There's an update on Savannah's gfm. TW so much medical abuse.
Please keep sharing and donating!
By trying to find somewhere less unsafe, she has now lost her NHS provided carers. She's too unwell to do without, so needs to self fund them.
Thank you 🙏🏻
#SaveSavannah #SevereMErgency #ME/CFS
#SaveSavannah #SevereMErgency
#pwME please repost and boost the below. Nobody is willing to intervene. The health minister must step in and prevent a tragedy
Would've been nice if our orgs wouldn't just do business as usual during a #SevereMErgency.
Exactly one mention of "severe" in a sub sub bullet while one of us hasn't eaten in 9 weeks under NHS care.
Where's the urgency? Lives are *literally* on the line. Govt yet to acknowledge #SaveSavannah
UPDATE: thank you #pwME, we're such an amazing community!
Savannah has left QEH with Sonya Chowdhury and will be presenting to St Thomas A&E shortly. We have advocate cover til late this evening, hopefully she will be admitted by then. Please keep your fingers crossed
#MECFS #SaveSavannah
#pwME URGENT - looking for someone ME literate who can sit with Savannah in hospital in London from 4:30pm TODAY for a few hours. Travel will be reimbursed.
Please share widely
#SaveSavannah #SevereMErgency
@tomkindlon.bsky.social @abrokenbattery.bsky.social @drelke.bsky.social
Gofund me update for Savannah. They’re asking for hospital recommendations.
www.gofundme.com/f/severemerg...
#saveSavannah
@tomkindlon.bsky.social @cjdrgg.bsky.social @atranscendedman.bsky.social @abrokenbattery.bsky.social @meassociation.org.uk @actionforme.bsky.social @meactionuk.bsky.social @meactionuk.bsky.social
Please share far and wide!
Desperately trying to #SaveSavannah
"Thank you for your ongoing support for Savannah. Today again we are calling on the community for help. In the absence of any national database of safe doctors for pwSevereME, we want to hear from you if you could make any hospital recommendations for the (Very) Severe, ideally with a bed Savannah could be transferred to. Primarily in the UK but since we're not sure if this even exists here, we're also open to recommendations in nearby countries. For instance, a German hospital gave Dutch pwVerySevereME Sanne TPN and we will be reaching out to her team. Open to suggestions for NHS and private doctors alike. If you know of anywhere, please fill in this very short form: https://tally.so/r/81KxGO. QR code with the link attached too. We have thought long and hard about this, as there is a huge inherent risk in such a move for even further deterioration, but Savannah feels we have to consider all options to get her out of QEH before they kill her. To be clear: we are not asking for “miracle” doctors, ones with wild “cures” or alternative treatments. We're simply asking for doctors who acknowledge the physical causes of ME and won't try to psychologise her. We know what medication keeps Savannah alive. We just need to find a safe bed with a safe consultant who will reinstate those meds (both her IV Cyclizine and pain relief), and provide a stimulus-free environment for her to recover enough to have TPN installed."
#SaveSavannah #MECFS #SevereMErgency
Calling on all #pwSevereME and allies
Savannah's team have just posted this on the fundraiser.
If you know of anywhere, please add to the web form here: tally.so/r/81KxGO
The insanity of considering to fly a very ill person abroad due to inaction of UK Govt!!!
@tessamunt.bsky.social @ashleydaltonmp.bsky.social this open letter calls for exactly the right thing. We must stop unnecessary deaths by developing a safe (very) severe NHS hospital protocol. Also needs a specialist ward that's suitable for people with the severe sensory issues.
#SaveSavannah
@ashleydaltonmp.bsky.social any progress please?
Savannah is DYING and needs urgent intervention to stop the hospital from killing her.
#MECFS #SevereME #SaveSavannah #SevereMErgency
Please #pwME can you keep sharing.
We need to #SaveSavannah, the NHS and UK government clearly won't.
Thank you for speaking out and advocating for Savannah! It really goes to show an intersectional blindness in the NHS for illnesses affecting young people/women/marginalised communities with unique, acute and severe presentations. She is lucky to have such a powerful advocate for her. #SaveSavannah
They need to stop legitimising the governments empty words.
Our lives are quite literally on the line.
#MECFS #VerySevereME #SaveSavannah
CW extremely distressing details of severe medical abuse.
CW for severe medical abuse: I’d encourage anyone with the emotional and physical bandwidth necessary to please read about what Queen Elizabeth Hospital in London is doing to this young woman, Savannah Victora-May.
This info needs to widely shared and documented. #SaveSavannah
"Refusing" is such an incredibly loaded word in hospital contexts. #SaveSavannah #SevereME
www.gofundme.com/f/severemerg...
I had to stop reading, what is happening to Savannah is so horrifying and cruel. Please be careful about choosing to read if you have medical trauma, you can share and support instead. #saveSavannah #MECFS
#SevereMErgency #SaveSavannah #MECFS
New update posted on Savannah's fundraiser. TW Severe medical abuse, go carefully.
QEH reduced her pain relief even further now. While completely ignoring sensory issues, keep barging in on her. Unannounced capacity assessment... How is she supposed to recover?
A very watered down version of the story. They should mention that the hospital has stopped the medication (Cyclizine) that allowed her to eat. #savesavannah
#savesavannah #ME/CFS
Unfettered medical barbarism is hardly a thing of the past, although plenty prefer to delude themselves into believing it is. It’s not uncommon for ME patients to be medically tortured to death in hospital settings. See post below for further elaboration and email template details. ⬇️
#saveSavannah
Please help if you can 🙏
#MECFS #MecicalNeglect #MedicalGaslighting #SaveSavannah
gofund.me/d78cca222
Proponents of “body-mind” theories will usually defend themselves by saying that they think ME is a real illness and not purely psychological. And that’s exactly what the doctors starving Savannah are saying.
#ME/CFS #saveSavannah
Scroll to the bottom for an email template with key points. There is a precedent of UK hospitals refusing to follow expert guidance on ME & torturing, starving, & even killing young women with severe ME like Savannah
#SaveSavannah #SevereME #DontLetMEDie
Please email the NHS, the article provides a template you can use.
#savesavannah
Severe ME patient Savannah is being denied lifesaving fluids and medication at the Queen Elizabeth Hospital in London. Please email the chief executive at ben.travis@nhs.net #saveSavannah
www.thecanary.co/uk/analysis/...
