Episode 5 of SMArt TV is out: Fair Access to Treatments! 💪💜
SMA treatments exist—but many still face barriers to access. That’s why we launched OdySMA, a quest to access.
🌍 Hear youth voices across countries: youtu.be/Khu4NobTgg8
🔗 odysma.sma-europe.eu
#WeAreOne #YouthGroup #OdySMA #SMAEurope
A light green-colored slide with a photo of Clara, a toddler in front of the blackboard, standing and sketching. Text reads “International Neonatal Screening Day 28 June 2025” (top right), “All Together. One Goal” stamp is on the top below the text. SMA Europe logo and NBSA logo are at the top left.
A light green slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
📣On #INSD2025, we mark SMA screening progress in Europe, from 0% to 65%. But no baby should be left behind.
Clara was diagnosed late. Many still are.
🔗 https://www.sma-screening-alliance.org/ | https://odysma.sma-europe.eu/
#SMA #newbornscreening #OdySMA #SMAawareness #raredisease #advocacy
