It’s rare disease day and it’s important to remind you that not everyone looks unwell. They might be fighting a battle that you never see.
#SclerodermaWarrior

Have you had surgery for Carpal Tunnel Syndrome? It’s another gift that often comes with #Scleroderma that I am dealing with.
#SclerodermaWarrior

Ontario’s healthcare was not designed for people with complex, multi-system, chronic illness. I am the care coordinator for my illness that requires care from multiple specialists. That‘s absurd.
#SclerodermaWarrior

This, plus all of the symptoms of Scleroderma on top. So much fun!
#SclerodermaWarrior

When I got diagnosed with a life-altering disease I was handed a one-page brochure, was asked if I had any questions, and was dismissed from the office. What should have happened was a counselling session.
#SclerodermaWarrior

If you’re a fellow #SclerodermaWarrior facing dental surgery, plan for a longer, louder inflammatory peak. Ice helps — even if Raynaud’s makes that deeply ironic. Our connective tissue + immune systems behave in predictable but frustrating ways. Build in extra rest and real support.

Does anyone else have Systemic Sclerosis (Scleroderma) with ILD? I need to know their level of fatigue. And if they found anything that helps.
#SclerodermaWarrior
#ChronicFatigue
#ChronicIllness

I’m supposed to be stretching my hands and wrists. But damn, my wrists are tight tonight.
#SclerodermaWarrior
#DamnYouStupidCollagen

Green Light Therapy day! #Scleroderma #SclerodermaWarrior

While dealing with a progressive rare and potentially-deadly autoimmune disease.
#ChronicIllness
#SclerodermaWarrior

Who suffers from autoimmune disease? The vast majority are women.
#AutoimmuneDisease
#InvisibleIllness
#SclerodermaWarrior

Dealing with an autoimmune disease is like trying to walk to the grocery store while running over your feet with the grocery cart while slapping your own face and punching your own gut.
#InvisibleIllness
#SclerodermaWarrior
#AutoimmuneDisease

#SclerodermaAwareness Month is ending but that doesn’t mean the fight for awareness should end. It needs to continue. Rheumatologists are responsible for diagnosing this systemic disease, and at the recent Canadian conference, only 25 of 250 of them knew about this disease.
#SclerodermaWarrior

Luckily, my Rheumatologist did blood tests and is one of the rare ones that recognized it, and sent me to my wonderful specialist @sindhujohnson.bsky.social and she has given me fabulous care.
#SayScleroderma
#WorldSclerodermaDay
#SclerodermaWarrior

Great to see the people out today walking with me in #Scarborough today to raise awareness of #Scleroderma and fund medical resources and one day, possibly a cure.
#AutoimmuneDisease
#SclerodermaAwareness
#SclerodermaWarrior

My immune systems is attacking my body and causing it to overproduce collagen. My hands are quite dry and sore. Tried every lotion and cream under the sun, but I am still looking for one that helps.
#SclerodermaWarrior

That was COVID, and I was off work for about five weeks. Still not back to doing my daily walks.
#SclerodermaWarrior

What people think Scleroderma is: Raynaud’s Disease; skin tightening; and autoimmune disease. What Scleroderma actually is: mental health struggles; needing assistance for daily activities; social relationships changing; out of pocket medical expenses; and social stigma.

It’s not just the constant pain, and physical changes… it’s the stress thinking about my future, the time off going to doctor’s appointments, the financial impact.
#SclerodermaWarrior
#InvisibleBattles

I’m so exhausted that I can’t stand the sunshine.
#SclerodermaWarrior

Dealing with a throat infection which can be serious because I take immune suppressants to manage my symptoms of Scleroderma.
#SclerodermaWarrior

Systemic Sclerosis - Secrets for getting disability in 2025 The SSA recognizes scleroderma as an impairment but qualifying can be difficult. A disability lawyer with 30 years experience tells you what you need to do

To qualify for benefits for Scleroderma, in addition to meeting the SSA’s financial requirements, applicants must provide medical evidence confirming their diagnosis and demonstrate involvement of multiple organs. #sclerodermawarrior #sclerodermaawareness www.brrlaw.com/systemic-scl...

I don’t think that there is one, but I do feel empathetic. Not being well sucks—just got told to stay off my foot for the next two weeks.
#SclerodermaWarrior

I mask because I have Interstitial Lung Disease 🫁 and I am taking immune suppressants. #SclerodermaWarrior