top right corner.

An orange colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Registration is still open! 🧬
The 5th International Scientific Congress on SMA brings researchers & clinicians together in Budapest to advance SMA science, care & outcomes.
👉 https://congress.sma-europe.eu/

#SMAEurope #SMAResearch #Budapest2026

An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Register NOW!” The SMA Europe's 20 years logo appears in the top right corner.

An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Key Highlights!” The SMA Europe's 20 years logo appears in the top right corner.

An orange colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

What will the 5th International Scientific Congress on SMA focus on? Advancing fundamental, translational & clinical SMA research 🧬

📍 Budapest | 🗓️ March 2026
👉 Learn more & register: https://congress.sma-europe.eu/

#SMAEurope #SMACongress #SMAResearch #Budapest2026

Every volunteer makes a difference at SMA Europe. 💙 “It’s where I feel my voice is heard.” — Jane 🇲🇰 Your empathy and dedication make our community thrive. Together, we are stronger. 💫
#SMAEurope #WeAreOne #YouthVoices #VolunteerDay

Being a volunteer at SMA Europe means being part of a family built on care and trust. 💙 “No one is left behind.” — Ayça 🇹🇷
Thank you to our volunteers for your kindness and strength. Together, #WeAreOne 💫
#SMAEurope #Community #Inclusion #InternationalVolunteerDay

This #InternationalDayofPersonswithDisabilities, we acknowledge, raise awareness, and advocate — not celebrate.
“There’s still so much to do, so much to be aware of.” — Seda 🇹🇷
Let’s break barriers and make inclusion a reality. ♿💜
#WeAreOne #SMAEurope #Inclusion #Accessibility

This #InternationalDayofPersonswithDisabilities, reminds us: barriers belong in the past. ♿💙
“Disabilities don’t limit us. Old-fashioned attitudes do.” — Simona 🇲🇰
Together, #WeAreOne.
#SMAEurope #Inclusion #Accessibility

💡 Did you know? 87.1% of people in our EUPESMA survey said they would participate in a clinical trial! Read the full publication now! https://heyzine.com/flip-book/9c8efc8e88.html 

#SMAEurope #OneGoal #EUPESMA #PatientVoice #ClinicalTrials #SMACommunity #PatientCentric

Workshop registration is OPEN! 🙌 Join us on 11 March 2026 for two workshop sessions at the 5th International Scientific Congress on SMA
🟣 Limited seats — first come, first served!
Register: congress.sma-europe.eu/workshop 💜
#SMAEurope #SMAcongress

📣 We’re very excited to launch the newest publication in SMA Europe’s One Goal editorial series! 🥳 Together We Prioritise: Results from EUPESMA on Clinical Trial Participation. https://heyzine.com/flip-book/9c8efc8e88.html #SMAEurope #OneGoal #EUPESMA #PatientVoice #ClinicalTrials #SMACommunity

Happy #WorldScienceDay! 🧬🌍
Thomas Doktor, PhD, Chair of the Treatment Committee at SMA Europe, reminds us: “Science builds bridges between people, ideas, and possibilities,” 
Let’s keep connecting the dots for progress, equality, and hope. 💫
#SMAEurope #WeAreOne #Research #Inclusion #SMA

A mustard-themed slide featuring a cheerful group photo of the SMA Europe team: Nicole, Theo, Emilia, Federica, Laura, and Carolina smiling together during the retreat. The SMA Europe logo appear in the top left corner and "All together. One goal.” stamp on the right.

Mustard slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Between 27 and 30 October, our SMA Europe Staff Team gathered in Freiburg, Germany. It was a wonderful opportunity to review our ongoing projects and initiatives, contribute to the planning of 2026, and strengthen our shared vision for the future.  
All together. One goal. 💫
#SMAEurope #WeAreOne

Welcome to SMA Europe Youth SMArt TV. This is Episode 6: First Job Experience with SMA. In this episode, we explore the journey of entering the working world while living with SMA. Watch it here: youtu.be/wRZeg_YHxDg?...

#WeAreOne #SMArtTV #SMAEurope #InclusionMatters #YouthVoices

A blue slide with white text reads “New Publication! Rare Revolution Magazine's "Beyond the Breakthroughs Edition" features an interview with our CEO, Nicole Gusset.” The SMA Europe logo appears in the top left corner and care stamp on the right.

Blue slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Our CEO Dr. Nicole Gusset is featured in Rare Revolution Magazine’s “Beyond the Breakthroughs”! She shares insights on SMA treatments, the power of community & our ongoing journey. Together, we keep driving progress. 🔗 bit.ly/4lO5Tx6 #SMA #WeAreOne #SMAEurope

⏰ Last minute registrations! Be part of SMA Europe’s 1st Clinical Care Symposium, 29–30 Aug in Milan.

Let’s improve emergency care in SMA.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMACareSymposium #SMACommunity

🗓️ 1 week to go! Register for SMA Europe’s 1st Clinical Care Symposium on 29–30 Aug in Milan. The event is accredited for continuing medical education for healthcare professionals. Focus: Medical Emergencies in SMA. 

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMACareSymposium

🗓️ 2 weeks to go! Register for SMA Europe’s 1st Clinical Care Symposium on 29–30 Aug in Milan.

