Puerto Rico adds ALD to the newborn screening programme 👣
www.sanjuandailystar.com/post/upr-medical-science...
We continue to campaign for ALD to be added to UK NBS programme
https://alextlc.org/campaign/screen-our-boys-campaign/
#ScreenOurBoys

Today our Director of Support, Karen, is presenting at the newborn screening laboratory in London

To talk to staff about the real story behind the important need for newborn screening and how families are affected if their disease isn't screened for 💙

#AlexTLC #ScreenOurBoys

Today our Director of Support, Karen, is attending the SHCA quarterly meeting
Dr Graham Shortland, Vice Chair of the National Screening Committee, will discuss his involvement in new UK-wide newborn blood spot screening programmes and future of UK newborn screening 👣
#NewbornScreening #ScreenOurBoys

🔹 raising awareness of our newborn screening campaign for ALD through press articles, including an interview with our CEO on World Brain Day
...plus lots more 💙
#alextlc #leukodystrophy #internationalneonatalscreeningday #INSD2025 #newbornscreening #screenourboys

To find out more about our Screen Our Boys Campaign, visit: alextlc.org/campaign/scr...

#alextlc #screenourboys #newbornscreening #adrenoleukodystrophy

Dr Flynn has joined our team of doctors to help get the evidence together for when newborn screening for ALD in the UK is reviewed again by the national screening committee later this year 👣

#alextlc #newbornscreening #screenourboys