Focus: Medical Emergencies in SMA. Deadline: 15 Aug.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMACareSymposium #SMAResearch

An orange-colored slide with a modern tablet is shown, likely an iPad Pro or similar device, with an an orange background. SMA Europe logo is at the top left. Below is the text "Annual report 2024" and at the bottom, the tagline "All together. One goal." A stylized, abstract graphic of orange lines swirling in a cylindrical shape is included on the right side.

Open publications featuring orange, yellow, and green designs, SMA Europe team photos, and key stats like 456K website views, 90 volunteers, and 100 congress participants.

An orange slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

📣 SMA Europe’s Annual Report 2024 is here!
Discover our key projects, progress, and the people behind them — all working for a better world for everyone living with SMA. 💜
🔗 https://heyzine.com/flip-book/94ea793aba.html#page/8
#WeAreOne #SMAEurope #spinalmuscularatrophy #raredisease #patientadvocacy

Episode 5 of SMArt TV is out: Fair Access to Treatments! 💪💜
SMA treatments exist—but many still face barriers to access. That’s why we launched OdySMA, a quest to access.
🌍 Hear youth voices across countries: youtu.be/Khu4NobTgg8
🔗 odysma.sma-europe.eu
#WeAreOne #YouthGroup #OdySMA #SMAEurope

A blue-colored slide with a photo of Thomas, Marie-Christine, Véronique, Yasemin, Nicole, and Federica, in front of the argenx presentation, smiling. Text reads “Advisory Board meeting with argenx. 11-12 June 2025” (top right), “All Together. One Goal” stamp is on the top below the text. SMA Europe logo is at the top left.

A blue slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

On 10–11 June, SMA Europe joined an in-person advisory board with argenx in Ghent to share community feedback on ARGX-119, a potential SMA treatment. The team brought the patient voice to the heart of clinical research.
#smaeurope #research #smacommunity #weareone #spinalmuscularatrophy

SMArt TV Episode 4 is live! Meet Amelia, a 19-year-old from the UK, who shares why wheelchairs are essential—not a luxury—for people with SMA. Watch here: youtu.be/KsuuLrvrRu4?... ♿ #SMArtTV #WheelchairFreedom #SMAEurope #DisabilityRights #WeAreOne

SMA Care Symposium International Clinical Care Symposium on SMA

🚨 Final call! Abstract submission closes 15 June!

SMA Europe welcomes researchers and clinicians to the 1st International Clinical Care Symposium on SMA, set for 29–30 August 2025 in Milan.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMACareSymposium #SMAResearch

⏰ New Deadline for Abstract Submission: 15 June 2025! Submit your work on acute care in SMA and join an international conversation on prevention, pathophysiology, and clinical response.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMAResearch #SMACareSymposium

⏰ New Deadline for Abstract Submission: 15 June 2025! Submit your work on acute care in SMA and join an international conversation on prevention, pathophysiology, and clinical response.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMAResearch #SMACareSymposium

⏰ New Deadline for Abstract Submission: 15 June 2025! Submit your work on acute care in SMA and join an international conversation on prevention, pathophysiology, and clinical response.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMAEurope #SMAResearch #SMACareSymposium

A blue slide with white text reads “Spinal cord stimulation: A new perspective for SMA research” Featuring an interview with Marco Capogrosso and Carmen Quiroga. Published in Rare Revolution Magazine. The SMA Europe logo appears in the top left corner.

Blue background featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

New publication! “Spinal cord stimulation:” Featuring an interview with Marco Capogrosso and Carmen Quiroga. Published in Rare Revolution Magazine. Read here: rarerevolutionmagazine.com/spinal-cord-stimulation-...
#SMArtHorizon #SMAEurope #WeAreOne

A blue-colored slide says "Design, launch, impact: how to run a successful awareness campaign" Wednesday 28th May 2025 14.30 to 16.00 CET.” centered, the SMA Europe logo in the top left corner appears.

A blue slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Join our new SMAcademy webinar! 📣 
Register for the webinar here: forms.office.com/pages/responsepage.aspx
#SMAEurope #webinar #sma #awareness #smacademy

⏳ Kind Reminder: Submit Your Abstract NOW! SMA Europe invites you to the 1st International Clinical Care Symposium on SMA, happening 29–30 August 2025 in Milan, Italy.

Theme: Medical Emergencies in SMA. Deadline: 31 May.

🔗 https://www.sma-europe.eu/sma-care-symposium

#SMACareSymposium #SMAEurope

A blue-colored slide says "Design, launch, impact: how to run a successful awareness campaign" Wednesday 28th May 2025 14.30 to 16.00 CET.” centered, the SMA Europe logo in the top left corner appears.

A blue slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Join our new SMAcademy webinar! 📣 
Register for the webinar here: forms.office.com/pages/responsepage.aspx
#SMAEurope #webinar #sma #awareness #smacademy

An orange-colored slide says "New Publication! SMA Europe's inaugural gathering to discuss medical emergencies" by SMA News Today.” centered, the SMA Europe logo in the top left corner appears.

An orange slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Exciting news! SMA Europe’s 1st International Clinical Care Symposium on SMA is set for Aug 29-30 in Milan! Huge thanks to SMA News Today for highlighting our initiative. The article is here: smanewstoday.com/news/sma-europes-inaugur... #SMAEurope